EUROPEAN NETWORK ON INDEPENDENT LIVING BRUSSELS

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Registration as it was on 25 Feb 2019
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Overview

Lobbying Costs

350,000€

Financial year: Jan 2018 - Dec 2018

Lobbyists (Full time equivalent)

7 Fte (10)

Lobbyists with EP accreditation

4

High-level Commission meetings

4

Lobbying Costs over the years

  • Info

    EUROPEAN NETWORK ON INDEPENDENT LIVING BRUSSELS   (ENIL)

    EU Transparency Register

    230235714034-13 First registered on 24 Jul 2014

    Goals / Remit

    The European Network on Independent Living (ENIL) is a Europe-wide network of people with disabilities, with members throughout Europe. ENIL is a forum for all disabled people, Independent Living organisations and their non-disabled allies on the issues of Independent Living. ENIL represents the disability movement for human rights and social inclusion based on solidarity, peer support, deinstitutionalisation, democracy, self-representation, cross disability and self-determination.

    ENIL promotes equal opportunities for disabled people and fights against discrimination in Europe. ENIL addresses the under-representation of persons with extensive disabilities in European disability and social politics, as well as in mainstream society. ENIL’s mission is to:

    Promote the Independent Living philosophy among disabled people, general public, national policy makers, government administrations, as well as among regional bodies such as the European Union, the Council of Europe and the Organisation for Security and Co-operation in Europe (OSCE);
    Develop the concept, principles and definition of Independent Living. Promote the development of Centres of Independent Living throughout Europe and enhance solidarity and networking among them;
    Carry out training and awareness raising activities at the European level;
    Represent Independent Living Organizations and the Independent Living movement at the European level and in different European bodies and organizations (the European Disability Forum, Disabled People’s International etc.);
    Combat social exclusion and discrimination through policies which promote Independent Living of disabled people. Make the Independent Living framework instrumental to end discrimination against disabled people in Europe;
    Embrace the social model of disability in acquiring independence and self-determination by overcoming the barriers of the medical and attitudinal models.

    Mission

    ENIL is an NGO made up of individuals and organizations promoting equal opportunities and fighting against multiple discrimination of disabled people. All its members are to follow and support Independent Living values, principles and practices. ENIL addresses the under-representation of persons with extensive disabilities in European disability politics and social organizations as well as in mainstream society.

    ENIL’s mission is to advocate and lobby for Independent Living values, principles and practices, namely for barrier-free environment, provision of personal assistance support and adequate technical aids, together making full citizenship of disabled people possible. ENIL’s activities target European, national and local administrations, politicians, media, and the general society. ENIL works to strengthen the empowerment of disabled people mainly through providing resources for peer counselling and peer training. ENIL enhances the European disability network by providing the arena for the sharing of experience of services and in providing economical, logistics and technical expertise. This as well as by being a strong network of grassroots activists.

    ENIL works directly with disabled individuals, organizations (mainly Centres of Independent Living), politicians, social agents, media, the business world and any individual or organization interested in learning about Independent Living history, values, principles and its practical application.

    That which makes ENIL different from other disability-related European organizations is its make-up of strong grass roots guided by the social model approach; the dedication of us as members to promote, advocate and lobby for social change (empowerment of disabled people to take control over their lives); and the transferability of the Independent Living principles into applicable practices. ENIL represents a disability movement for human rights and social inclusion based on solidarity, peer support, de-institutionalization, democracy, self-representation

    Main EU files targeted

    European Disability Strategy 2010 - 2020
    Europe 2020 Strategy (European Semester)
    European Structural and Investment Funds
    Enlargement (Progress Reports)
    European Accessibility Act
    Pillar of Social Rights

    Address

    Head Office
    ENIL- OFFICE, rue de l'industrie 10
    Mundo-j
    Bruxelles 1000
    BELGIUM
  • People

    Total lobbyists declared

    10

    Employment timeLobbyists
    100%5
    50%3
    25%2

    Lobbyists (Full time equivalent)

    7

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    4 accreditations were / are live (in bold) for the selected state of 25 Feb 2019

