European Cancer Patient Coalition

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Registration as it was on 10 Dec 2019
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The following entries are flagged as duplicates of this organisation: 782811248337-11

Overview

Lobbying Costs

561,574€

Financial year: Jan 2018 - Dec 2018

Lobbyists (Full time equivalent)

6.25 Fte (7)

Lobbyists with EP accreditation

4

High-level Commission meetings

6

Lobbying Costs over the years

  • Info

    European Cancer Patient Coalition   (ECPC)

    EU Transparency Register

    57929627082-79 First registered on 07 Nov 2011

    Goals / Remit

    Anticipating and participating in the legislative and policy changes taking place at EU level (EU Parliament and European Commission);
    Raising awareness about initiatives affecting cancer patients;
    Providing decision makers with a first-hand patient experience.

    Main EU files targeted

    * Health Technology Assessment
    * Access to Medicines
    * Adaptive Pathways

    Address

    Head Office
    Rue Montoyer 40
    Brussels 1000
    BELGIUM
    EU Office
    rue Montoyer,40
    Brussels B-1000
    BELGIUM
  • People

    Total lobbyists declared

    7

    Employment timeLobbyists
    100%6
    25%1

    Lobbyists (Full time equivalent)

    6.25

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    4 accreditations were / are live (in bold) for the selected state of 10 Dec 2019

    Name Start date End Date
    Ms Adela Maghear 14 Jul 2022 06 Dec 2022
    Mr Alexander RODRIGUEZ TIMARAN 14 Jul 2022 06 Dec 2022
    Ms Eleonora VARNTOUMIAN 03 Jun 2022 03 Dec 2022
    Antonella CARDONE 06 Feb 2020 06 Feb 2021
    Ms Charis Girvalaki 05 Feb 2020 05 Feb 2021
    Mr Thomas BARLOW 09 Nov 2019 07 Nov 2020
    Mr Matias OLSEN 29 Aug 2019 29 May 2020
    Mr Aleksandras Filicevas 15 Dec 2018 14 Dec 2019
    Antonella CARDONE 15 Dec 2018 14 Dec 2019
    Ms Lydia Elizabeth Makaroff 13 Nov 2018 13 Nov 2019
    Mr Alberto OLIAS IBOR 13 Nov 2018 14 Dec 2018
    Ms Kallirroi PAVLAKOU 13 Nov 2018 11 May 2019
    Ms Anna Teresa Rek 20 Sep 2018 23 Jan 2019
    Mr Max SCHRAVENDEEL 20 Sep 2018 20 Sep 2019
    Mr Federico BISCOTTI 24 Apr 2018 01 Nov 2018
    Eleonora VARNTOUMIAN 24 Apr 2018 26 Sep 2018
    Ms Isabell Ellen Manneh 14 Apr 2018 13 Apr 2019
    Mr Yfantis THEODOROS 14 Apr 2018 01 Nov 2018
    Mr Aleksandras Filicevas 02 Dec 2017 02 Dec 2018
    Ms Elena ALBERTI 01 Dec 2017 14 Apr 2018
    Ms Lydia Elizabeth Makaroff 08 Nov 2017 08 Nov 2018
    Mr Francesco Florindi 27 Jun 2017 01 Dec 2017
    Ms Anna Teresa Rek 24 Mar 2017 22 Mar 2018
    Mr Alberto José DOMINGO BAYARRI 23 Mar 2017 01 Dec 2017
    Ms Isabell Ellen Manneh 03 Dec 2016 02 Dec 2017
    Ms Kalliopi Christoforidi 22 Oct 2016 21 Oct 2017
    Ms Lydia Elizabeth Makaroff 10 Oct 2016 07 Oct 2017
    Mr Francesco Florindi 20 May 2016 20 May 2017
    Ms Anna Teresa Rek 13 Jan 2016 13 Jan 2017
    Ms Mihaela Militaru 11 Nov 2015 11 Oct 2016
    Ms Kalliopi Christoforidi 10 Nov 2015 22 Oct 2016
    Mr Francesco Florindi 23 May 2015 20 May 2016
    Ms Elena Raluca Nicolae 15 Mar 2014 13 Feb 2015
    Ms Mihaela Militaru 15 Nov 2014 11 Nov 2015
    Ms Kalliopi Christoforidi 12 Nov 2014 10 Nov 2015
    Mr Francesco Florindi 20 Mar 2014 19 Mar 2015
    Mrs Elena Raluca Nicolae 15 Mar 2014 27 Jan 2015
    Ms Thi Anh Anh Tran 19 Nov 2013 01 Mar 2014
    Ms Kalliopi Christoforidi 16 Nov 2013 12 Nov 2014
    Ms Mihaela Militaru 16 Nov 2013 15 Nov 2014
    Mr Denis Horgan 08 Nov 2012 12 Nov 2012
    Mr Erik Briers 06 Oct 2012 17 Jul 2013
    Mr Denis Horgan 06 Oct 2012 26 Oct 2012
    Nicola COLSON 30 Mar 2011 06 Oct 2012
    Ms Francesca Paganucci 15 May 2012 17 Jul 2012
    Ms Kolia Benie 15 May 2012 07 Jul 2012
    Ms Nicola Colson 15 May 2012 07 May 2013
    Mr Martin LOHR 17 Jan 2012 05 May 2012

