Overview
Lobbying Costs
100,000€ - 199,999€
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
1.5 Fte (3)
Lobbyists with EP accreditation
3
High-level Commission meetings
4
Lobbying Costs over the years
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Info
Alzheimer Europe (AE)
EU Transparency Register
37399753690-65 First registered on 01 Jun 2010
Goals / Remit
Alzheimer Europe sees its mission as
• changing perceptions, policy and practice in order to improve the lives of people with dementia and their carers
• ensuring equal access to brain health promotion, timely diagnosis and post diagnostic support for all Europeans affected by dementia
Alzheimer Europe will achieve this mission by providing a voice to people with dementia and their carers, making dementia a European priority, changing perceptions and combating stigma, raising awareness of brain health and prevention, strengthening the European dementia movement and supporting dementia research.Main EU files targeted
AE is an active participant of a number of projects co-funded by the Innovative Medicines Initiative/Innovative Health Initiative. In 2022 and 2023, AE received an operating grant from the EU's disability programme (Citizens, Equality, Rights and Values programme - CERV).
As a member of the European Patients' Forum and the European Disability Forum, the organisation follows legislative proposals and campaigns such as the European Social Pillar, the Work-Life directive, the European Care Strategy, the European Disability Card, the "Healthier Together" NCD Initiative and the #EU4Health Campaign.Address
Head Office
5, Heienhaff
Senningerberg 1736
LUXEMBOURGEU Office
5, Heienhaff
Senningerberg 1736
LUXEMBOURGWebsite
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People
Total lobbyists declared
3
Employment time Lobbyists 100% 1 25% 2 Lobbyists (Full time equivalent)
1.5
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
3 accreditations were / are live (in bold) for the selected state of 19 Apr 2024
Name Start date End Date Cristina PENCEA 29 Feb 2024 28 Feb 2025 Owen MILLER 28 Feb 2024 27 Feb 2025 Jean GEORGES 05 Mar 2024 04 Mar 2025 Ms Cristina PENCEA 29 Feb 2024 15 Apr 2024 Mr Owen MILLER 28 Feb 2024 15 Apr 2024 Mr Jean GEORGES 05 Mar 2024 15 Apr 2024 Mr Jean GEORGES 22 Sep 2018 01 Oct 2019 Mr Owen MILLER 22 Sep 2018 01 Oct 2019 Ms Vanessa CHALLINOR 20 Sep 2017 19 Sep 2018 Mr Jean GEORGES 20 Jul 2017 30 Jun 2018 Ms Vanessa CHALLINOR 29 Aug 2016 26 Aug 2017 Mr Jean GEORGES 19 Jul 2016 02 Jul 2017 Ms Vanessa CHALLINOR 27 Aug 2015 26 Aug 2016 Mr Jean GEORGES 04 Jun 2015 29 May 2016 Ms Annette DUMAS 12 Mar 2015 27 Aug 2015 Ms Annette DUMAS 13 Mar 2014 12 Mar 2015 Mr Jean GEORGES 11 Dec 2013 10 Dec 2014 Ms Annette DUMAS 13 Mar 2013 12 Mar 2014 Ms Annette DUMAS 27 Feb 2012 14 Mar 2013 Annette DUMAS 27 Feb 2012 12 Mar 2013 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
Alzheimer Europe is a full member of the European Patients' Forum and the European Disability Forum. More details on partner organisations can be found here: https://www.alzheimer-europe.org/our-work/partners
Member organisations
None declared
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Financial Data
Interests represented
Promotes their own interests or the collective interests of their members
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
100,000€ - 199,999€
Major contributions in closed year
Type Name Amount Grant Citizens, Equality, Rights and Values Programme (CERV) 500,490€ Grant Horizon Europe 463,883€ Major contributions in current year
Type Name Amount Grant Citizens, Equality, Rights and Values Programme (CERV) 550,350€ Grant Horizon Europe 617,000€ Intermediaries for closed year
None declaredIntermediaries for current year
None declaredClosed year Costs
100,000€ - 199,999€
Other financial info
None declared
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
LGTBI#Disability#European Alzheimer's Alliance set up by Alzheimer Europe and comprised of close to 90 Members of the European Parliament having pledged their support
Communication activities
For the 2024 European Parliement elections, AE adopted the Helsinki Manifesto with the political priorities of the European Dementia movement. It will launch a campaign asking candidates to sign the European Dementia Pledge and asking candidates to commit to joining the European Alzheimer's Alliance on their election.
The association publishes the "Dementia in Europe" magazine three times a year in which it features interviews with European and national policy makers as well as updates on relevant policy developments.
The association also regularly organises lunch debates in the European Parliament which are hosted by members of the European Alzheimer's Alliance.Other activities
Alzheimer Europe closely works together with the European Alzheimer's Alliance, a multi-party and multinational group of Members of the European Parliament. The member associations adopted the Glasgow Declaration at the association's Annual Meeting in October 2014 which constitutes the basis for the organisation's lobbying work. In particular, the organisation lobbies for the development of a European dementia strategy and the establishment of national Alzheimer plans and/or dementia strategies.
Alzheimer Europe also coordinates the European Group of Governmental Experts on Dementia which is comprised of health ministry officials from EU Member States. Alzheimer Europe provides the secretariat for this group and organsies the meetings of the group which are open to European Commission, OECD and WHO representatives in an observer capacity.
Meetings
Meetings
4 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 25 Nov 2021 Location Webex Subject Follow up to Cssr Kyriakides’ meeting with CSOs on 25/10/2021 on civil society funding through EU4Health Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Giorgios Rossides (Cabinet member)
Other Lobbyists -
Date 25 Oct 2021 Location Brussels Subject VTC Meeting: EU4Health Work Programme 2022 and operating grants. Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 30 Jul 2021 Location Virtual meeting Subject Meeting with civil society representatives regarding the EU4health programme. Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 04 May 2015 Location Brussels, Belgium Subject Commission and stakeholders' action on Dementia and Alzheimer and cooperation in this area Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)