FH Europe

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Registration as it was on 17 Apr 2018
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Overview

Lobbying Costs

179,924€

Financial year: Mar 2017 - Feb 2018

Lobbyists (Full time equivalent)

1 Fte (2)

Lobbyists with EP accreditation

0

High-level Commission meetings

1

Lobbying Costs over the years

  • Info

    FH Europe - the European FH patient network   (FH Europe)

    EU Transparency Register

    302460130801-47 First registered on 03 Apr 2018

    Goals / Remit

    The objectives of FH Europe are to actively work to secure early identification and diagnosis of Familial Hypercholesterolaemia (FH) patients to prevent early cardiovascular disease.

    Our aims as a patient association are to:
    Share information and best practice across Europe
    Work with experts to focus on themes and topics of interest to the patients and families we represent
    Support development of newer or smaller patient groups and individuals wanting to start a patient group

    Main EU files targeted

    FH Europe has expressed interest in the proposed best practice portal for non-communicable diseases.

    Address

    Head Office
    7 North Road
    Maidenhead
    Maidenhead SL6 1PE
    UNITED KINGDOM
  • People

    Total lobbyists declared

    2

    Employment timeLobbyists
    75%1
    25%1

    Lobbyists (Full time equivalent)

    1

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    FH Europe is providing administrative support in relation to the work of a medical expert on paediatric FH in order to promote this example of best practice.
    FH Europe and its member organisations seek to promote best practice in treatment of patients and are willing to commit voluntary and any other available resource to promote such practice.

    Person in charge of EU relations

    Ms Jules Payne (Chair, FH Europe)

    Person with legal responsibility

    Ms Jules Payne (Chair, FH Europe)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    FH Europe is not a member of any other pan-European body.
    It regularly attends European Atherosclerosis Society conference, either to man a stand or to have a representative(s) as guest patient association speaker. Has also attended European Society of Cardiologists conference.

    Member organisations

    Details on all FH Europe member organisations appear on the FH Europe website: www.fheurope.org

    Most of the member associations are run on a voluntary basis, a small number are large enough to have paid staff members, some of whom are employed on a part-time basis.

  • Financial Data

    Closed financial year

    Mar 2017 - Feb 2018

    Lobbying costs for closed financial year

    179,924€

    Other financial info

    The organisation is currently supported by commercial sponsorship from varied sources, plus voluntary support.

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    None

    Communication activities

    As at March 2018, FH Europe, which was established as a charity in late 2016, has published a Call to Action in 2015.
    This was signed by a number of MEPs in the MEP Heart Group.
    A directory was published in 2016 "Introducing FH Europe 2016 directory" and a 'heatmap' relating to availability of treatment and registries was compiled in 2017 and appears on the FH Europe website (www.fheurope.org )

    Other activities

    FH Europe is interested in activities and information on best practice, research etc in relation to non-communicable diseases, in particular Familial Hypercholesterolaemia (both heterozygous and homozygous) and related lipid conditions such as FCS.

  • Meetings

    Meetings

    1 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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