    Complementary Information

    7 Board members plus ECPC Secretariat Staff (1 Director, 1 Senior EU Affairs Officer, 1 Health & Reserach Officer, 1 Partnerships and Communication Manager, 1 Office Assistant, 1 intern, 1 part time Head of Finance and HR).

    Person in charge of EU relations

    Ms Antonella Cardone (Director)

    Person with legal responsibility

    Mr Aikaterini Apostolidou (President)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    EPPOSI; EUnetHTA; European Health Policy Forum; EFPIA Think Tank; UICC

    Member organisations

    Patient free from Urotheral Neoplasms(1)
    PATIENTS OF CANCER ASSOCIATION SUCEAVA(1)
    PHOENIX Oncologic Patients’ Association(1)
    Together against cancer fundRussia(1)
    GIST Patient Italian Association(1)
    Give Life Association(1)
    “Italia – Glioblastoma Multiforme – Brain Cancer”(1),
    Association of Finnish cancer patients(1),
    Quality Life with Cancer(1),
    Associazione Italiana GIST Onlus(1),
    NationalAssociationOfCancerTreatedPatients"NALOR"(1),
    CarciNorNorway(1)
    Addario Lung Cancer Foundation(1),
    League Against Cancer Bitola(1),
    Lung Cancer EuropeCH(1),
    Pancreatic Cancer ActionUK(1),
    Association Cancer House(1),
    Austrian Myeloma Patient Association(1),
    Myeloma and Lymphoma Aido Austria(1),
    Selbsthilfe Prostatakrebs(1),
    Contactgroup Myeloma Patients(1),
    European Myeloma Platform(1),
    Ontmoeting & Ontspanning Kanker(1),
    Oncology Center Antwerp(1),
    Patient Group Naboram(1),
    Study Group Brain Tumours Belgium(1),
    Us Too(1),
    National Association of Patients with Oncological(1),
    Bulgarian Women's Cancer Association(1),
    National Association for people suffering from CML(1),
    National Organisation for Cervical Cancer Prophylaxis(1),
    Cyprus Anti-Cancer Society(1),
    Cyprus Association for Cancer Patients and Friends(1),
    Patients' Rights Movement of Cyprus(1),
    Arcus-Onko Centrum(1),
    Diagnoza CML(1),
    Europa Uomo Brno(1),
    League Against Cancer Prague(1),
    Danish Breast Cancer Organisation(1),
    Europa Uomo Denmark(1),
    Patient Group for lymph and leukemia cancer patients(1),
    Estonian Cancer Society(1),
    Union of Estonian Leukaemia Patients(1),
    Finnish Prostate Cancer Association(1),
    Association nationale de malades du cancer de la prostate(1),
    French GIST Patient Association(1),
    Bundesverband Prostatakrebs Selbsthilfe(1),
    German Fatigue Society(1),
    Lymphom-Hilfe(1),
    Head and Neck Cancer Foundation(1),
    Leumaemie-Online(1),
    Mamazone(1),
    Sarcoma Patients EuroNet(1),
    Patients Tumorbank of Hope(1),
    The House of Life(1),
    Association of Cancer Patient Volunteers(1),
    Cancer Patient Society of Nigrita(1),
    Cancer Patients Society of Macedonia-Thrace(1),
    Non-Profit Organisation Friends of Cancer(1),
    Pan-Hellenic Association of Laryngectomees(1),
    Society of Cancer Patients in Katerini(1),
    Society of Cancer Patients in Veria(1),
    Society of Volunteers against Cancer(1),
    Cancer Patient Organistion "SKEP"(1),
    Childrens Cancer Foundation(1),
    CML and GIST Patient Advocacy(1)Hungarian League Against Cancer(1),
    Europa Uomo Ireland(1),
    Lymphoma Support Ireland(1),
    Men Against Cancer(1),
    Associazione per il sostegno oncologico(1),
    Associazione Pina Simone per la tutela dell' ammalato di cancro(1),
    Associazione Insieme(1),
    Associazione Aiutiamoci a vivere onlus(1),
    Associazione Allegra(1),
    Associoazione DuLCaSG - ALCASE Italia(1),
    Associazione di Voluntariato per Malati Oncologici(1),
    Associazione Don Franco Baroni(1),
    Associazione Donne Operate al Seno(1),
    Associazione Guida Onlus(1),
    Associazione in Famiglia(1),
    Associazione IO Domani(1),
