EUROPA DONNA-The European Breast Cancer Coalition

EUROPA DONNA – The European Breast Cancer Coalition Mission Statement:

EUROPA DONNA, the European Breast Cancer Coalition, is an independent, non-profit organisation whose members are affiliated groups from countries throughout Europe.

The Coalition works to raise awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and care and increased funding for research. EUROPA DONNA represents the interests of European women regarding breast cancer to local and national authorities as well as to institutions of the European Union.


EUROPA DONNA TEN GOALS:
1. To promote the dissemination and exchange of factual, up-to-date information on breast cancer throughout Europe

2. To promote breast awareness

3. To emphasise the need for appropriate screening and early detection

4. To campaign for the provision of optimum treatment

5. To ensure provision of quality supportive care throughout and after treatment

6. To advocate appropriate training for health professionals

7. To acknowledge good practice and promote its development

8. To demand regular quality assessment of medical equipment

9. To ensure that all women understand fully any proposed treatment options, including entry into clinical trials and their right to a second opinion

10. To promote the advancement of breast cancer research

EUROPA DONNA Key Activities:

EUROPA DONNA is involved in the following educational and information activities:

• Jointly organises with EUSOMA and the EORTC the European Breast Cancer Conference that is held every two years. This Conference brings together 5,000 doctors, researchers, health professionals and advocates from all over the world.

• Organises a major biennial Pan-European Breast Cancer Conference and brings together over 200 breast cancer advocates from throughout Europe.

• EUROPA DONNA General Assembly meetings, which allow for all our Fora to share information and decide on important issues concerning the Coalition as well as National Representative Training sessions for leaders of our member country groups.

• Conducts Annual European Breast Cancer Advocacy Training Course- a two day training course where our members learn more about how to initiate and carry out advocacy programs in their own countries as well as at the European level.

• Launched Breast Health Day on 15 October 2008 with a media event to begin awareness campaign for prevention and early detection

• Launched a public service announcement to 40 member countries in local language to raise awareness of each woman’s right to receive services in accordance with the “EU guidelines for quality assurance in breast cancer screening and diagnosis” Published “Short Guide” to these guidelines with translation into 14 languages to use in national implementation projects.

• Produces various publications and website material concerning breast cancer on www. europadonna.org and www.breasthealthday.org

None declared

No lobbyists with EP accreditations

None declared

None declared

Ms Karen Benn (Policy Officer)

III - Non-governmental organisations

Non-governmental organisations, platforms and networks and similar