EUROPA DONNA-The European Breast Cancer Coalition

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Registration as it was on 30 Mar 2016
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Overview

Lobbying Costs

550,000€

Financial year: Jan 2015 - Dec 2015

Lobbyists (Full time equivalent)

3.75 Fte (5)

Lobbyists with EP accreditation

0

High-level Commission meetings

1

Lobbying Costs over the years

  • Info

    EUROPA DONNA-The European Breast Cancer Coalition   (ED)

    EU Transparency Register

    13080161140-33 First registered on 13 Feb 2009

    Goals / Remit

    EUROPA DONNA – The European Breast Cancer Coalition Mission Statement:

    EUROPA DONNA, the European Breast Cancer Coalition, is an independent, non-profit organisation whose members are affiliated groups from countries throughout Europe.

    The Coalition works to raise awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and care and increased funding for research. EUROPA DONNA represents the interests of European women regarding breast cancer to local and national authorities as well as to institutions of the European Union.


    EUROPA DONNA TEN GOALS:
    1. To promote the dissemination and exchange of factual, up-to-date information on breast cancer throughout Europe

    2. To promote breast awareness

    3. To emphasise the need for appropriate screening and early detection

    4. To campaign for the provision of optimum treatment

    5. To ensure provision of quality supportive care throughout and after treatment

    6. To advocate appropriate training for health professionals

    7. To acknowledge good practice and promote its development

    8. To demand regular quality assessment of medical equipment

    9. To ensure that all women understand fully any proposed treatment options, including entry into clinical trials and their right to a second opinion

    10. To promote the advancement of breast cancer research

    EUROPA DONNA Key Activities:

    EUROPA DONNA is involved in the following educational and information activities:

    • Jointly organises with EUSOMA and the EORTC the European Breast Cancer Conference that is held every two years. This Conference brings together 5,000 doctors, researchers, health professionals and advocates from all over the world

    • Organises a major biennial Pan-European Breast Cancer Conference and brings together more than 200 breast cancer advocates from throughout Europe

    • EUROPA DONNA General Assembly meetings, which allow for all our Fora to share information and decide on important issues concerning the Coalition as well as conferences for leaders of our member country groups

    • Conducts Annual European Breast Cancer Advocacy Training Course- a two day training course where our members learn more about how to initiate and carry out advocacy programs in their own countries as well as at the European level

    • Launched Breast Health Day on 15 October 2008 with a media event to begin awareness campaign for prevention and early detection

    • Produces various publications and website material concerning breast cancer on www. europadonna.org and www.breasthealthday.org

    Main EU files targeted

    On 22 July 2015, the European Parliament adopted the written declaration “On the Fight Against Breast Cancer in the EU” (0017/2015), which calls for the implementation of measures across Europe to fight this disease, the leading cause of death in European women aged 35 to 59. A majority of MEPs signed the declaration, which was co-authored by 10 Members of European Parliament and backed by EUROPA DONNA – The European Breast Cancer Coalition.

    Address

    Head Office
    Piazza Amendola, 3
    Milan 20149
    ITALY
  • People

    Total lobbyists declared

    5

    Employment timeLobbyists
    75%5

    Lobbyists (Full time equivalent)

    3.75

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    EUROPA DONNA has a part-time staff of five headed by its Executive Director/CEO Susan Knox, a two-time breast cancer survivor.

    Person in charge of EU relations

    Ms Karen Benn (Deputy CEO/Head of Public Affairs)

    Person with legal responsibility

    Ms Susan Knox (Executive Director)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    EUROPEAN PATIENT FORUM
    ECCO-EUROPEAN CANCER ORGANISATION
    EUROPEAN CANCER NETWORK

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2015 - Dec 2015

    Lobbying costs for closed financial year

    550,000€

    Other financial info

    Europa Donna publishes audited financial statements as well as annual reports on our website (http://www.europadonna.org) in accordance with the transparency guidelines established by the European Health Forum.

  • EU Structures

    Groups (European Commission)

    EUROPA DONNA is an alternate member of the Expert Group on Cancer Control.

    EUROPA DONNA is a stakeholder in the European Commission Initiative on Breast Cancer

    ACC

    None

    Groups (European Parliament)

    None

    Communication activities

    The ED Head Office carries out programmes in three main areas: education, information and advocacy. Our 47 European member countries are targeted with the following:

    EDUCATION Programme: To most effectively fight breast cancer, ED seeks to encourage open communication and knowledge-sharing. To this end, we develop educational projects and organise conferences. ADVOCACY TRAINING COURSE—this annual, intensive 2.5 day course on scientific aspects, EU Guidelines, Specialist Breast Units, mammography screening, communication skills training, capacity building, brings New Advocates together to learn best practice; EUROPEAN BREAST CANCER CONFERENCE (EBCC)—at this biennial conference (co-organized by ED, EORTC, & EUSOMA), 5,000 participants learn about the latest scientific advances on all breast cancer topics; ED PAN-EUROPEAN CONFERENCE this 2-day biennial conference responds exclusively to the needs of breast cancer advocates; ADVOCACY LEADER CONFERENCE—Leaders of ED’s National Fora meet for updates on advocacy topics and managing a national non-profit (held when needed).

    INFORMATION Programme: ED ensures that women have access to accurate, up-to-date information on breast cancer issues via its WEBSITES (www.europadonna.org and www.breasthealthday.org), SOCIAL MEDIA and PUBLICATIONS e.g. Newsletter and Breast Health Day News. We publish INFORMATION BOOKLETS on areas such as Understanding Breast Cancer Research and POLICY STATEMENTS on subjects such as genomics; we also issue conference proceedings. New ED member organisations are sent our MEMBERSHIP TOOLKIT. We SURVEY our members on breast cancer topics on an ad-hoc basis; results are reported in ED publications/at events.

    A major ED advocacy initiative has been the publication of the SHORT GUIDE TO THE EU GUIDELINES. This booklet is crucial to our advocacy efforts at a national level, therefore we have instigated a major translation programme (17 languages so far).

    ADVOCACY Programme: ED represents the interests of European women to EU institutions, bringing breast cancer issues and women’s/patients’ concerns to the attention of MEPs and European Commission both directly and via expert meetings, conferences, Infodays etc. ED provides on-going input into new health strategy initiatives to ensure that breast cancer issues will be addressed and also positions itself to respond to drafts of legislation. ED’s Board and Executive Director attend many events each year as expert patient advocates.

    Other activities

    Breast Cancer, cancer control plans, implementation of the European Union Guidelines for quality assurance in breast cancer screening and diagnosis at the national level. In particular, establishing an EU process for accreditation of Specialist Breast Units that will be applied Europe wide.

  • Meetings

    Meetings

    1 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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