    Associazione Italiana Contro le Leucemie(1),
    Associazione Italiana Laringectomizzati(1),
    Associazione Italiana Malati di Cancro, parenti ed amici(1),
    Associazione Italiana Oncologia Apparato Digerente(1),
    Associazione Italiana Stomizzati-Finco(1),
    Associazione Linfa Contro il Cancro(1),
    Associazione Lotta Contro i Tumori Renzo e Pia Fiorot(1),
    Associazione Malati Oncologici(1),
    Associazione Mano Tesa Ogliastra(1),
    Associazione Nazionale Assistenza Psicologica Ammalati di Cancro(1),
    Associazione Nazionale Donne Operate al Seno(1),
    Associazione Nazionale Donne operate al Seno-Rovigo(1),
    Associazione Nazionale Guarita O Lungoviventi Oncologici(1),
    Associazione Nazionale Volontari Lotta contro i Tumori(1),
    Associazione Oncologica Pisana Trivella(1),
    Associazione per l'Assistenza Morale e Sociale Negli Istituti(1),
    Associazione per la Lotta ai Tumori nell 'Eta' Giovanile(1),
    Associazione Qualita Della Vita In Oncologia(1),
    Associazione Scientifica per la Terapia e la Ricerca in oncologi(1),
    Associazione Stare Bene Insieme(1),
    Associazione Umbra per la lotta contro il cancro(1),
    Associazione VIOLA(1),
    Associazione Vela Onlus(1),
    Contro Ascolto Operate al Seno(1),
    Comitato Andrea Tudisco Onlus(1),
    Coordinamento La Mela Blu(1),
    Federazione Italiana Incontinenti(1),
    Fondo Edo Tempia Onlus(1),
    Group AIL Chronic Myeloid Leukemia Patients(1),
    Gruppo assistenza Neoplastici(1),
    Insieme per la Salute(1),
    Italian Federation of Volunteer-based Cancer organisations(1),
    Le Donne Scelgono(1),
    Moby Dick - Associazione per la Unita di Cura continuativa(1)Noi e il Cancro - Volonta di vivere(1),
    Per te donna onlus(1),
    Progetto Vita 'Perche' Di Cancro si Puo Vivere(1),
    Studio e Assistenza Neoplasie del Sangue(1),
    Women Against Lung Cancer Europe(1),
    La Lampada di Aladino(1),
    Associazione Malati Oncologici Colon Retto(1),
    Association of Support for Leukemia Patients(1),
    Latvian Support Society for Oncology Patients(1),
    ALMA(1),
    Lithuanian Association of Prostate Cancer Patients(1),
    Pink Ribbon Society(1),
    Rare Cancer Patients Association(1),
    Society of Oncohematological Patients 'Kraujas'(1),
    A Heart for Cancer Sick Children(1),
    Fondation Kriibskrank Kanner(1),
    Breast Care Support Group(1),
    Asbestslachtoffers Vereniging Nederland(1),
    Belangengroep(1),
    Breast Cancer Association The Netherlands(1),
    Belangenvereniging Von Hippel Lindau(1),
    Contact Group Stem Cell Transplantation(1),
    Contactgroep Myeloom and Waldenstrom Patienten(1),
    Patient Association(1),
    European Waldenstrom's Macroglobulinemia Network(1),
    Foundation Contact Group Leukemia NFK(1),
    Lymfklierkanker Vereniging Nederland(1),
    Lung Cancer Information Centre(1),
    Nederlandse Stichting Voor Gelaryngectomeerden(1),
    Nederlandse Stomavereniging 'Harry Bacon'(1),
    NFK(1),
    Polyposis contactgroep(1),
    Stichting Contactgroep Prostaatkanker(1),
    Stichting Diagnose Kanker(1),
    Stichting Jongeren en kanker(1),
    Stichting Kernzaak(1),
    Stichting Klankbord(1),
    Stichting Longkanker(1),
    Stichting Melanoom(1),
    Stichting OLIJF(1),
    Vereniging Cerebraal(1),
    Vereniging HNPCC(1),
    Vereniging Ouders, Kinderen en Kanker(1),
    Vereniging Waterloop(1),
    Support Immigrants and Cancer(1),
    Amazons Poznan(1),
    Amazons Warsaw(1),
    Association of Men with Prostate Diseases(1),
    Blood Cell Foundation for children with cancer diseases(1),
    Fundacja Polska Koalicja Organizacji Pacjentow Onkologicznych(1)National Association for CML Patients Aid(1),
    Polish Association for Ostomy Care(1),
    Polish Lymphoma Association Owle eyes(1),
