Overview
Lobbying Costs
250,000€
Financial year: Jan 2019 - Dec 2019
Lobbyists (Full time equivalent)
2.75 Fte (6)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
-
Info
European Federation of Allergy and Airways Diseases Patients' Associations (EFA)
EU Transparency Register
28473847513-94 First registered on 20 Dec 2011
Goals / Remit
The European Federation of Allergies and Airways Diseases Patients' Associations (EFA) is the European voice for over 200 million people living with allergies and airway diseases. We bring together national associations from 25 countries and channel their knowledge and demands to European institutions. We connect stakeholders to ignite change and bridge the gaps between a wide range of policy issues to support more effective and comprehensive strategies – strategies that address the needs of our community. We strive to achieve greater patient participation in decision-making at local, national and European levels.
We represent all patients and people whose lives are, could be or will be affected by allergies and airway diseases. We collect and share their stories to inform policymakers, stakeholders and the wider public about the impact these conditions have on individuals and society. We run projects and campaigns to generate action that improves the quality of life of our pat (...)Main EU files targeted
Public health: tobacco and smoking, air quality, indoor air quality and air pollution, chemicals, inequalities
Food labelling and food security
Healthcare: health systems, medicines, clinical trials, digital health, quality of life
Research agendaAddress
Head Office
Rue du Congrès, 35
Bruxelles 1000
BELGIUM -
People
Total lobbyists declared
6
Employment time Lobbyists 100% 1 50% 2 25% 3 Lobbyists (Full time equivalent)
2.75
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 01 Mar 2021
Name Start date End Date Ms Isabel PROANO GOMEZ 30 Jan 2020 30 Jan 2021 Mr Panagiotis Minos CHASLARIDIS 30 Jan 2020 30 Jan 2021 Mr Panagiotis Minos CHASLARIDIS 07 Mar 2019 30 Jan 2020 Ms Isabel PROANO GOMEZ 20 Sep 2018 20 Sep 2019 Ms Caroline Heilpern 20 Sep 2018 06 Mar 2019 Ms Roberta SAVLI 20 Mar 2017 01 Mar 2018 Ms Daniela Morghenti 10 Oct 2016 01 Oct 2017 Ms Roberta SAVLI 04 Feb 2016 02 Feb 2017 Ms Jelena Malinina 31 Mar 2015 27 Mar 2016 Ms Roberta SAVLI 18 Feb 2015 04 Feb 2016 Ms Roberta SAVLI 05 Feb 2014 04 Feb 2015 Mrs Roberta SAVLI 05 Feb 2014 27 Jan 2015 Mrs Roberta SAVLI 02 Feb 2013 01 Feb 2014 Mrs Roberta SAVLI 23 Jan 2012 08 Feb 2013 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
EFA has full membership with:
- the European Patients’ Forum (EPF), the umbrella association of patients’ organisation at the European level
- the Global Alliance against Chronic Respiratory Diseases (GARD)
- the Global Asthma and Allergy Patient Platform (GA²P²)
- the Global Skin, as associate member
- the Global Allergy and Asthma European Network (GA²LEN) and International Coalition of COPD Organisations (ICC)
- the Health and Environment Alliance (HEAL)
- the European Network for Smoking and Tobacco Prevention, (ENSP) as an associate Member
- the International Primary Care Respiratory Group (IPCRG), as an associate Member.
In its daily activities, EFA is constantly in contact with other key stakeholders working in Brussels in the field of public health and environment.
Furthermore, EFA has a wide network of contacts and other stakeholders:
- the European Academy of Allergy and Clinical Immunology (with a Memorandum of Understanding)
- the European Respiratory Society (ERS) and its European Lung Foundation (ELF)
- the Allergic Rhinitis and its Impact on Asthma (ARIA)
- the Global Allergy and Asthma European Network (GA²LEN)Member organisations
None declared
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Financial Data
Closed financial year
Jan 2019 - Dec 2019
Lobbying costs for closed financial year
250,000€
EU grant income for closed financial year
24,801 € (Source: European Commission Horizon 2020 and Innovative Medicines Initiative)
Other financial info
Transparency and Acknowledgements
Operating programme
Grants
- Aimmune 30.000,00
- Astra Zeneca 30.000,00
- Boehringer Ingelheim 30.000,00
- Chiesi 30.000,00
- DBV Technologies 30.000,00
- GSK 30.000,00
- Leo Pharma 30.000,00
- Novartis 30.000,00
- Pfizer 30.000,00
- Regeneron 30.000,00
- Sanofi Genzyme 30.000,00
Membership fees 14.500,00
EFA project programme
Capacity Building
- Astra Zeneca 20.000,00
- Boehringer Ingelheim 20.000,00
- GSK 20.000,00
- Novartis 20.000,00
European Parliament Interest Group on Allergy and Asthma
- Astra Zeneca 11.667,00
- Chiesi 11.667,00
- Novartis 11.667,00
European Atopic Eczema Awareness Day
- Pfizer 58.334,00
- Sanofi Genzyme / Regeneron 116.667,00
Active Patients Access Care
- Astra Zeneca 20.000,00
- Boehringer Ingelheim 20.000,00
- Chiesi 20.000,00
- GSK 20.000,00
- Novartis 20.000,00
- Sanofi Genzyme / Regeneron 20.000,00
Food Detectives
- Aimmune 40.000,00 -
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
European Parliament Interest Group on Allergy and Asthma (informal group: https://allergyasthmaparliament.eu/)
Communication activities
None
Other activities
Eligible organisation to the European Medicines Agency (EMA)
NGO Stakeholder to the European Food Safety Authority (EFSA)
Stakeholder to the European Chemicals Agency (ECHA)
Observer organisation to the Codex Alimentarius Commission (FAO/WHO)
Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 15 May 2018 Location Brussels Subject HTA Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Annika Nowak (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
Other Lobbyists