Overview
Lobbying Costs
750,000€
Financial year: Jan 2019 - Dec 2019
Lobbyists (Full time equivalent)
7.5 Fte (8)
Lobbyists with EP accreditation
7
High-level Commission meetings
8
Lobbying Costs over the years
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Info
European Cancer Organisation
EU Transparency Register
51022176260-12 First registered on 20 Jul 2011
Goals / Remit
Our Mission
To reduce the burden of cancer, improve outcomes and the quality of care for cancer patients, through multidisciplinarity and multiprofessionalism.
As the not-for-profit federation of member organisations working in cancer at a European level, we convene oncology professionals and patients to agree policy, advocate for positive change and be the united voice of the European cancer community.
Our Vision
To be a vibrant, pro-active, focused, relevant and influential federation, working together for a cancer-free future, ensuring that every patient has high quality care and treatment, with access to the full range of professionals needed.
To create and develop ever-strengthening relationships between European institutions and the European cancer care community, and with our Member Societies and networks, facilitate collaboration and consensus on focused topics towards tangible and impactful policy improvement.
Our Values
Our essential and enduring values are:
• Patient Centricity
• Putting cancer patients at the centre of our concerns and activities and strive to do the best for them
• Commitment to Science – Reflecting the very latest scientific knowledge and be completely independent of any vested interests
• Cohesiveness – We believe in the power of combining the efforts of its members and other stakeholders who have a common mission
• Inclusiveness – We seek to include all non-profit organisations that share our mission, vision and values
• Equality and Fairness – All our members have a voice in the organisation and we strive to transcend the interests of any one member
• Openness and Transparency – We are committed to be transparent in and accountable for all that we doMain EU files targeted
The European Cancer Organisation’s activities on cancer policy cause it to take interest in a wide range of EU initiatives, policies and legislative files relevant to cancer including:
- Europe’s Beating Cancer Plan
- EU Cancer Mission
- Health Technology Assessment cooperation
- Treatment Optimisation
- Medicines shortages
- Digital health, including artificial intelligence
- Professional Qualification Recognition legislation
- Social rights, including tackling discrimination against cancer patients and survivors within and outside the workplace
- Personalised medicine and precision oncology
- Real world data use and outcome measurement
- Value based healthcare
- The European Commission Initiative on Breast Cancer and other Joint Research Centre led activities relevant to cancer
- Achieving earlier cancer diagnosis, including EU Cancer Screening policy
- Quality Assurance in Cancer care
- Cancer Prevention and the European Code Against Cancer
- Legislation, regulation and other actions related to prevention of cancer including modifiable risk factors such as tobacco, alcohol, diet, exercise, sunbed use, workplace carcinogens
- Clinical trial regulation
- Workforce planning, education, mobility and safety
- Addressing healthcare inequalities
- Air pollution
- EU-WHO interactions
- European Medicines Agency, including, but not limited to its role in central authorisation of medicines and pharmacovigilance
- EU initiatives to support vaccination
- Healthcare determinants and health literacy
- Use of EU structural funds to improve infrastructures for cancer care and treatment.
- EU funding mechanisms such as CHAFEA, Horizon, COST, Erasmus, Social Fund
- Healthcare across borders, including the role of the European Reference Networks (ERNs) and improving access to clinical trials across borders.
- Patient Safety
- Antimicrobial resistance
- State of Health in the EU
- Data Protection
- Multiannual Funding Framework
- Court of Justice decisions relevant to healthcare delivery
- Health Workforce Planning
- Joint Actions such as IPAAC and JARC
- Better integration of primary care into cancer care
- Endocrine disruptors
- Hazardous drugs
- Survivorship
- Quality of Life and Wellbeing
- Disease control and prevention including the activities of the ECDCAddress
Head Office
Rue d'Egmont 13
Brussels 1000
BELGIUM -
People
Total lobbyists declared
8
Employment time Lobbyists 100% 7 50% 1 Lobbyists (Full time equivalent)
7.5
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
7 accreditations were / are live (in bold) for the selected state of 30 Apr 2020
