European Liver Patients' Association

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2018
2019
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Registration as it was on 13 Sep 2021
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Overview

Lobbying Costs

250,000€

Financial year: Jan 2019 - Dec 2019

Lobbyists (Full time equivalent)

6 Fte (9)

Lobbyists with EP accreditation

3

High-level Commission meetings

6

Lobbying Costs over the years

  • Info

    European Liver Patients' Association   (ELPA)

    EU Transparency Register

    89292219623-93 First registered on 13 Sep 2012

    Goals / Remit

    ELPA’s aim is to promote the interests of people with liver disease and in particular: to highlight the size of the problem; to promote awareness and prevention; to address the low profile of liver disease as compared to other areas of medicine such as heart disease; to share experience of successful initiatives; to work with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonised across Europe to the highest standards. Our Mandate:ELPA emerged from a desire amongst European liver patient groups to share their experiences of the often very different approaches adopted in different countries. In June 2004, 13 patient groups from 10 European and Mediterranean Basin countries met to create the association. ELPA was formally launched in Paris on April 14th 2005 during the annual conference of the European Association for the Study of the Liver (EASL) and now has 28 members from 23 countries. Our ultimate goal is a world without liver diseases.

    Main EU files targeted

    All aspects related to health, cancer, health statistics, research, development for health, cross-border healthcare, access to healthcare, new digital aspects of health, data privacy issues, clinical and pharmaceutical development.

    Address

    Head Office
    Schuman Roundabout 2-4, Level 6, 1040 Brussels, Belgium
    Brussels 1040
    BELGIUM
  • People

    Total lobbyists declared

    9

    Employment timeLobbyists
    100%3
    75%2
    50%2
    25%2

    Lobbyists (Full time equivalent)

    6

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    3 accreditations were / are live (in bold) for the selected state of 13 Sep 2021

    Name Start date End Date
    Ms Anastassiya SEMEISKAYA 15 Feb 2024 14 Feb 2025
    Mr Milan MISHKOVIKJ 23 Jan 2024 17 Jan 2025
    Mr Marko KORENJAK 23 Jan 2024 17 Jan 2025
    Ms Beatrice CREDI 20 Jan 2024 17 Jan 2025
    Ms Veronika VŠETIČKOVA 20 Jan 2024 17 Jan 2025
    Ms Beatrice CREDI 12 Jan 2023 12 Jan 2024
    Mr Milan MISHKOVIKJ 12 Jan 2023 12 Jan 2024
    Mr Marko KORENJAK 12 Jan 2023 12 Jan 2024
    Ms Veronika VŠETIČKOVA 07 Oct 2022 07 Oct 2023
    Mr Milan MISHKOVIKJ 18 Jan 2022 12 Jan 2023
    Mr Marko KORENJAK 18 Jan 2022 12 Jan 2023
    Ms Beatrice CREDI 21 Dec 2021 21 Dec 2022
    Mr Milan MISHKOVIKJ 05 Jan 2021 05 Jan 2022
    Ms Veronika VSETICKOVA 05 Jan 2021 05 Jan 2022
    Mr Marko KORENJAK 05 Jan 2021 05 Jan 2022
    Mr Milan MISHKOVIKJ 01 Nov 2019 31 Oct 2020
    Mr Marko KORENJAK 08 Oct 2019 08 Oct 2020

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    None declared

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2019 - Dec 2019

    Lobbying costs for closed financial year

    250,000€

    Other financial info

    We have appointed an official statutory auditor for accounts of 2018, 2019 and 2020.

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Cancer

    Communication activities

    White paper on patient' perspective, high-level event in EP and Commission, good practices, conferences. Additionally, we are a part of 6 EU Medical research projects Horizon2020 and 1 project from the EITHealth platform and we are part of three additional projects which are now in an approval stage. We are constantly collaborating with »Friends of Liver » MEP group and have just started collaborating with European Kidney Patients' Federation who are collaborating with MEP group »Kidney Health«.

    Other activities

    Advocacy for improving European activities in the field of liver diseases.
    Advocacy in the field of alcohol policy.
    Advocacy in the field of HCC.
    Advocacy in the field of public health, i.e. health determinants,viral hepatitis.

  • Meetings

    Meetings

    6 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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