    Name Start date End Date
    Mr Florian Sanden 28 Sep 2023 27 Sep 2024
    Ms Rita CRESPO FERNANDEZ 23 May 2023 22 May 2024
    Ms Aoife MCGARRY 23 May 2023 22 May 2024
    Mr Michael GOOSSENS 23 May 2023 22 May 2024
    Ms Nadia Hadad 03 Aug 2022 03 Aug 2023
    Mr Florian Sanden 19 Jul 2022 19 Jul 2023
    Ms Natasa Kokic 02 Jun 2022 06 Apr 2023
    Ms Luz RUEDA 20 Dec 2019 01 Jul 2020
    Mr Marco Carnesecchi 01 Nov 2019 31 Oct 2020
    Mr Frank Sioen 01 Nov 2019 31 Oct 2020
    Ms Hatiye Garip 29 Oct 2019 01 Jul 2020
    Ms Victoria KIEFFER 29 Oct 2019 20 Dec 2019
    Ms Nadia Hadad 25 Sep 2019 25 Sep 2020
    Ms Natasa Kokic 19 Sep 2019 19 Sep 2020
    Ms Lisa MADL 07 May 2019 07 Nov 2019
    Mr Frank Sioen 23 Nov 2018 01 Nov 2019
    Mr Marco Carnesecchi 21 Nov 2018 01 Nov 2019
    Ms Natasa Kokic 29 Sep 2018 19 Sep 2019
    Ms Nadia Hadad 11 Sep 2018 11 Sep 2019
    Miriam GRAUTE 07 Mar 2018 01 Sep 2018
    Mr Lauri HEIKKINEN 07 Mar 2018 08 Sep 2018
    Mr Marco Carnesecchi 30 Nov 2017 21 Nov 2018
    Mr Frank Sioen 27 Oct 2017 17 Oct 2018
    Ms Zara TODD 01 Oct 2017 22 Sep 2018
    Ms Natasa Kokic 19 Sep 2017 19 Sep 2018
    Ms Nadia Hadad 09 Jun 2017 01 Jun 2018
    Mr Marco Carnesecchi 19 Oct 2016 18 Oct 2017
    Ms Natasa Kokic 19 Oct 2016 18 Sep 2017
    Mr Frank Sioen 19 Oct 2016 18 Oct 2017

    Complementary Information

    ENIL staff are based in Belgium, the UK and Bulgaria.
    ENIL currently employees 2 full time staff Member and 1 part time staff member as core staff. ENIL has also employed in 2018 an a project basis 3 full time staff members and 4 part time staff members.

    Person in charge of EU relations

    Ms Ines Bulic (Policy Officer and Projects Manager)

    Person with legal responsibility

    Ms Panayatova Kapka (Board Preseident)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    ENIL has participatory status with:

    Council of Europe

    ENIL is a member of:

    European Coalition for Community Living
    European Disability Forum
    European Expert Group on the Transition from Institutional to Community-based Care
    Alliance Against Disability Cuts


    ENIL is represented on:

    EU Fundamental Rights Agency Advisory Panel

    Member organisations

    http://enil.eu/about-enil/membership/

  • Financial Data

    Closed financial year

    Jan 2018 - Dec 2018

    Lobbying costs for closed financial year

    350,000€

    EU grant income for closed financial year

    125,616 € (Source: European Commission)

    Other financial info

    INCOME AND COSTS AS PER ENIL BRUSSELS OFFICE DRAFT BALANCE SHEET AND PROFIT/LOSS 2018

  • EU Structures

    Groups (European Commission)

    Structured Dialogue with European Structural and Investment Funds' partners group of experts#E03226 #http://ec.europa.eu/transparency/regexpert/index.cfm?do=groupDetail.groupDetail&groupID=3226 #Member #C

    Groups (European Parliament)

    Disability Intergroup
    Intergroup on Active Ageing, Intergenerational Solidarity and Family issues

    Communication activities

    In the previous year ENIL has undertaken the following activities:

    1. Carrying out research on Independent Living and posting results on ENIL Website;

    2. Organising Independent Living meetings and conferences at EU level – about Independent Living generally and on specific topics allowing the exchange of knowledge, expertise and ideas – and supporting similar (national) events initiated by disability organisations in different countries;

    3. Organising the Strasbourg Freedom Drive to demonstrate Independent Living in practice and lobbying at EU level for new legislation;

    4. Participation in different committees, working groups and other forums at EU level where public policies are discussed, including representation within the advisory panel of the Fundamental Rights Agency and membership of the European Expert Group on the Transition from Institutional to Community-based Care and the European Disability Forum;

    5. Providing Independent Living training to disabled people (on topics such as peer support and hate crime), including by creating new networks and supporting ongoing networks of disabled Independent Living trainers in all ENIL member countries and supporting their training efforts;

    6. Developing the website with information on the social model, independent living, barrier-free environment, assistive technologies and personal assistance with concrete cases in education, employment, transport, healthcare, etc.;

    7. Producing publications and videos for training, promotion and lobbying purposes;

    8. Giving publicity to national achievements of disability organisations who are members of ENIL;

    9. Training and professional development of the ENIL staff.

    Other activities

    None declared

  • Meetings

    Meetings

    4 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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