Name Start date End Date Mr Csaba László Degi 20 Mar 2024 02 Oct 2024 Ms Nela OSMANOVIC 16 Feb 2024 14 Feb 2025 Ms Marina Ximeri 16 Feb 2024 14 Feb 2025 Ms Silvia ROMEO 19 Jan 2024 17 Jan 2025 Mr Kristiyan Dimitrov 22 Sep 2023 19 Dec 2023 Ms Marion L'HOTE 31 Aug 2023 31 Aug 2024 Mr Eric BIENEFELD 02 Jun 2023 01 Jun 2024 Ms Marjola MEMAJ 31 May 2023 24 Oct 2023 Ms Miriam ROMERO PICÓ 31 May 2023 24 Oct 2023 Mr Giuseppe FILITI 27 May 2023 24 May 2024 Ms Ana MULA APARICIO 27 May 2023 25 Oct 2023 Mr Yasen NAYDENOV 27 May 2023 24 May 2024 Mr Jack LATTEUR 27 May 2023 24 May 2024 Mr Gloria VENEGONI 29 Apr 2023 26 Apr 2024 Mr Norbert COUESPEL 03 May 2023 02 May 2024 Mr Enea VENEGONI 29 Apr 2023 04 May 2023 Mr Giacomo LAZZARO 29 Apr 2023 26 Apr 2024 Mr Riccardo MOSCHETTI 29 Apr 2023 26 Apr 2024 Mr Mike MORRISSEY 29 Apr 2023 26 Apr 2024 Mr Richard Price 29 Apr 2023 26 Apr 2024 Ms Judith KINZEL 18 Mar 2023 31 Aug 2023 Ms Silvia ROMEO 28 Oct 2022 28 Oct 2023 Ms Ivana LORENZATTI 27 Oct 2022 13 Mar 2023 Mr Norbert COUESPEL 04 May 2022 03 May 2023 Mr Mike MORRISSEY 04 May 2022 29 Apr 2023 Mr Richard Price 04 May 2022 29 Apr 2023 Mr Giacomo LAZZARO 29 Apr 2022 29 Apr 2023 Mr Riccardo MOSCHETTI 29 Apr 2022 29 Apr 2023 Mr Norbert COUESPEL 08 Feb 2020 01 Aug 2020 Mr Matti AAPRO 28 Nov 2019 28 Nov 2020 Mr Eric BIENEFELD 15 Nov 2019 01 Dec 2020 Mr Mike MORRISSEY 10 Oct 2019 01 Nov 2020 Mr Richard Price 04 Oct 2019 03 Oct 2020 Ms Agnese KONUSEVSKA 03 Oct 2019 03 Oct 2020 Ms Nela OSMANOVIC 03 Oct 2019 03 Oct 2020 Ms Pascale Blaes 19 Jun 2019 02 Oct 2019 Birgit BEGER 12 Jul 2018 30 Jan 2019 Ms Pascale Blaes 19 Jun 2018 19 Jun 2019 Mr Richard Price 08 Jun 2018 01 Jun 2019 Ms Sapna SHETH 15 Feb 2018 30 Jan 2019 Birgit BEGER 27 Jun 2017 23 Jun 2018 Ms Françoise Van Hemelryck 25 Apr 2017 14 Feb 2018 Mr Richard Price 25 Apr 2017 25 Apr 2018 Birgit BEGER 20 Jun 2016 17 Jun 2017 Mr Pierre Roca 31 May 2016 26 Apr 2017 Complementary Information
Apart from staff, our volunteers of medical professionals regularly advise and engage with us on EU-related matters.
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
• Biomedical Alliance in Europe
• European Chronic Disease Alliance
• EPHA – the European Public Health Alliance
• FAIB - Federation of European and International Associations Established in Belgium
• UICC - Union for International Cancer ControlMember organisations
• Cardiovascular and Interventional Radiological Society of Europe (CIRSE)
• European Association of Nuclear Medicine (EANM)
• European Association for Palliative Care (EAPC)
• European Association of Urology (EAU)
• Association of European Cancer Leagues (ECL)
• European Hereditary Tumour Group (EHTG)
• European Oncology Nursing Society (EONS)
• European Organisation for Research and Treatment of Cancer (EORTC)
• European Respiratory Society (ERS)
• European Society of Coloproctology (ESCP)
• European Society of Gynaecological Oncology (ESGO)
• European Society for Hybrid, Molecular and Translational Imaging (ESHI-MT)
• European School of Oncology (ESO)
• European Society of Oncologic Imaging (ESOI)
• European Society of Oncology Pharmacy (ESOP)
• European Society of Pathology (ESP)
• European Society of Radiology (ESR)
• European Society of Surgical Oncology (ESSO)
• European SocieTy for Radiotherapy and Oncology (ESTRO)
• European Society of Skin Cancer Prevention (EUROSKIN)
• European Society of Breast Imaging (EUSOBI)
• European Society of Breast Cancer Specialists (EUSOMA)
• Flims Alumni Club (FAC)
• International Psycho-Oncology Society (IPOS)
• Multinational Association of Supportive Care of Cancer (MASCC)
• Organisation of European Cancer Institutes (OECI)
• International Society of Geriatric Oncology (SIOG)
• European Society for Paediatric Oncology (SIOP Europe) -
Financial Data
Closed financial year
Jan 2019 - Dec 2019
Lobbying costs for closed financial year
750,000€
Other financial info
None declared
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
None
Communication activities
Principal policy activities of the European Cancer Organisation include:
The Essential Requirements for Quality Cancer Care (ERQCCs)
From 2017, we have been publishing a series of consensus papers articulating healthcare professional and patient visions of what high quality care should be composed of. They include checklists and explanations of organisation and actions that are necessary to give high-quality care to cancer patients. They are written by European experts representing all disciplines involved in cancer care. Typically covering such issues as membership of the core and extended multidisciplinary teams, the agreed roles of each profession, patient information needs and much else, ERQCCs have been developed for: colorectal cancer, sarcoma, melanoma, oesophageal-gastric cancer, prostate cancer and primary care. More information here: https://www.ecco-org.eu/ERQCC
The European Cancer Summit
