Overview
Lobbying Costs
250,000€
Financial year: Jan 2016 - Dec 2016
Lobbyists (Full time equivalent)
2.5 Fte (4)
Lobbyists with EP accreditation
2
High-level Commission meetings
5
Lobbying Costs over the years
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Info
Alzheimer Europe (AE)
EU Transparency Register
37399753690-65 First registered on 01 Jun 2010
Goals / Remit
Alzheimer Europe sees its mission as “changing perceptions, practice and policy in order to improve the quality of life of people with dementia and their carers”.
Alzheimer Europe will achieve this mission by providing a voice to people with dementia and their carers, making dementia a European priority, promoting a rights based approach to dementia, supporting dementia research and strengthening the European dementia movement.Main EU files targeted
AE is involved in the activities of the European Innovation Partnership on Active and healthy Ageing and is an active participant of a number of projects co-funded by the Innovative Medicines Initiative. The organisation is also actively involved in DEM2, the 2nd Joint Action on Dementia and previously collaborated with ALCOVE, the European Joint Action on Dementia.
As a member of the European Patients' Forum, the organisation followed legislative proposals such as the Clinical Trials Directive, EU legislation on data protection and the Crossborder Healthcare discussions.Address
Head Office
rue Dicks, 14
Luxembourg 1417
LUXEMBOURG -
People
Total lobbyists declared
4
Employment time Lobbyists 100% 1 50% 3 Lobbyists (Full time equivalent)
2.5
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
2 accreditations were / are live (in bold) for the selected state of 20 Feb 2017
Name Start date End Date Lukas Andreas Duffner 09 Dec 2024 08 Dec 2025 Maria-Cristina Pencea 09 Dec 2024 08 Dec 2025 Owen MILLER 09 Dec 2024 08 Dec 2025 Jean GEORGES 04 Nov 2024 03 Nov 2025 Cristina PENCEA 29 Feb 2024 04 Oct 2024 Owen MILLER 28 Feb 2024 04 Oct 2024 Jean GEORGES 05 Mar 2024 04 Oct 2024 Jean GEORGES 22 Sep 2018 01 Oct 2019 Owen MILLER 22 Sep 2018 01 Oct 2019 Ms Vanessa CHALLINOR 20 Sep 2017 19 Sep 2018 Jean GEORGES 20 Jul 2017 30 Jun 2018 Ms Vanessa CHALLINOR 29 Aug 2016 26 Aug 2017 Jean GEORGES 19 Jul 2016 02 Jul 2017 Ms Vanessa CHALLINOR 27 Aug 2015 26 Aug 2016 Jean GEORGES 04 Jun 2015 29 May 2016 Annette DUMAS 12 Mar 2015 27 Aug 2015 Annette DUMAS 13 Mar 2014 12 Mar 2015 Jean GEORGES 11 Dec 2013 10 Dec 2014 Annette DUMAS 13 Mar 2013 12 Mar 2014 Annette DUMAS 27 Feb 2012 14 Mar 2013 Annette DUMAS 27 Feb 2012 12 Mar 2013 Complementary Information
None declared
Person in charge of EU relations
Ms Vanessa Challinor (Policy Officer)
Person with legal responsibility
Mr Jean Georges (Executive Director)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
Alzheimer Europe is a full member of the European Patients' Forum and joined the European Disability Forum in 2017.
Member organisations
None declared
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Financial Data
Closed financial year
Jan 2016 - Dec 2016
Lobbying costs for closed financial year
250,000€
EU grant income for closed financial year
594,889 € (Source: Health and Research Programmes)
Other financial info
Alzheimer Europe publishes its financial accounts on its website together with a list of the organisation's sponsors: http://www.alzheimer-europe.org/EN/Alzheimer-Europe/Statutes-and-Finances/Finances/Financial-accounts2
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EU Structures
Groups (European Commission)
European Commission Group of Governmental experts on dementia
ACC
None
Groups (European Parliament)
None
Communication activities
AE has set up the European Alzheimer's Alliance which is comprised of over 120 Members of the European Parliament with an interest in dementia. In 2014, the organisation adopted the Glasgow Declaration in which it calls for the development of a European Dementia Strategy and will be actively campaigning to gather signatures and support for its campaign of making dementia a European priority.
The association publishes the "Dementia in Europe" magazine twice a year in which it features interviews with European and national policy makers as well as updates on relevant policy developments.Other activities
Alzheimer Europe closely works together with the European Alzheimer's Alliance, a multi-party and multinational group of Members of the European Parliament. The member associations adopted the Glasgow Declaration at the association's Annual Meeting in October 2014 which constitutes the basis for the organisation's lobbying work. In particular, the organisation lobbies for the development of a European dementia strategy and the establishment of national Alzheimer plans and/or dementia strategies.
Meetings
Meetings
5 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 21 Sep 2022 Location Brussels Subject Rare diseases Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
- Ines Prainsack (Cabinet member)
Other Lobbyists -
Date 25 Nov 2021 Location Webex Subject Follow up to Cssr Kyriakides’ meeting with CSOs on 25/10/2021 on civil society funding through EU4Health Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Giorgios Rossides (Cabinet member)
Other Lobbyists -
Date 25 Oct 2021 Location Brussels Subject VTC Meeting: EU4Health Work Programme 2022 and operating grants. Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 30 Jul 2021 Location Virtual meeting Subject Meeting with civil society representatives regarding the EU4health programme. Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 04 May 2015 Location Brussels, Belgium Subject Commission and stakeholders' action on Dementia and Alzheimer and cooperation in this area Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)