Barnekreftforeningen

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Registration as it was on 03 Jun 2020
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Overview

Lobbying Costs

17,500€

Financial year: Jan 2019 - Dec 2019

Lobbyists (Full time equivalent)

0.5 Fte (2)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    Barnekreftforeningen

    EU Transparency Register

    281883538016-09 First registered on 19 May 2020

    Goals / Remit

    The Norwegian Childhood Cancer Society is a voluntary and nationwide organization.
    We are here to help you when a child gets cancer.
    Our values:
    - We give hope to each other and to the outside world.
    - We have the courage to speak on behalf of families.
    - We have the strength to support the children and
    the families affected.
    - We create joy in everyday life.
    - We collobarate in the Nodic Association for Childhood
    Cancer Funds to make a common chart/map in the
    area of childhood oncology in the Nordic region when it
    comes to research, research infrastructure and clinical
    work.

    We have our office in Oslo in Norway with 14 county associations run by families who have, or have had children with cancer. The county associations are working
    volunteer for families.
    Our goal is that no children should die of cancer.
    We want to be there to help children and adolescents with cancer and their families. We are present for the whole family, that is, both the sick child, siblings and parents are included. Some of the sick children have become healthy, some have suffered late injuries, some are undergoing treatment, while others are dead from their disease.
    At the hospitals, our peers arrange parent nights with offers about conversations for new families. It might be good to have someone to talk to who has experienced the same situation, when a child gets so serious
    diagnosis as cancer. We also provide positive experiences for those children which must be hospitalized over long periods of time.
    As an oprganization we shall be a support partner and source of information for families affected by childhood cancer so that they do not feel alone.
    At the same time, we want to be the biggest driver in Norway to set focus on childhood cancer in the media and society. We contribute to research and education to combat childhood cancer.

    As a member you have access to a variety of offers both locally and nationally. We arrange everything from courses and collections to safe holidays for the whole family. Our county associations are coming to visit the various hospitals for you as a parent to have someone to talk to. They also provides positive experiences too
    the children who must be admitted in the hospital over long periods.

    Main EU files targeted

    From 2018 we have been invited by Barncancerfonden in Sweden in to a colloboration in the Nordic Association for Childhood Cancer Funds. We use the SIOPE document as a base to influence politicians and stakeholders as well as the SIOP EU manifest.
    In 2019 we agreed in this group and applied one common representant as a member in the mission board for cancer in Horizon Europe.
    In 2020 we as an organiciation in Norway, sent our own respons to Europe’s Beating Cancer Plan Public consultation

    Address

    Head Office
    Tollbugata 35
    Oslo 0101
    NORWAY
  • People

    Total lobbyists declared

    2

    Employment timeLobbyists
    25%2

    Lobbyists (Full time equivalent)

    0.5

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    www.nopho.org

    www.nobos.org

    www.siope.eu

    www.childhoodcancerinternational.org/cci-global-network/europe

    www.siop-online.org

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2019 - Dec 2019

    Lobbying costs for closed financial year

    17,500€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    None

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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