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Overview
Lobbying Costs
37,500€
Financial year: Jan 2019 - Dec 2019
Lobbyists (Full time equivalent)
3.75 Fte (15)
Lobbyists with EP accreditation
0
High-level Commission meetings
3
Lobbying Costs over the years
-
Info
European Chronic Disease Alliance (ECDA)
EU Transparency Register
462272223719-65 First registered on 04 Oct 2016
Goals / Remit
Mission: To reverse the alarming rise in chronic diseases by providing leadership and policy recommendations based on contemporary evidence.
Objectives:
- Provide policy recommendations based on contemporary evidence
- Raise awareness and advocate by engaging with policy-makers
- Promote the development and implementation of a EU Framework on Chronic Disease
- Develop and publish position/policy papers
Priorities:
- Primary and secondary prevention related to chronic diseases
- Common risk factors - tobacco use, poor nutrition, physical inactivity, alcohol consumption and environmental factorsMain EU files targeted
Chronic disease policies and initiatives (e.g JA-CHRODIS Plus), EU Cancer Plan
Nutrition, TFAs and salt in foods (food legislation)
Air pollution (NEC directive, EU Ambient Air Quality Directives), EU Green Deal
Tobacco legislation
AVMSD
Alcohol strategy
AMR
Horizon Europe Programme
European Social Fund Plus / EU4Health programme
COVID-19 response
Employment of people with chronic diseasesAddress
Head Office
rue du Luxembourg 22-24
Brussels 1000
BELGIUM -
People
Total lobbyists declared
15
Employment time Lobbyists 25% 15 Lobbyists (Full time equivalent)
3.75
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
The activities of the alliance are coordinated by the Secretariat which is staffed by a consultant working approx. 1/3 of a full time position per month. In addition, all the members of the alliance contribute to the preparation of papers, joint statements, representation at events, etc.
On average, there are 15 persons involved in the overall activities which are coordinated mostly virtually and at meetings (4 times / year).Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
no official membership.
ECDA participates in informal / ad hoc collaborations such as the EU4Health (https://eu4health.eu/about-us/) and collaborates regularly with organisations like the Global NCD Alliance (https://ncdalliance.org/).Member organisations
None declared
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Financial Data
Closed financial year
Jan 2019 - Dec 2019
Lobbying costs for closed financial year
37,500€
Other financial info
The total budget of the alliance is gathered from the membership fees of 3300 euro / year / member. In 2019, members contributed additional budget to the revamp of the ECDA website.
The entire budget is spent on the management of the Secretariat, including advocacy and communication activities. -
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Joint statements:
09/2016 AVMSD - improving food marketing to children
05/2016 Plain packaging saves lives - Member States should step up their efforts to reduce tobacco use to prevent smoking-related chronic diseases
10/2017: Joint Statement on the Employment of People with Chronic Diseases (via EU Health Policy Platform)
06/2018: 'Enough: Now is the time for EU action on NCDs'
05/2019: 'Immediate EU action on non-communicable diseases could help save almost 2 million lives by 2025'
02/2020: 'Europe’s Beating Cancer Plan needs a thorough prevention pillar to tackle challenges common to all chronic diseases'
07/2020: EU health organisations react to cuts in EU health programme amidst ongoing COVID-19 crisis
Policy Papers:
2020:
- Paper on COVID-19, chronic diseases and EU health capacity
- Paper on Europe’s Beating Cancer Plan
- Position statement on the EU Green Deal
2019:
- An EU Strategic Framework for the Prevention of NCDs
- Guide for incoming Health Commissioner – Chronic disease prevention
2018: Europe’s health deserves the EU’s attention- Investing in chronic disease prevention and management
2017:
- Particulates Matter: why the EU must do more to tackle air pollution
- The good, the bad and the ugly – why the EU should eliminate industrially produced trans fats
- Don’t bottle out – why the EU needs a comprehensive alcohol strategy
- ECDA position paper on the need for EU action to help Europeans reduce excessive salt intake
- ECDA position paper on physical inactivity
2012 - European Chronic Disease Alliance input to the Reflection Process on chronic diseases
2010 - Chronic Disease Alliance - A Unified Prevention Approach
Open letters:
5/2020: Open letter to EU Commission President and EU Health Commissioner on EU action and capacity in health – learnings from COVID-19
7/2019: Open letter to Dr Von der Leyen, President-Elect of the European Commission: Cooperation and action in health
7/2016: EU initiatives and Progress on Chronic Diseases - Open letter to Timmermans, Andriukaitis and Katainen
Events:
ECDA was invited by the European Commission to present its views at the conference Towards better prevention and management of chronic diseases, organized in Brussels on 21 April 2016.
2015-2016: ECDA active contribution to the Global NCDA Forum
December 2016: "The European Response to Chronic Diseases - the Role of Civil Society"
November 2017: ECDA presented a joint statement on the employment of people with chronic diseases at the EU Health Policy Platform meeting
March 2018: ECDA was invited to speak at the final conference of the EU-funded "PATHWAYS" project
May 2018: "Towards the SDGs: what place for chronic diseases in the EU agenda post 2019?"
Projects:
2012-2015: EConDA - Economics of Chronic Diseases; 8 out of 11 members of ECDA contributed to the project which unveils obesity & smoking trends across Europe and shows how primary prevention is the key to a healthy future
2018-2020: CHRODIS Plus Joint Action (Work Package 8)Other activities
For further details concerning the alliance's activities please visit:
http://www.alliancechronicdiseases.org/home/
Meetings
Meetings
3 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 18 Sep 2020 Location Brussels Subject Virtual meeting about Europe’s Beating Cancer Plan and chronic diseases Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 09 Jan 2019 Location Brussels, Belgium Subject courtesy visit, presentation of activities DG Health and Food Safety Attending - Anne Bucher (Director-General)
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Date 18 Jul 2018 Location Brussels, Belgium Subject Non communicable diseases Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Alina Timofte (Cabinet member)
- Annika Nowak (Cabinet member)
Other Lobbyists