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Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2021 - Dec 2021
Lobbyists (Full time equivalent)
9 Fte (9)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
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Info
European Cancer Patient Coalition (ECPC)
EU Transparency Register
782811248337-11 First registered on 08 Dec 2022
Goals / Remit
ECPC works for a Europe of equality, where all European cancer patients have timely and affordable access to the best treatment and care available. We work to ensure that the scope of the entire cancer care pathway effectively includes prevention, treatment, survivorship and palliative care.The main objectives of the years to come are to further support and advocate for cancer patient rights, to develop a strong engagement with the European Institutions members, to strengthen and make more frequent the connection with ECPC members, partners, and stakeholders during a period of many challenges in both the internal and external environment.
Main EU files targeted
ECPC participated in all stages of Europe's Beating Cancer Plan consultation and now actively contributes to the monitoring of the implementation process. ECPC also works on the Health Technology Assessment regulation and the In Vitro diagnostics regulation. The revision of the Pharmaceutical strategy is also among some of the most important priorities for ECPC. ECPC also participated in the consultations for cancer screening, Health Data space,EMA Data Standards Strategy consultation 2021, Directive of the Cross border care and the financial products for cancer survivors consultation
Address
Head Office
Avenue des Arts 6
Brussels 1210
BELGIUMEU Office
Avenue des Arts 6
Brussels 1210
BELGIUMWebsite
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People
Total lobbyists declared
9
Employment time Lobbyists 100% 9 Lobbyists (Full time equivalent)
9
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 09 Dec 2022
Name Start date End Date Michal KUBO 21 Apr 2023 19 Apr 2024 Laura SAUCEDO CUEVAS 21 Sep 2023 13 Sep 2024 Nicola DI FLORA 21 Apr 2023 19 Apr 2024 Ane DE LAS HERAS MARTIN 12 May 2023 10 May 2024 Lotan KRAUN 22 Sep 2023 20 Sep 2024 Ms Lorena VARGAS TORTOSA 22 Sep 2023 12 Jan 2024 Ms Laura SAUCEDO CUEVAS 21 Sep 2023 15 Apr 2024 Ms Ane DE LAS HERAS MARTIN 12 May 2023 15 Apr 2024 Mr Michal KUBO 21 Apr 2023 15 Apr 2024 Mr Nicola DI FLORA 21 Apr 2023 15 Apr 2024 Ms Malvika Vyas 13 Apr 2023 27 Apr 2023 Ms Aliki STATHOPOULOU 14 Feb 2023 15 Feb 2024 Ms Adela Maghear 18 Jan 2023 18 Jan 2024 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
European Society for Medical Oncology (ESMO), European Medicines Agency, European Association of Urology, European, Alliance for Personalised Medicine,BBMRI-ERIC, Cancer Drug Development Forum, European Society of Surgical Oncology, European Academy of Cancer Sciences, EBMT, Cancer Core Europe, European Cancer Concord, Pancreatic Cancer Europe
Member organisations
European Cancer Organization, Union for International Cancer Control, all.Can, EU Health Coalition, Organisation of European Cancer Institutes,European Organisation for Research and Treatment of Cancer, Toxic Neuropathy Consortium, The European Nutrition for Health alliance, NCD alliance,Worldwide innovative networking in personalised cancer medicine
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2021 - Dec 2021
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
1,128,980€
Major funding types in closed year
Other
Funding types "other" information
Major contributions in closed year
Type Name Amount Contribution Roche 175,216€ Contribution Bristol Myers Squibb 104,718€ Major contributions in current year
Type Name Amount Grant DiadIC 20,500€ Grant Palliative sedation 4,251€ Grant T2EVOLVE 27,657€ Grant TIGER 12,134€ Grant IMMUNE-IMAGE 5,910€ Grant ImmunoSABR 7,038€ Grant INSTAND 29,159€ Grant PREFER 12,885€ Grant INTERVENE 26,856€ Grant LEGACY 28,838€ Grant QUALITOP 16,450€ Grant EIT HEALTH (E-PRO) 7,500€ Grant iPAAC 15,000€ Grant LIFECHAMPS 13,062€ Grant OPTIMA 15,750€ Grant PIONEER 6,860€ Other financial info
None declared
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
Cancer
Communication activities
Each year we produce communication material (white papers, toolkits, booklets), conduct awareness campaigns in European level and organize live or online events aiming to inform the members of ECPC on the relevant EU policies on Cancer and support them at national level to increase their influence. ECPC also organizes an annual conference where all cancer patients around Europe participate and are informed on the latest policy developments around cancer.
Other activities
None declared
Meetings
Meetings
None declared