Overview
Lobbying Costs
450,000€
Financial year: Jan 2017 - Dec 2017
Lobbyists (Full time equivalent)
2 Fte (2)
Lobbyists with EP accreditation
1
High-level Commission meetings
9
Lobbying Costs over the years
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Info
European CanCer Organisation (ECCO)
EU Transparency Register
51022176260-12 First registered on 20 Jul 2011
Goals / Remit
ECCO is an International not-for-profit association under Belgian Law (aisbl)which aims at improving outcomes for all cancer patients in Europe through multidisciplinarity. The goals and objectives of the Association are to:
•Uphold the right of all European cancer patients to the best possible treatment and care;
•Promote interaction among all organisations involved in cancer research, education, treatment and care at the European level, and
•Provide financial and other support to organisations involved in cancer research, education, treatment and care at the European level.
The Association’s activities include, but are not limited to the following:
•Creating awareness of patients’ needs and wishes;
•Encouraging progressive thinking in cancer policy, training and education; and
•Promoting European cancer research and innovation in multidisciplinarity treatment and care through the organisation of international multidisciplinary meetings.Main EU files targeted
EU policy fields of primary interest to ECCO include Health as well as Research, Science and Innovation. Here, ECCO focuses on initiatives addressing cancer specifically, but also on cross-cutting areas such as Innovative therapies, Quality assurance, Patient safety, Patient mobility, Digital technologies, Health literacy, Systems Performance assessment, Chronic Diseases, Funding modalities, and other relevant areas.
Further broad EU policy fields of interest to ECCO include Employment, Social Affairs and Inclusion, Education (i.e. Professional training), Enterprise and Industry, Justice (i.e. Data Protection), Environment, Budget, and the European Semester process.
Specific files and related implementation that ECCO has been following include: Action Plan for the EU Workforce, Animal Protection Directive, Clinical Trials Regulation, Cross-Border Healthcare Directive and the European Reference Network, Data Protection Regulation, European Commission Initiative on Breast Cancer, European Partnership for Action Against Cancer, Health for Growth Programme, Horizon 2020, (In-Vitro Diagnostic) Medical Devices Regulation, Joint Action on Cancer Control, etc.Address
Head Office
Rue d'Egmont 13
Brussels 1000
BELGIUM -
People
Total lobbyists declared
2
Employment time Lobbyists 100% 2 Lobbyists (Full time equivalent)
2
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
1 accreditations were / are live (in bold) for the selected state of 30 Sep 2019
Name Start date End Date Gloria VENEGONI 29 Apr 2023 26 Apr 2024 Nela Osmanovic 16 Feb 2024 14 Feb 2025 Giuseppe FILITI 27 May 2023 24 May 2024 Yasen NAYDENOV 27 May 2023 24 May 2024 Jack LATTEUR 27 May 2023 24 May 2024 Csaba László Degi 20 Mar 2024 02 Oct 2024 Marion L'HOTE 31 Aug 2023 31 Aug 2024 Marina Ximeri 16 Feb 2024 14 Feb 2025 Silvia ROMEO 19 Jan 2024 17 Jan 2025 Giacomo LAZZARO 29 Apr 2023 26 Apr 2024 Riccardo MOSCHETTI 29 Apr 2023 26 Apr 2024 Norbert COUESPEL 03 May 2023 02 May 2024 Eric BIENEFELD 02 Jun 2023 01 Jun 2024 Mike