Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2022 - Dec 2022
Lobbyists (Full time equivalent)
0.75 Fte (1)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
Europäischer Nierenpatientenverband (EKPF)
EU Transparency Register
619476249009-60 First registered on 13 Feb 2023
Goals / Remit
To bring together and represent European renal patient organisations. The foundation of our activities is the health and well-being of patients with Chronic Kidney Disease (CKD), and their carers. Those on dialysis treatment and kidney transplant recipients make up the vast majority of patients but we also include those in the early stages of kidney disease who are sometimes called pre-dialysis patients. Part of our brief is promoting early detection of kidney disease.
Main EU files targeted
European health policy, in relation to non-communicable diseases and renal failure in particular.
Address
Head Office
Hackhofergasse 8
Wien 1190
AUSTRIAEU Office
Calle Constancia, 35
Madrid 28002
SPAINWebsite
-
People
Total lobbyists declared
1
Employment time Lobbyists 75% 1 Lobbyists (Full time equivalent)
0.75
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
European Kidney Health Alliance (EKHA)
International Kidney Cancer Coallition (IKCC)
European Patient Forum (EPF)Member organisations
None declared
-
Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2022 - Dec 2022
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
203,946€
Major funding types in closed year
Grants, Member's contribution, Other, EU funding
Major contributions in closed year
Type Name Amount Contribution Membership 20,500€ Contribution Novartis 20,000€ Contribution AstraZeneca 20,000€ Contribution Astellas 20,000€ Contribution Bayer 20,000€ Contribution Baxter 20,000€ Contribution CSL Vifor 20,000€ Contribution Fresenius Medical Care 20,000€ Grant Horizon Europe 9,977€ Major contributions in current year
Type Name Amount Grant Horizon Europe 9,977€ Other financial info
2022
Membership Fees € 20.500,00 €
Collaborator Grants € 170.000,00 €
Bank Interest € 21,28 €
Consulting Services € 2.820,00 €
Travel Expense Reimbursement € 628,45 €
EU Funds (geneTIGA) 9.977,20 €
TOTAL € 203.946,43
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Other activities
None declared
Meetings
Meetings
None declared