Overview
Lobbying Costs
250,000€
Financial year: Jan 2019 - Dec 2019
Lobbyists (Full time equivalent)
6 Fte (9)
Lobbyists with EP accreditation
1
High-level Commission meetings
6
Lobbying Costs over the years
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Info
European Liver Patients' Association (ELPA)
EU Transparency Register
89292219623-93 First registered on 13 Sep 2012
Goals / Remit
ELPA’s aim is to promote the interests of people with liver disease and in particular: to highlight the size of the problem; to promote awareness and prevention; to address the low profile of liver disease as compared to other areas of medicine such as heart disease; to share experience of successful initiatives; to work with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonised across Europe to the highest standards. Our Mandate:ELPA emerged from a desire amongst European liver patient groups to share their experiences of the often very different approaches adopted in different countries. In June 2004, 13 patient groups from 10 European and Mediterranean Basin countries met to create the association. ELPA was formally launched in Paris on April 14th 2005 during the annual conference of the European Association for the Study of the Liver (EASL) and now has 28 members from 23 countries. Our ultimate goal is a world without liver diseases.
Main EU files targeted
ELPA is covering and advocating for patients suffering from all liver diseases, with a specific focus on hepatitis, Non-Alcoholic Steatosis Hepatitis (NASH), liver cancer, hepatic encephalopathy (HE), and rare liver diseases. We have also participated in Europe's Beating Cancer plan: Launch of an EU-wide debate in February and submitted our proposal for EndHep Initiative as an additional part of the plan which we discussed with DG Sante, Mrs. Butcher prior to the meeting itself. We are a part of ACHIEVE Coalition – Associations collaborating on hepatitis to immunize and eliminate the viruses in Europe and we collaborate closely with Viral Hepatitis Alliance, European Center for Diseases Control (ECDC) and WHO Europe. Additionally, we are closely watching the renewal of the alcohol strategy, chronic diseases, viral hepatitis, an action plan for the health sector response to viral hepatitis in the WHO European Region, EP Resolution on HIV/ Aids, Tuberculosis and Hepatitis C. We are constantly collaborating with »Friends of Liver » MEP group and have just started collaborating with European Kidney Patients' Federation who are collaboratimg with MEP group »Kidney Health«.
Address
Head Office
235 Rue de la Loi, box 27
Brussels 1040
BELGIUM -
People
Total lobbyists declared
9
Employment time Lobbyists 100% 3 75% 2 50% 2 25% 2 Lobbyists (Full time equivalent)
6
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
1 accreditations were / are live (in bold) for the selected state of 09 Oct 2020
Name Start date End Date Ms Anastassiya SEMEISKAYA 15 Feb 2024 14 Feb 2025 Mr Milan MISHKOVIKJ 23 Jan 2024 17 Jan 2025 Mr Marko KORENJAK 23 Jan 2024 17 Jan 2025 Ms Beatrice CREDI 20 Jan 2024 17 Jan 2025 Ms Veronika VŠETIČKOVA 20 Jan 2024 17 Jan 2025 Ms Beatrice CREDI 12 Jan 2023 12 Jan 2024 Mr Milan MISHKOVIKJ 12 Jan 2023 12 Jan 2024 Mr Marko KORENJAK 12 Jan 2023 12 Jan 2024 Ms Veronika VŠETIČKOVA 07 Oct 2022 07 Oct 2023 Mr Milan MISHKOVIKJ 18 Jan 2022 12 Jan 2023 Mr Marko KORENJAK 18 Jan 2022 12 Jan 2023 Ms Beatrice CREDI 21 Dec 2021 21 Dec 2022 Mr Milan MISHKOVIKJ 05 Jan 2021 05 Jan 2022 Ms Veronika VSETICKOVA 05 Jan 2021 05 Jan 2022 Mr Marko KORENJAK 05 Jan 2021 05 Jan 2022 Mr Milan MISHKOVIKJ 01 Nov 2019 31 Oct 2020 Mr Marko KORENJAK 08 Oct 2019 08 Oct 2020 Complementary Information
Persons involved: ELPA President, ELPA Directors, Head of ELPA office
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
1. VHC - Vlaams Hepatitis Contactpunt,
2. The Chronic Viral Hepatitis Patients Association, "B18",
3. Leverforeningen,
4. Hepatos,
5. Cyprus Liver Patients Association,
6. Association of Liver Patients' Care - ALPC,
7. The Finnish Kidney and Liver Association,
8. Fédération SOS hépatites,
