Overview
Lobbying Costs
37,500€
Financial year: Jan 2014 - Dec 2014
Lobbyists (Full time equivalent)
1 Fte (1)
Lobbyists with EP accreditation
0
High-level Commission meetings
2
Lobbying Costs over the years
-
Info
European Federation of Neurological Associations (EFNA)
EU Transparency Register
321826714452-53 First registered on 07 Oct 2014
Goals / Remit
The European Federation of Neurological Associations (EFNA) brings together European umbrella organisations of neurological patient advocacy groups, to work with other associations in THE FIELD of neurology, including the European Federation of Neurological Societies (EFNS), in what has been termed a “Partnership for PROGRESS“.
Our Vision
A better quality of life for PEOPLE in Europe living with a neurological DISORDER.
Our Mission
To influence policy makers and legislators in Europe (and particularly in the European Union) to prioritise resource allocation to reduce the burden for people living with a neurological disorder.
To COMMUNICATE with our members to achieve positive change and to ensure that our actions both represent and provide added value to their own concerns and activities.
To establish strong partnerships and alliances with relevant stakeholders in the scientific, clinical, political and corporate arenas to help us to REACH our goals – partnership for progress.
Our Values
Trustworthiness and transparency – we will be open, honest and ethical in all we do.
Respect and democracy – we respect one another’s differences and contributions.
Sustainability – we will make best use of our resources to bring about changes that produce permanent benefits for our members and will plan our activities to ensure EFNA’s future.
EFNA’s aims are:
To improve the quality of life of people with neurological disorders, their FAMILIES AND carers
To PROMOTE rapid and accurate diagnosis, appropriate treatment, rehabilitation and care for people with neurological illnesses
To PROMOTE better access to information which is accurate and easy to understand
To promote public awareness and understanding of neurological conditions
To eliminate prejudice and stigma associated with neurological disorders
To increase priority given to neurology by policy and decision makers and by HEALTH CARE providers.
The Federation fulfils its aims by working through:
The European Commission and the European Parliament
Collaboration with relevant health professionals
Collaboration with other relevant organisations
Organisation of conferences and educational workshops
Preparation of guidelines on the optimum management of neurological conditions
Collaboration in the organisation and promulgation of international collaborative research projects
Collaboration in the establishment of registers and other databases of centres of treatment, teaching and research in the neurological conditions
The publication of newsletters, a directory of members and other publications including the development of electronic media
Campaigning at the European level
Assist in the development of patient support organisations
All other activities the EFNA General Assembly (GA) may deem appropriate.
Whilst remaining independent, EFNA will CLOSELY co-operate with the European Academy of Neurology (EAN) and all other agencies in this field.Main EU files targeted
EFNA coordinates an MEP Interest Group on Brain, Mind and Pain and so we follow closely EU initiatives, policies and legislative files in the healthcare and research arenas which may impact on those affected by neurological disorders.
Address
Head Office
Rue d'Egmont, 11
Brussels 1000
BELGIUM -
People
Total lobbyists declared
1
Employment time Lobbyists 100% 1 Lobbyists (Full time equivalent)
1
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 14 Jan 2016
Name Start date End Date Orla GALVIN 07 Mar 2024 06 Mar 2025 Tadeusz Hawrot 25 Oct 2023 24 Oct 2024 Astri ARNESEN 07 Mar 2024 06 Mar 2025 Tadeusz Hawrot 13 Oct 2022 13 Oct 2023 Tadeusz Hawrot 16 Oct 2021 08 Oct 2022 Ms Donna Walsh 18 Mar 2020 18 Mar 2021 Tadeusz Hawrot 03 Dec 2019 03 Dec 2020 Ms Joke JAARSMA 24 Aug 2019 22 Aug 2020 Ms Donna Walsh 30 Mar 2019 18 Mar 2020 Ms Nancy van Hoylandt 30 Mar 2019 01 Apr 2020 Tadeusz Hawrot 07 Nov 2018 07 Nov 2019 Ms Nancy van Hoylandt 10 Mar 2018 09 Mar 2019 Ms Donna Walsh 07 Mar 2018 07 Mar 2019 Ms HEATHER CLARKE 15 Jan 2018 03 Nov 2018 Ms Elizabeth Cunningham 20 Nov 2017 16 Nov 2018 Ms Nancy van Hoylandt 20 Mar 2017 21 Feb 2018 Ms Donna Walsh 21 Feb 2017 16 Feb 2018 Ms HEATHER CLARKE 23 Jan 2017 14 Jan 2018 Ms Cathalijne Van Doorne 12 Mar 2016 11 Mar 2017 Ms Elizabeth Cunningham 05 Mar 2016 04 Mar 2017 Ms Nancy van Hoylandt 05 Mar 2016 04 Mar 2017 Ms Donna Walsh 04 Mar 2016 22 Feb 2017 Ms HEATHER CLARKE 16 Jan 2016 15 Jan 2017 Ms Cathalijne Van Doorne 17 Dec 2014 14 Dec 2015 Mrs Cathalijne Van Doorne 17 Dec 2014 27 Jan 2015 Ms HEATHER CLARKE 13 Dec 2014 10 Dec 2015 Ms Ann Little Holmes 12 Dec 2014 10 Dec 2015 Ms Donna Walsh 25 Nov 2014 21 Nov 2015 Ms Audrey Craven 25 Nov 2014 21 Nov 2015 Complementary Information
None declared
Person in charge of EU relations
Ms Donna Walsh (Executive Director)
Person with legal responsibility
Ms Ann LITTLE HOLMES (President)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
European Brain Council
European Patients Forum
European Platform for Patient Organisations, Science and Industry
European Alliance for Access to Safe MedicinesMember organisations
None declared
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Financial Data
Closed financial year
Jan 2014 - Dec 2014
Lobbying costs for closed financial year
37,500€
Other financial info
The above figure represents the estimated costs for the coordination and roll-out of the MEP Interest Group on Brain, Mind and Pain in 2015.
Funding received is from unrestricted donations/grants from the pharmaceutical industry to cover project (and some core) costs and from our health professional colleagues at the European Federation of Neurological Societies to cover core costs (now European Academy of Neurology).
We have also introduced a small membership fee for 2015. -
EU Structures
Groups (European Commission)
None
ACC
None
Groups (European Parliament)
None
Communication activities
None
Other activities
European Month of the Brain
European Patient Research Network
European Advocacy Workshop
Pledge to Protect Neuroscience Research and Neurology Patients
Meetings
Meetings
2 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 18 Nov 2020 Location Virtual meeting Subject Exchange of views with EFNA, EAN and EBC on EU4Health, the impact of COVID-19 on mental and neurological health and their participation and contribution in the Health Policy Platform and other fora. Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Panayiotis Pourgourides (Cabinet member)
- Ines Prainsack (Cabinet member)
Other Lobbyists -
Date 19 Feb 2015 Location Brussels, Belgium Subject Range of brain related deseases Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Arunas Vinciunas (Cabinet member)
Other Lobbyists