GetReal Institute

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Registration as it was on 21 Feb 2023
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Lobbying Costs


Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

0.75 Fte (6)

Lobbyists with EP accreditation


High-level Commission meetings


Lobbying Costs over the years

  • Info

    GetReal Institute

    EU Transparency Register

    829424448745-09 First registered on 06 Feb 2023

    Goals / Remit

    Building on the Innovative Medicines Initiative’s GetReal and GetReal Initiative, the GetReal Institute is an independent, member-led not-for-profit organisation whose mission is to facilitate the adoption and implementation of Real-World Evidence in Regulatory, HTA and Clinical decision-making in Europe. We are committed to bringing together a diverse membership of public and commercial organisations to address critical challenges and opportunities relating to the generation, accessibility and use of Real-World Evidence.

    Objectives that GetReal Institute is trying to achieve are:
    1. Collaboration hub: Creating opportunities for collaboration with others organizations
    2. Thought leadership: Developing new scientific methods that reduce uncertainties about the use of RWE
    3. RWE Reference: Identifying and sharing resources that facilitate the understanding of RWE use
    4. Interdisciplinary Understanding: Making knowledge sharing among stakeholders easier and more accessible

    Main EU files targeted

    GetReal activities are mainly focused on the following EU legislations:

    1. The European Union (EU) legal framework for pharmaceuticals (Regulation (EC) No 726/2004)
    2. Regulation on Health Technology Assessment – Regulation (EU) 2021/2282
    3. Proposal for a regulation – The European Health Data Space (COM(2022) 197/2)
    4. A pharmaceutical Strategy for Europe (COM(2020) 761 final)
    Potentially GetReal Institute will focus on the following legislations as well:
    5. Legislation around the use of the AI act
    6. Data Act

    The general focus of the GetReal Institute within these legislations is to look to examine the impact of this legislation on RWE decision making for the generation and use of RWE in order to support decision making by regulatory and HTA bodies. Furthermore, GetReal Institute is looking to assess how the legislations impact the abilities of commercial organisations (pharma and SME) and how patient interests are represented.


    Head Office
    Heidelberglaan 100 Str. 6.131
    Utrecht/ The Netherlands 3584 CX
    EU Office
    Heidelberglaan 100 Str. 6.131
    Utrecht/ The Netherlands 3584 CX


  • People

    Total lobbyists declared


    Employment timeLobbyists

    Lobbyists (Full time equivalent)


    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories


    Other organisations, public or mixed entities

  • Networking



    Member organisations

    None declared

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year


    Major contributions in closed year

    None declared

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    0€ - 10,000€

    Other financial info

    ad 14c): costs are low at this point as most acitivities are still in the starting phase. Moreover, 5 of the 6 persons mentioned under heading 10 are doing voluntary work for the GetReal Institute (board members).

  • EU Structures

    Groups (European Commission)


    Groups (European Parliament)


    Other activities

    None declared

  • Meetings


    None declared

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