European Cancer Patient Coalition

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No longer registered as of 22 Nov 2022 - Registration as it was on 13 May 2022
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The following entries are flagged as duplicates of this organisation: 782811248337-11

Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2020 - Dec 2020

Lobbyists (Full time equivalent)

7.25 Fte (8)

Lobbyists with EP accreditation

0

High-level Commission meetings

6

Lobbying Costs over the years

  • Info

    European Cancer Patient Coalition   (ECPC)

    EU Transparency Register

    57929627082-79 First registered on 07 Nov 2011

    Goals / Remit

    Anticipating and participating in the legislative and policy changes taking place at EU level (EU Parliament and European Commission);
    Raising awareness about initiatives affecting cancer patients;
    Providing decision makers with a first-hand patient experience.

    Main EU files targeted

    Health Technology Assessment
    Access to Medicines
    Adaptive Pathways
    EU Beating Cancer Plan
    EU Health Data Space
    GDPR
    BECA report
    Directive on patients’ rights in cross-border healthcare
    EU4Health Programme
    Pharmaceuticals Strategy

    Address

    Head Office
    Avenue des Arts 6
    Brussels 1210
    BELGIUM
    EU Office
    Avenue des Arts 6
    Brussels 1210
    BELGIUM

    Website

    http://www.ecpc.org

  • People

    Total lobbyists declared

    8

    Employment timeLobbyists
    100%7
    25%1

    Lobbyists (Full time equivalent)

    7.25

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 20 Apr 2024

    Name Start date End Date
    Ms Adela Maghear 14 Jul 2022 06 Dec 2022
    Mr Alexander RODRIGUEZ TIMARAN 14 Jul 2022 06 Dec 2022
    Ms Eleonora VARNTOUMIAN 03 Jun 2022 03 Dec 2022
    Antonella CARDONE 06 Feb 2020 06 Feb 2021
    Ms Charis Girvalaki 05 Feb 2020 05 Feb 2021
    Mr Thomas BARLOW 09 Nov 2019 07 Nov 2020
    Mr Matias OLSEN 29 Aug 2019 29 May 2020
    Mr Aleksandras Filicevas 15 Dec 2018 14 Dec 2019
    Antonella CARDONE 15 Dec 2018 14 Dec 2019
    Ms Lydia Elizabeth Makaroff 13 Nov 2018 13 Nov 2019
    Mr Alberto OLIAS IBOR 13 Nov 2018 14 Dec 2018
    Ms Kallirroi PAVLAKOU 13 Nov 2018 11 May 2019
    Ms Anna Teresa Rek 20 Sep 2018 23 Jan 2019
    Mr Max SCHRAVENDEEL 20 Sep 2018 20 Sep 2019
    Mr Federico BISCOTTI 24 Apr 2018 01 Nov 2018
    Eleonora VARNTOUMIAN 24 Apr 2018 26 Sep 2018
    Ms Isabell Ellen Manneh 14 Apr 2018 13 Apr 2019
    Mr Yfantis THEODOROS 14 Apr 2018 01 Nov 2018
    Mr Aleksandras Filicevas 02 Dec 2017 02 Dec 2018
    Ms Elena ALBERTI 01 Dec 2017 14 Apr 2018
    Ms Lydia Elizabeth Makaroff 08 Nov 2017 08 Nov 2018
    Mr Francesco Florindi 27 Jun 2017 01 Dec 2017
    Ms Anna Teresa Rek 24 Mar 2017 22 Mar 2018
    Mr Alberto José DOMINGO BAYARRI 23 Mar 2017 01 Dec 2017
    Ms Isabell Ellen Manneh 03 Dec 2016 02 Dec 2017
    Ms Kalliopi Christoforidi 22 Oct 2016 21 Oct 2017
    Ms Lydia Elizabeth Makaroff 10 Oct 2016 07 Oct 2017
    Mr Francesco Florindi 20 May 2016 20 May 2017
    Ms Anna Teresa Rek 13 Jan 2016 13 Jan 2017
    Ms Mihaela Militaru 11 Nov 2015 11 Oct 2016
    Ms Kalliopi Christoforidi 10 Nov 2015 22 Oct 2016
    Mr Francesco Florindi 23 May 2015 20 May 2016
    Ms Elena Raluca Nicolae 15 Mar 2014 13 Feb 2015
    Ms Mihaela Militaru 15 Nov 2014 11 Nov 2015
    Ms Kalliopi Christoforidi 12 Nov 2014 10 Nov 2015
    Mr Francesco Florindi 20 Mar 2014 19 Mar 2015
    Mrs Elena Raluca Nicolae 15 Mar 2014 27 Jan 2015
    Ms Thi Anh Anh Tran 19 Nov 2013 01 Mar 2014
    Ms Kalliopi Christoforidi 16 Nov 2013 12 Nov 2014
    Ms Mihaela Militaru 16 Nov 2013 15 Nov 2014
    Mr Denis Horgan 08 Nov 2012 12 Nov 2012
    Mr Erik Briers 06 Oct 2012 17 Jul 2013
    Mr Denis Horgan 06 Oct 2012 26 Oct 2012
    Nicola COLSON 30 Mar 2011 06 Oct 2012
    Ms Francesca Paganucci 15 May 2012 17 Jul 2012
    Ms Kolia Benie 15 May 2012 07 Jul 2012
    Ms Nicola Colson 15 May 2012 07 May 2013
    Mr Martin LOHR 17 Jan 2012 05 May 2012

    Complementary Information

    7 Board members plus ECPC Secretariat Staff (1 Director, 2 Senior EU Affairs Manager, 1 Health & Research Manager, 1 Junior Financial Officer, 1 Project Coordinator, 1 Partnerships and Communication Officer, 1 Senior Partnership and Communication Manager, 1 Junior Project Coordinator, 2 Partnership and Communication Assistants, 1 Legal expert, 1 Administrative Manager, 1 Administrative Assistant).

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    EPPOSI; EUnetHTA; European Health Policy Forum; EFPIA Think Tank; UICC; ESMO; RCE; EU4Health CSA; TBCT; ERN-EURACAN; Healthy Europe.

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2020 - Dec 2020

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    1,747,624€

    Major funding types in closed year

    Other, EU funding, Grants

    Major contributions in closed year

    TypeNameAmount
    Grant H2020 320,000€

    Major contributions in current year

    TypeNameAmount
    Grant H2020 266,338€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Cancer

    Communication activities

    * White Paper on Access to Innovation in Oncology
    * European Cancer Patient Organisation General Meeting
    * Position on draft report on EU options for improving access to medicines

    Other activities

    European Medicines Agency (EMA), including Patient & Consumer Working Party (PCWP); EU Health Policy Forum; EUnetHTA Stakeholder Forum;Committee of Experts for Rare Diseases; European LeukaemiaNet; Conticanet; EUROCANPlatform - Translational research and personalised medicine; European Commission's Expert Group on Cancer Control; Cancer Control Joint Action-CANCON; FP7: RareCareNet - Information Network on Rare Cancer; FP7: eSmart - e-Symptom Management using Advanced Symptom Management System Remote Technology; Health Program: BenchCan - Benchmark Comprehensive Cancer Care.

  • Meetings

    Meetings

    6 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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