    Sarcoma Patients Association(1),
    Stowarzyszenie Pomocy Chorym Na Gist(1),
    Polish Union of Oncology(1),
    Fundacja Carita(1),
    Pokonaj Raka (Beat the cancer)(1),
    APLL Associacao Portuguesa de Leucemias e Linfomas(1),
    Associacao Portuguesa de Doentes da Prostata(1),
    Viva Mulher Viva Association(1),
    Club of Bistrita Amazons Association(1),
    Asociata Oncologic Rom(1),
    Association of Cancer Patients from Romania(1),
    Association PAVEL(1),
    Association Partners in Progress(1),
    Myeloma Euronet Romania(1),
    Romanian Cancer Association - Common Destinies Group(1),
    Romanian Cancer Society(1),
    Romanian Leukaemia Association(1),
    The Little People Romania(1),
    Europa Uomo Slovakia(1),
    Cancer Patients Association of Slovenia(1),
    Slovenian Breast Cancer Coalition(1),
    FECMA(1),
    FEFOC(1),
    Grup Agata(1),
    Spanish Association Against Cancer(1),
    Spanish Association of Lymphoma Sufferers(1),
    Spanish Group of Cancer Patients(1),
    Gynsam(1),
    Prostatacancerfarbundet(1),
    Swedish Brain Tumor Association(1),
    Swedish Lung Cancer Support(1),
    Europa Uomo Switzerland(1),
    AMEND Association for Multiple Endocrine Neoplasia Disorders(1),
    BE Bosom Friends(1),
    Bowel Cancer Wales(1),
    Bradford Cancer Support(1),
    Brain Tumour UK(1),
    Brainstrust: The Meg Jones Brain Cancer Charity(1),
    Breakthrough Breast Cancer(1),
    Cancer Equality(1),
    Cancer Information and Support Services(1),
    Cancer Link Aberdeen and North(1),
    Cavendish Centre for Cancer Care(1),
    Childhood Eye Cancer Trust(1),
    Christian Lewis Trust - Cancer Care for Children(1),
    CML Support Group UK(1),
    Complementary Cancer Care Trust(1)Consumer Liaison Group of the National Cancer Research Institute(1),
    Doncaster Cancer Support Group(1),
    Durham and District Women's Cancer Support Group(1),
    East Lancs Integrated Health Care Centre(1),
    Gist support UK(1),
    GKT Cancercentre User Liaison Group(1),
    Gynae C(1),
    International Brain Tumour Alliance(1),
    Keith Cancer Link Support Group(1),
    Lets Face It(1),
    Leukaemia care Society(1),
    Lymphoma Association HQ(1),
    Lynn's Bowel Cancer Campaign(1),
    Macmillan Cancer Support(1),
    Manx Cancer Help Association(1),
    Melanoma Action and Support Scotland(1),
    Mouth Cancer Foundation(1),
    Mulberry Centre(1),
    Myelodysplastic Syndrome Foundation(1),
    Myeloma UK(1),
    National Association of Laryngectomee Clubs(1),
    National Conference of Cancer Self Help Groups(1),
    Ovacome(1),
    Patient Cancer Support Federation/Europa Uomo(1),
    Prostate Cancer Network(1),
    Prostate Cancer Support Association(1),
    Radiotherapy Action Group Exposure(1),
    Rarer Cancers Forum(1),
    Riding's Asbestos Support and Awareness Group(1),
    Roy Castle Lung Cancer Foundation(1),
    Samantha Dickson Research Trust(1),
    Sarcoma UK(1),
    Tak Tent Cancer Support Scotland(1),
    Teenage Cancer Trust(1),
    Ulster Cancer Foundation(1),
    Youth Cancer Trust(1),
    Patient Rights Protection Center(1),
    Breast Cancer Network Australia(1),
    Cancer Voices NSW Australia(1),
    Association for those affected by acromegaly and pituitary disease(1),
    Association of stoma patients ILCO(1),
    Humanitarian association of prjateljice 'Girlfriends'(1),
    LIFE/ZENICA(1),
    ABRALE(1),
    Bulgarian Association for Patients Defence(1),
    Willow Breast Cancer Support and Resource Defence Services(1),
    For a new day(1),
    Association Firefly(1),
    Croatian Disabled Societies ILCO Association(1),
    Everything for her(1)HULL Croatian Leukemia and Lymphoma Society(1),
    Invalid Society ILCO Karlovac(1),
    Invalid Soviety ILCO Stoma Klub Nova Gradiska(1),
