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Overview
Lobbying Costs
275,000€
Financial year: Jan 2012 - Dec 2012
Lobbyists (Full time equivalent)
None declared
Lobbyists with EP accreditation
0
High-level Commission meetings
6
Lobbying Costs over the years
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Info
European Cancer Patient Coalition (ECPC)
EU Transparency Register
57929627082-79 First registered on 07 Nov 2011
Goals / Remit
To represent patients with all types of cancer across Europe in relevant policy matters; to support cancer patient advocacy across the EU; to bring together member organisations (patient support and advocacy groups) for the exchange of experience and best practice; to promote and support awareness and prevention initiatives; to promote the rights of cancer patients and survivors in all matters affecting them.
Main EU files targeted
Address
Head Office
Churchilllaan
Utrecht 3527GV
NETHERLANDS -
People
Total lobbyists declared
None declared
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 25 Oct 2013
Name Start date End Date Ms Adela Maghear 14 Jul 2022 06 Dec 2022 Mr Alexander RODRIGUEZ TIMARAN 14 Jul 2022 06 Dec 2022 Ms Eleonora VARNTOUMIAN 03 Jun 2022 03 Dec 2022 Antonella CARDONE 06 Feb 2020 06 Feb 2021 Ms Charis Girvalaki 05 Feb 2020 05 Feb 2021 Mr Thomas BARLOW 09 Nov 2019 07 Nov 2020 Mr Matias OLSEN 29 Aug 2019 29 May 2020 Mr Aleksandras Filicevas 15 Dec 2018 14 Dec 2019 Antonella CARDONE 15 Dec 2018 14 Dec 2019 Ms Lydia Elizabeth Makaroff 13 Nov 2018 13 Nov 2019 Mr Alberto OLIAS IBOR 13 Nov 2018 14 Dec 2018 Ms Kallirroi PAVLAKOU 13 Nov 2018 11 May 2019 Ms Anna Teresa Rek 20 Sep 2018 23 Jan 2019 Mr Max SCHRAVENDEEL 20 Sep 2018 20 Sep 2019 Mr Federico BISCOTTI 24 Apr 2018 01 Nov 2018 Eleonora VARNTOUMIAN 24 Apr 2018 26 Sep 2018 Ms Isabell Ellen Manneh 14 Apr 2018 13 Apr 2019 Mr Yfantis THEODOROS 14 Apr 2018 01 Nov 2018 Mr Aleksandras Filicevas 02 Dec 2017 02 Dec 2018 Ms Elena ALBERTI 01 Dec 2017 14 Apr 2018 Ms Lydia Elizabeth Makaroff 08 Nov 2017 08 Nov 2018 Mr Francesco Florindi 27 Jun 2017 01 Dec 2017 Ms Anna Teresa Rek 24 Mar 2017 22 Mar 2018 Mr Alberto José DOMINGO BAYARRI 23 Mar 2017 01 Dec 2017 Ms Isabell Ellen Manneh 03 Dec 2016 02 Dec 2017 Ms Kalliopi Christoforidi 22 Oct 2016 21 Oct 2017 Ms Lydia Elizabeth Makaroff 10 Oct 2016 07 Oct 2017 Mr Francesco Florindi 20 May 2016 20 May 2017 Ms Anna Teresa Rek 13 Jan 2016 13 Jan 2017 Ms Mihaela Militaru 11 Nov 2015 11 Oct 2016 Ms Kalliopi Christoforidi 10 Nov 2015 22 Oct 2016 Mr Francesco Florindi 23 May 2015 20 May 2016 Ms Elena Raluca Nicolae 15 Mar 2014 13 Feb 2015 Ms Mihaela Militaru 15 Nov 2014 11 Nov 2015 Ms Kalliopi Christoforidi 12 Nov 2014 10 Nov 2015 Mr Francesco Florindi 20 Mar 2014 19 Mar 2015 Mrs Elena Raluca Nicolae 15 Mar 2014 27 Jan 2015 Ms Thi Anh Anh Tran 19 Nov 2013 01 Mar 2014 Ms Kalliopi Christoforidi 16 Nov 2013 12 Nov 2014 Ms Mihaela Militaru 16 Nov 2013 15 Nov 2014 Mr Denis Horgan 08 Nov 2012 12 Nov 2012 Mr Erik Briers 06 Oct 2012 17 Jul 2013 Mr Denis Horgan 06 Oct 2012 26 Oct 2012 Nicola COLSON 30 Mar 2011 06 Oct 2012 Ms Francesca Paganucci 15 May 2012 17 Jul 2012 Ms Kolia Benie 15 May 2012 07 Jul 2012 Ms Nicola Colson 15 May 2012 07 May 2013 Mr Martin LOHR 17 Jan 2012 05 May 2012 Complementary Information
None declared
Person in charge of EU relations
None declared
Person with legal responsibility
Ms Mihaela Militaru (Office Director)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
None declared
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Financial Data
Closed financial year
Jan 2012 - Dec 2012
Lobbying costs for closed financial year
275,000€