MORRISSEY 29 Apr 2023 26 Apr 2024 Richard Price 29 Apr 2023 26 Apr 2024 Mr Csaba László Degi 20 Mar 2024 15 Apr 2024 Ms Nela OSMANOVIC 16 Feb 2024 15 Apr 2024 Ms Marina Ximeri 16 Feb 2024 15 Apr 2024 Ms Silvia ROMEO 19 Jan 2024 15 Apr 2024 Mr Kristiyan Dimitrov 22 Sep 2023 19 Dec 2023 Ms Marion L'HOTE 31 Aug 2023 15 Apr 2024 Mr Eric BIENEFELD 02 Jun 2023 15 Apr 2024 Ms Marjola MEMAJ 31 May 2023 24 Oct 2023 Ms Miriam ROMERO PICÓ 31 May 2023 24 Oct 2023 Mr Giuseppe FILITI 27 May 2023 15 Apr 2024 Ms Ana MULA APARICIO 27 May 2023 25 Oct 2023 Mr Yasen NAYDENOV 27 May 2023 15 Apr 2024 Mr Jack LATTEUR 27 May 2023 15 Apr 2024 Mr Gloria VENEGONI 29 Apr 2023 15 Apr 2024 Mr Norbert COUESPEL 03 May 2023 15 Apr 2024 Mr Enea VENEGONI 29 Apr 2023 04 May 2023 Mr Giacomo LAZZARO 29 Apr 2023 15 Apr 2024 Mr Riccardo MOSCHETTI 29 Apr 2023 15 Apr 2024 Mr Mike MORRISSEY 29 Apr 2023 15 Apr 2024 Mr Richard Price 29 Apr 2023 15 Apr 2024 Ms Judith KINZEL 18 Mar 2023 31 Aug 2023 Ms Silvia ROMEO 28 Oct 2022 28 Oct 2023 Ms Ivana LORENZATTI 27 Oct 2022 13 Mar 2023 Mr Norbert COUESPEL 04 May 2022 03 May 2023 Mr Mike MORRISSEY 04 May 2022 29 Apr 2023 Mr Richard Price 04 May 2022 29 Apr 2023 Mr Giacomo LAZZARO 29 Apr 2022 29 Apr 2023 Mr Riccardo MOSCHETTI 29 Apr 2022 29 Apr 2023 Mr Norbert COUESPEL 08 Feb 2020 01 Aug 2020 Mr Matti AAPRO 28 Nov 2019 28 Nov 2020 Mr Eric BIENEFELD 15 Nov 2019 01 Dec 2020 Mr Mike MORRISSEY 10 Oct 2019 01 Nov 2020 Mr Richard Price 04 Oct 2019 03 Oct 2020 Ms Agnese KONUSEVSKA 03 Oct 2019 03 Oct 2020 Ms Nela OSMANOVIC 03 Oct 2019 03 Oct 2020 Ms Pascale Blaes 19 Jun 2019 02 Oct 2019 Birgit BEGER 12 Jul 2018 30 Jan 2019 Ms Pascale Blaes 19 Jun 2018 19 Jun 2019 Mr Richard Price 08 Jun 2018 01 Jun 2019 Ms Sapna SHETH 15 Feb 2018 30 Jan 2019 Birgit BEGER 27 Jun 2017 23 Jun 2018 Ms Françoise Van Hemelryck 25 Apr 2017 14 Feb 2018 Mr Richard Price 25 Apr 2017 25 Apr 2018 Birgit BEGER 20 Jun 2016 17 Jun 2017 Mr Pierre Roca 31 May 2016 26 Apr 2017 Complementary Information
None declared
Person in charge of EU relations
Mr Richard Price (EU Affairs Policy Manager)
Person with legal responsibility
Mr Mike Morrissey (CEO)
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Categories
Category
II - In-house lobbyists and trade/business/professional associations
Subcategory
Trade unions and professional associations
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Networking
Affiliation
•Alliance for Biomedical Research in Europe (Founding Member)
•European Chronic Disease Alliance (Founding Member)
•ecancermedicalscience Foundation (Founding Member)
•ECCA – the European Cervical Cancer Association (Member)
•EFQUEL – European Foundation for Quality in E-learning (Member)
•EPHA – the European Public Health Alliance (Full Member)
•FAIB - Federation of European and International Associations Established in Belgium (Regular Member)
•UICC – International Union Against Cancer (Full Member)
•AC Forum - the Associations Conference Forum
(Founding Member)Member organisations
None declared
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Financial Data
Closed financial year
Jan 2017 - Dec 2017
Lobbying costs for closed financial year
450,000€
Other financial info
None declared
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
None
Communication activities
ECCOs public affairs activities are categorised according to strategic areas below.
