European Patients' Forum (EPF)

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2013
2014
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Registration as it was on 02 Dec 2014
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Overview

Lobbying Costs

None declared

Financial year: Jan 2013 - Dec 2013

Lobbyists (Full time equivalent)

None declared

Lobbyists with EP accreditation

4

High-level Commission meetings

25

Lobbying Costs over the years

  • Info

    European Patients’ Forum   (EPF)

    EU Transparency Register

    61911227368-75 First registered on 07 Dec 2011

    Goals / Remit

    The European Patients’ Forum is a not-for-profit, independent umbrella organisation of patients’ organisations active in the field of European public health and health advocacy.

    EPF’s vision is that all patients with chronic and/ or lifelong conditions in the EU have access to high quality, patient-centred equitable health and social care.

    Our mission is to ensure that the patients’ community drives policies and programmes that affect patients’ lives to bring changes empowering them to be equal citizens in the EU.

    EPF helps to empower patients’ organisations through educational seminars, policy initiatives and projects. We coordinate best practice exchanges between patient organisations at European and national levels. Our programmes also help to strengthen their organisational and advocacy capacity.

    EPF's goals as stated in the Strategic Plan 2014-2020 are as follows:

    Goal 1: HEALTH LITERACY
    To promote access for patients and their informal carers to information and education that enables them to make informed choices about their health.

    Goal 2: HEALTHCARE ACCESS AND QUALITY
    To contribute to improvements in health systems that enable equitable access to sustainable and high-quality healthcare designed and delivered to meet patients’ and informal carers’ needs at all levels of care, embracing innovation in all its forms.

    Goal 3: PATIENTS’ INVOLVEMENT
    To advance meaningful patient involvement in the development and implementation of health-related policies, programmes and projects in the EU.

    Goal 4: PATIENTS' EMPOWERMENT
    To promote the development and implementation of policies, strategies and healthcare services that empower patients to be involved in the decision-making and management of their condition according to their preference, whilst raising awareness about their rights and responsibilities.

    Goal 5: SUSTAINABLE PATIENTS' ORGANISATIONS
    To support the development, growth and capacity building of inclusive, effective, sustainable and representative patients’ organisations, and to foster cooperation and synergies between them.

    Goal 6: NON DISCRIMINATION
    To promote the development of EU and national policies that tackle discrimination faced by patients in health and social care as well as in domains like education and employment.

    Our vision, core values, and strategic goals stated in our strategic plan inform EPF’s policy and programme work, external communications and collaboration and partnerships with health stakeholders. They are embedded in all activities we undertake and constitute EPF’s identity card. We outline our yearly objectives through an annual work plan.

    Link to EPF Strategic Plan: http://www.eu-patient.eu/library/Strategic-Plan/

    Link to EPF Annual Work plans: http://www.eu-patient.eu/library/Other-Material/

    Main EU files targeted

    Address

    Head Office
    route de Thionville
    Luxembourg L-2611
    LUXEMBOURG
  • People

    Total lobbyists declared

    None declared

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    4 accreditations were / are live (in bold) for the selected state of 02 Dec 2014

    Name Start date End Date
    Ms Estefania CALLEJAS DE LUCA 06 Jan 2024 03 Jan 2025
    Mr Yann HEYER 09 Sep 2023 06 Sep 2024
    Mr Anca TOMA 06 Sep 2023 05 Sep 2024
    Ms Milana TRUCL 06 Sep 2023 05 Sep 2024
    Ms Julie SPONY 06 Sep 2023 05 Sep 2024
    Ms Claudia Louati 05 May 2023 03 May 2024
    Ms Emma Kaisa Tuulikki IMMONEN 22 Sep 2022 18 Mar 2023
    Mr Juan Jose FERNÁNDEZ ROMERO 07 Sep 2022 13 Aug 2023
    Mr Anca TOMA 07 Sep 2022 06 Sep 2023
    Ms Milana TRUCL 07 Sep 2022 06 Sep 2023
    Ms Julie SPONY 07 Sep 2022 06 Sep 2023
    Ms Katie Gallagher 23 Nov 2019 21 Nov 2020
    Ms Nicola BEDLINGTON 21 Nov 2019 21 Nov 2020
    Mr Usman KHAN 07 Sep 2019 05 Sep 2020
    Ms Emma Kaisa Tuulikki Immonen-Charalambous 29 Aug 2019 29 Aug 2020
    Mr Lyudmil NINOV 29 Aug 2019 29 Aug 2020
    Konstantinos Aligiannis 29 Aug 2019 19 Jan 2020
    Mr Julien RICHARD 08 Feb 2019 29 Aug 2019
    Ms Emily BOWLES 07 Feb 2019 01 Mar 2020
    Ms Katie Gallagher 08 Jan 2019 23 Nov 2019
    Ms Nicola BEDLINGTON 07 Dec 2018 21 Nov 2019
    Ms Valentina STRAMMIELLO 18 May 2018 18 May 2019
    Mr Lyudmil NINOV 17 May 2018 17 May 2019
    Ms Elena Balestra 09 May 2018 09 May 2019
    Ms Emma Kaisa Tuulikki Immonen-Charalambous 08 May 2018 01 Jun 2019
    Konstantinos Aligiannis 08 May 2018 01 Jun 2019
    Ms Katie Gallagher 03 Jan 2018 15 Dec 2018
    Ms Nicola BEDLINGTON 25 Nov 2017 24 Nov 2018
    Ms Camille Bullot 16 Jun 2017 13 Jun 2018
    Ms Elena Balestra 05 May 2017 04 May 2018
    Ms Emma Kaisa Tuulikki Immonen-Charalambous 25 Apr 2017 20 Apr 2018
    Konstantinos Aligiannis 25 Apr 2017 20 Apr 2018
    Mr Laurent Louette 21 Feb 2017 07 Feb 2018
    Ms Katie Gallagher 09 Dec 2016 09 Dec 2017
    Ms Camille Bullot 23 Jun 2016 16 Jun 2017
    Ms Emma Kaisa Tuulikki Immonen-Charalambous 20 Feb 2016 19 Feb 2017
    Mr Laurent Louette 13 Feb 2016 12 Feb 2017
    Ms Laurène Souchet 11 Feb 2016 14 Dec 2016
    Ms Emma Kaisa Tuulikki Immonen-Charalambous 07 Mar 2015 20 Feb 2016
    Ms Cynthia Bonsignore 11 Feb 2015 10 Feb 2016
    Ms Laurène Souchet 11 Feb 2015 05 Feb 2016
    Ms Camille Bullot 01 Oct 2014 29 Sep 2015
    Ms Emma Kaisa Tuulikki Immonen-Charalambous 07 Mar 2014 06 Mar 2015
    Ms Cynthia Bonsignore 19 Feb 2014 12 Feb 2015
    Ms Laurène Souchet 19 Feb 2014 12 Feb 2015

    Complementary Information

    None declared

    Person in charge of EU relations

    None declared

    Person with legal responsibility

    Ms Nicola Bedlington (Director)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    None declared

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2013 - Dec 2013

    Lobbying costs for closed financial year

    None declared

    EU grant income for closed financial year

    568,488 €

    Other financial info

    Our financial information is published yearly on our website, and in EPF annual report available from EPF website.

  • EU Structures

    Groups (European Commission)

    None declared

    Groups (European Parliament)

    None declared

    Communication activities

    None declared

    Other activities

    None declared

  • Meetings

    Meetings

    25 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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