The annual European Cancer Summit convenes between 400 and 500 leading representatives from across cancer policy communities (healthcare professions, patient organisations, governmental and regulatory audiences, commercial providers to the sectors) to debate and discuss pressing opportunities and threats for improving cancer care and outcomes. The meeting aims to signal consensus where possible via meeting resolutions, and elsewhere, allow controversies and difference of views to be aired and debated. Examples of passed resolutions at the European Cancer Summit include those relating to evaluation of quality cancer care, integration of primary and secondary care, tackling discrimination against cancer survivors and calling for policies to bring about the elimination of HPV caused cancers as a public health problem in Europe. More information here www.europeancancer.org.
8 Focused Topic Networks
As part of its 2020-23 Strategy, we are convening 8 Focused Topic Networks on: Health Systems and Treatment Optimisation, Quality of Cancer Care, Digital Health, Cancer Prevention, Survivorship and Quality of Life, Inequalities, Workforce and HPV cancer elimination. More information about these networks will be available on the new European Cancer Organisation website launching in May 2020.
Patient Advisory Committee (PAC)
Our Patient Advisory Committee is comprised of representatives from 17 European and international level patient organisations, plays a central role in ensuring activities and policies of the organisation are strongly counselled from the patient perspective. With representation within our Board of Directors, many policy and activity proposals emanating from the PAC are taken forward with our 28 Member Societies. Examples in this respect have included the Essential Requirements for Quality Cancer Care: Primary Care, and the forthcoming European Code of Cancer Practice. More information on the PAC here: www.europeancancer.eu
The European Code of Cancer Practice
In 2020 we will publish a new ‘European Code of Cancer Practice’ outlining 10 key rights all cancer patients should expect to receive following diagnosis. Co-produced by patients and healthcare professionals this charter acts in support of the vision of our Patients’ Bill of Rights and ‘Essential Requirements for Quality Cancer Care’ series.
We also conduct collaborative policy activities through alliance initiatives such as: the European Public Health Alliance, the Biomedical Alliance, the European Chronic Disease Alliance, and the Union for International Cancer Control.
Presently (April 2020) active within 2 EU funded collaborations:
• EURAMED rocc-n-roll: project aims to propose an integrated and coordinated European approach to research and innovation in medical applications of ionising radiation and related radiation protection
• iPAAC: Participating in the Innovative Partnership for Action Against Cancer (iPAAC): leading work on a document outlining the Essential Requirements for Quality Cancer Care for Pancreatic CancerOther activities
None declared
- Meetings
Meetings
8 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 29 Jun 2023 Location Brussels Subject EU beating cancer Cabinet Cabinet of Vice-President Margaritis Schinas Portfolio Promoting the European Way of Life Attending - Maria Luisa Llano Cardenal (Cabinet member)
- Margaritis Schinas (Vice-President)
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Date 10 Oct 2022 Location Bruxelles Subject Working group on European Health Data Space Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
Other Lobbyists -
Date 09 Nov 2021 Location Brussels Subject Europe’s Beating Cancer Plan DG Health and Food Safety Attending - Sandra Gallina (Director-General)
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Date 07 Apr 2021 Location Brussels - virtual meeting Subject Exchange of views on Europe’s Beating Cancer Plan and its implementation with the European Cancer Organisation and its Member Societies and Patient Advisory Committee Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 23 Sep 2020 Location Brussels Subject The Commissioner delivers a speech at the launch of the European Code of Cancer Practice virtual event Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 27 May 2020 Location Brussels Subject VC meeting with 28 ECCO member societies and 17 patient advocacy groups to discuss Europe’s Beating Cancer Plan and the impact of COVID on cancer care and oncology patients Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 08 Jan 2020 Location Brussels Subject Discussion on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 23 Mar 2018 Location Brussels Subject Next European Cancer Summit Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Annika Nowak (Cabinet member)
- Meetings