EU grant income for closed financial year
45,689 €
Other financial info
ECPC Transparency Statement
We very much regret the recent controversy surrounding patient group funding. The European Cancer Patient Coalition sincerely hopes that the valuable and serious work of patient groups continues to be recognized.
ECPC has been established to represent the views of cancer patients in the European healthcare debate and to provide a forum for all EUROPEAN CANCER PATIENTS to exchange information and share best practice.
ECPC’s mission is to serve its membership and support the millions of people living with cancer or caring for a family member, who otherwise would not have the opportunity to make their voice heard in Europe.
Ideally ECPC would wish to be in a position where we could do our work without financial support from industry. However, there are hardly any non-commercial sources prepared to fund patient groups at a European level. This presents European patient groups with the harsh reality: either to accept some commercial funding and balance this with as much as possible other sources or stop our work altogether.
As a non-profit organization, relying on many volunteers, we try hard to raise money for our professional work from a wide variety of sources and accept industry funding under the strictest, “arms length” conditions.
Our credibility, transparency and our democratic representation is our most treasured asset. This is why ECPC took a good year of careful planning to work out our organization, operation and funding structures. We have developed a transparent and robust policy for commercial funding.
We owe it to our membership and patients across Europe, who have placed their trust in us, to act in a fully democratic, independent and transparent manner, according to the highest standards of good governance. We derive our legitimacy from our membership, ECPC’s constitution and democratically elected board of whom more than half are cancer survivors.
We are most anxious to work on a constructive approach together with all stakeholders to ensure the credibility of patient groups is safeguarded.
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
None declared
Communication activities
None declared
Other activities
None declared
- Meetings
Meetings
6 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 25 May 2020 Location Brussels Subject VC meeting: EU's Cancer Plan, funding related to cancer and the challenges cancer patients face during COVID-19 Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 05 Feb 2020 Location Brussels Subject Discussion on Cancer and Europe's Beating Cancer Plan Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 20 Jan 2020 Location Brussels Subject Discussion on cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
Other Lobbyists -
Date 15 May 2018 Location Brussels Subject HTA Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Annika Nowak (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
Other Lobbyists - ASDM Consulting
- EUROPEAN ORGANISATION FOR RARE DISEASES
- European Public Health Alliance
- European Patients' Forum (EPF)
- Bureau Européen des Unions de Consommateurs
- European Federation of Allergy and Airways Diseases Patients' Associations
- Stichting Health Action International
- International Diabetes Federation European Region
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Date 02 Feb 2015 Location Brussels Subject EU ACTION ON CANCER, GUIDELINES, JOINT ACTIONS, PRICING OF CANCER DRUGS AND INEQUALITIES, CROSS -BORDER HEALTH CARE DIRECTIVE Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Paula Duarte Gaspar (Cabinet member)
- Meetings