ALLIANCES
•European Chronic Disease Alliance: ECCO represents cancer in this coalition representing over 200,000 professionals and working to reverse the alarming rise in chronic diseases by providing leadership and policy recommendations based on contemporary evidence.
•Alliance for Biomedical Research in Europe: ECCO represents cancer in this group of professional biomedical societies representing over 150,000 professionals who aim to promote excellence in biomedical research and improve the health and wellbeing of all citizens in Europe. Among others, ECCO worked with BioMed Alliance on a Scientific Panel for Health in relation to Horizon 2020.
•European Public Health Alliance: ECCO represents cancer and regularly attends policy events of this umbrella organisation.
•ECCO Patient Advisory Committee: part of ECCO’s governance, enables continuous engagement with cancer patient advocates to ensure that the patient is at the heart of all initiatives;
ECCO has been actively contributing to its partners' actions, including events and joint statements as appropriate.
EVENTS
•Oncopolicy Forum: A regular fixture in the ECCO public affairs portfolio, the OPF is an innovative European meeting and unique platform to bridge the gap between science and policy and maximise mutual understanding and the potential for positive change with patient interests at the core. Currently in its 6th edition (2015), the OPF has consistently addressed the most topical issues on the intersection of cancer policy and practice and featured prominent experts and leading EU decision-makers such as the European Commissioner for Health and MEPs.
PUBLICATIONS
Most recently include:
•ECC2015 Oncopolicy Forum Report: consolidated conclusions from the Oncopolicy Forum 2015
•Shaping Science Policy in Europe (May 2014): third-party article with overview of ECCO’s policy work
•Policy Statement on Multidisciplinary Cancer Care (March 2014): contributed to by ECCO and its member societies.
These and earlier papers can be accessed at: http://www.ecco-org.eu/Public-affairs/Positions-and-publications.
EU PROJECTS
•CanCon Joint Action: ECCO is Associated Partner and part of Work Package 4 – Guide Coordination, working to develop a strategic tool on integrated cancer care for governments and policymakers across Europe.
•EPAAC Joint Action: ECCO was Associate Partner in the European Partnership for Action Against Cancer and co-Leader of Work Package 8 on Research.
•EuroCan Platform: ECCO is Associated Partner in this network of excellence working on dissemination and education activities to build resources and know-how on cancer research and effectively improve cancer care ‘from bench to bedside’.
Throughout, ECCO has been ensuring representation at numerous high-level political meetings organised by the EU institutions and other bodies.
ECCO is also engaging in ongoing policy analysis with the ECCO Board and Policy Committee and responding to European consultations as appropriate.Other activities
None declared
- Meetings
Meetings
9 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 29 Jun 2023 Location Brussels Subject EU beating cancer Cabinet Cabinet of Vice-President Margaritis Schinas Portfolio Promoting the European Way of Life Attending - Maria Luisa Llano Cardenal (Cabinet member)
- Margaritis Schinas (Vice-President)
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Date 10 Oct 2022 Location Bruxelles Subject Working group on European Health Data Space Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
Other Lobbyists -
Date 21 Sep 2022 Location Brussels Subject Europe’s Beating Cancer Plan and EU Policy on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 09 Nov 2021 Location Brussels Subject Europe’s Beating Cancer Plan DG Health and Food Safety Attending - Sandra Gallina (Director-General)
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Date 07 Apr 2021 Location Brussels - virtual meeting Subject Exchange of views on Europe’s Beating Cancer Plan and its implementation with the European Cancer Organisation and its Member Societies and Patient Advisory Committee Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 23 Sep 2020 Location Brussels Subject The Commissioner delivers a speech at the launch of the European Code of Cancer Practice virtual event Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 27 May 2020 Location Brussels Subject VC meeting with 28 ECCO member societies and 17 patient advocacy groups to discuss Europe’s Beating Cancer Plan and the impact of COVID on cancer care and oncology patients Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 08 Jan 2020 Location Brussels Subject Discussion on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 23 Mar 2018 Location Brussels Subject Next European Cancer Summit Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Annika Nowak (Cabinet member)
- Meetings