    Friends for Life(1),
    Help those with Cancer(1),
    Faculty of Medicine(1),
    Independent Patient Group(1),
    ESCSG Basel(1),
    Laugh and Walk(1),
    Myelom-Selbsthilfe Sudbayern(1),
    Selbsthilfegruppe Krebs bei Frauen/Genitaltumoren(1),
    Selbsthilfegruppe Multiples Myelom(1),
    Selbsthilfegruppe Plasmozytom(1),
    Irish Cancer Society(1),
    Mouth Head and Neck Cancer(1),
    Israel Cancer Association(1),
    Israel CML Patients Support(1),
    ANTEA Associazione onlus(1),
    Associazione House Hospital Onlus(1),
    Associazione Maria Bianchi(1),
    Fondazione Teresa e Luigi Beaumont Bonelli per le Ricerca sul cancro(1),
    Italian Cancer League Bologna(1),
    PROST(1),
    Cancer Patient Advocacy Bureau(1),
    Myeloma Patients Organisation(1),
    Sparkle of Life(1),
    CancerVoices New Zealand(1),
    Stand up to Cancer Awareness Campaign Initiative(1),
    Esperantra(1),
    Foundation for Support of People with Urology Cancer(1),
    Stowarzyszenie Pomocy Chroym na Szpiczaka(1),
    The Fulfilled Dreams Fund(1),
    Hospice Casa Sperantei Foundation(1),
    Triedinstvo(1),
    Association of Myeloma Patients of Serbia(1),
    Lymphoma Patients Association(1),
    Association ILCO Serbia(1),
    ISKRA(1),
    Myeloma Euronet Slovakia(1),
    Slovak League Against Cancer(1),
    Slovenian Union for Health promotion and health education(1),
    Mieloma(1),
    Blodcancerforbundet(1),
    Forum Lung Cancer(1),
    Foundation for the Promotion of Bone Marrow Transplantation Switzerlan(1),
    Taichung Kai-Huai(1),
    Fanconi Anemia Association(1),
    Pioneering Association of Stem Cell Transplantations(1),
    Sakarya Leukemia and cancer patients health and education association(1),
    Trabzon Hope and Welfare Association(1)Turkey Oncology Patients Friendly Society(1), Youth Accumulation Association(1), Zaporuka National Charitable Foundation(1), Abacus Cancer Self Help and Support Group(1), African Caribbean Leukaemia Trust(1), Ardgowan Hospice(1), British Lung Foundation(1), British Thyroid Foundation(1), Cancer Partnership Research Group(1), CancerCare(1), Castleside Group(1), Cornwall Cancer Help Groups(1), Hospice of St Mary of Furness(1), MacMillan Butterfly Centre(1), Mustard Tree MacMillan Centre(1), Myeloma People Network(1), Myeloma UK - Yorkshire Support Group(1), Patients Association(1), Skinship(1), Solihull Cancer Support Group(1), Uk Children's Cancer Study Group Hearts of Oak(1), Vulva Awareness Campaign Organisation(1), Wirral Holistic Care Services(1), Kidney Cancer Association(1), Life Raft Group(1), Simosah-Nani International(1), The Max Foundation(1)

  • Financial Data

    Closed financial year

    Jan 2018 - Dec 2018

    Lobbying costs for closed financial year

    561,574€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    None

    Communication activities

    * White Paper on Access to Innovation in Oncology
    * European Cancer Patient Organisation General Meeting
    * Position on draft report on EU options for improving access to medicines

    Other activities

    European Medicines Agency (EMA), including Patient & Consumer Working Party (PCWP); EU Health Policy Forum; EUnetHTA Stakeholder Forum;Committee of Experts for Rare Diseases; European LeukaemiaNet; Conticanet; EUROCANPlatform - Translational research and personalised medicine; European Commission's Expert Group on Cancer Control; Cancer Control Joint Action-CANCON; FP7: RareCareNet - Information Network on Rare Cancer; FP7: eSmart - e-Symptom Management using Advanced Symptom Management System Remote Technology; Health Program: BenchCan - Benchmark Comprehensive Cancer Care.

  • Meetings

    Meetings

    6 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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