9. Association for health education, prevention and better treatment – HEPTA,
10. Hepar Centar – Bitola,
11. Hungarian Association of Chronic Hepatitis Patients - VIMOR
12. Hetz - Israeli Association For The Health Of The Liver,
13. Star of Hope Foundation,
14. SOS Hépatites Portugal,
15. APAH-RO,
16. Liver patients association HRONOS,
17. HEP HELP KLUB,
18. Sanca pre pecen,
19. Slovenian Association of patients suffering from hepatitis SLOVENIA HEP,
20. Catalan Association of Hepatitis Patients - ASSCAT,
21. National Federation of Liver Patients and Transplanted-FNETH,
22. Riksföreningen Hepatit C - RHC,
23. HEPYAŞAM - Living with Hepatitis Association
24. British Liver Trust,
25. Liver4Life,
26. proLAR Nett,
27. United against Hepatitis,
28. Humanitarian action,
29. HepCPositive,
30. Hepatitis C Cured Patient Association,
31. Hepatitis C Partnership,
32. CAHIV. -
Financial Data
Closed financial year
Jan 2019 - Dec 2019
Lobbying costs for closed financial year
250,000€
Other financial info
We have appointed an official statutory auditor for accounts of 2018, 2019 and 2020 - Mr. Jean Bernard Pauli-Takou, Registered Auditor at IBR-IRE.
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
Disability#Cancer#Children's rights#LGTBI
Communication activities
In the year 2019, European Commission hosted our high-level event focused on NASH from the patient' perspective with Commissioner Moedas in European Commission and we launched a white paper on hepatitis encephalopathy (HE) in European Parliament. Once possible, we would like to repeat this practice and organize high-level event - launching a white paper focused on liver cancer and Non-Alcoholic Steatosis Hepatitis (NASH) for adults and children. Additionally, we are a part of 6 EU Medical research projects Horizon2020 and 1 project from the EITHealth Platform and we are part of three additional projects which are now in an approval stage.
Other activities
Advocacy for improving European activities in the field of liver diseases.
Advocacy in the field of alcohol policy.
Advocacy in the field of HCC.
Advocacy in the field of public health, i.e. health determinants,viral hepatitis.- Meetings
Meetings
6 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 03 Apr 2023 Location Bruxelles Subject noncommunicable diseases Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
- Stella Kyriakides (Commissioner)
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Date 03 Apr 2023 Location Bruxelles Subject VTC meeting on noncommunicable diseases Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
- Stella Kyriakides (Commissioner)
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Date 03 Feb 2020 Location Brussels Subject presenting most important initiatives and discussing future collaboration DG Health and Food Safety Attending - Anne Bucher (Director-General)
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Date 02 Mar 2017 Location Brussels Subject Towards a renewed EU Alcohol and Health Forum Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Arunas Vinciunas (Cabinet member)
- Paula Duarte Gaspar (Cabinet member)
Other Lobbyists - International Federation of Medical Students' Associations
- European Youth Forum
- ACTIVE - Sobriety, Friendship and Peace
- Scottish Health Action on Alcohol Problems
- European Public Health Alliance
- United European Gastroenterology
- European Alcohol Policy Alliance
- European Social Insurance Platform AISBL
- European Medical Students’ Association
- Standing Committee of European Doctors
- European Association for the Study of the Liver
- Association of European Cancer Leagues
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Date 28 Nov 2016 Location Brussels Subject EU and NGOs action on HIV, TB and Hepatitis Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
- Vytenis Andriukaitis (Commissioner)
Other Lobbyists -
Date 11 Jan 2016 Location Brussels Subject Hepatitis: action to fight Hepatitis, access to Hepatitis treatment Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Vytenis Andriukaitis (Commissioner)
- Paula Duarte Gaspar (Cabinet member)
- Meetings