Pain Alliance Europe

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Registration as it was on 15 May 2019
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The following entries are flagged as duplicates of this organisation: 75559858669-77

Overview

Lobbying Costs

102,250€

Financial year: Jan 2017 - Dec 2017

Lobbyists (Full time equivalent)

3.75 Fte (8)

Lobbyists with EP accreditation

7

High-level Commission meetings

2

Lobbying Costs over the years

  • Info

    PAIN ALLIANCE EUROPE   (PAE)

    EU Transparency Register

    397330615236-07 First registered on 11 Dec 2014

    Goals / Remit

    For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live his life according to his possibilities and wishes.

    PAE aims to promote awareness of chronic pain, to contribute to creating a European policy on chronic pain and to reduce the impact of chronic pain on the European society on all areas.

    In order to reach our goals, PAE initiates and develops the following actions:

    Working in close relation with the other stakeholders
    Gather and distribute relative information on chronic pain from the patients' point of view.
    Establish a good relationship with potential sponsors
    Promote and or initiate research on chronic pain
    Growing the association
    Obtaining visibility through events, website, media coverage

    Main EU files targeted

    Stakeholder Group on the Social Impact of Pain’ part of the European Commission’s Health Policy Platform
    2018 Thematic Network on the Societal Impact of Pain on the HPP

    European Parliament interest group on Brain, Mind and Pain
    Public Consultations on Health issues
    EU Health Policy

    CHRODIS PLUS initiative

    Address

    Head Office
    GRENSSTRAAT, 7
    DIEGEM 1831
    BELGIUM
  • People

    Total lobbyists declared

    8

    Employment timeLobbyists
    50%7
    25%1

    Lobbyists (Full time equivalent)

    3.75

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    7 accreditations were / are live (in bold) for the selected state of 15 May 2019

    Name Start date End Date
    Mr Johannes Wilhelmus Cornelis van Griensven 17 Jan 2020 01 Feb 2021
    Ms Mariana DE BARROS E CARVALHOSA DE CASTELO BRANCO 17 Jan 2020 01 Feb 2021
    Ms Viorica Cursaru 28 Feb 2019 01 Mar 2020
    Ms Liisa Maria JUTILA 28 Feb 2019 01 Mar 2020
    Ms María Soledad GARCÍA PENALTA 28 Feb 2019 01 Mar 2020
    Mr Johannes Wilhelmus Cornelis van Griensven 17 Jan 2019 17 Jan 2020
    MARIAN JILL NICHOLSON 07 Nov 2018 07 Nov 2019
    Hilda Wieberneit-Tolman 07 Nov 2018 07 Nov 2019
    Ms Anca POP 07 Nov 2018 07 Nov 2019
    Ms Viorica Cursaru 06 Jan 2018 05 Jan 2019
    Ms Liisa Maria JUTILA 06 Jan 2018 05 Jan 2019
    Mr Johannes Wilhelmus Cornelis van Griensven 06 Jan 2018 17 Jan 2019
    María Soledad García Penalta 06 Jan 2018 05 Jan 2019
    Ms Anca POP 17 Oct 2017 17 Oct 2018
    Hilda Wieberneit-Tolman 12 May 2017 09 May 2018
    MARIAN JILL NICHOLSON 05 May 2017 04 May 2018
    Ms Liisa Maria JUTILA 02 Feb 2017 06 Jan 2018
    Ms Viorica Cursaru 04 Jan 2017 03 Jan 2018
    Mr Johannes Wilhelmus Cornelis van Griensven 04 Jan 2017 24 Dec 2017
    María Soledad García Penalta 04 Jan 2017 24 Dec 2017
    Ms Anca POP 05 Sep 2016 03 Sep 2017
    MARIAN JILL NICHOLSON 20 May 2016 06 May 2017
    Hilda Wieberneit-Tolman 20 May 2016 13 May 2017
    Ms Liisa Maria Mikkonen 27 Jan 2016 21 Jan 2017
    María Soledad García Penalta 21 Jan 2016 04 Jan 2017
    Ms Viorica Cursaru 20 Jan 2016 04 Jan 2017
    Ms Miruna Ursache 20 Jan 2016 23 Aug 2016
    Mr Johannes Wilhelmus Cornelis van Griensven 13 Jan 2016 04 Jan 2017
    Hilda Wieberneit-Tolman 21 Mar 2015 19 Mar 2016
    MARIAN JILL NICHOLSON 11 Mar 2015 09 Mar 2016
    Ms Cristina Fernández Álvarez de Eulate 13 Dec 2014 11 Dec 2015
    Ms Viorica Cursaru 14 Jan 2015 12 Jan 2016
    Ms Liisa Maria Mikkonen 14 Jan 2015 12 Jan 2016
    Mrs Cristina Fernández Álvarez de Eulate 13 Dec 2014 27 Jan 2015
    Mr Johannes Wilhelmus Cornelis van Griensven 13 Dec 2014 11 Dec 2015
    María Soledad García Penalta 13 Dec 2014 11 Dec 2015

    Complementary Information

    The Board members (7 persons) are the most concerned with the stated objective and actions to fulfill the related tasks. The board members act on a voluntary basis. They have only their expenses reimbursed. (Any travel and subsistence costs)

    Person in charge of EU relations

    Mr Joop van Griensven (PRESIDENT)

    Person with legal responsibility

    Mr Joop van Griensven (PRESIDENT)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    PAE is a member of the patient consultation with the European Medicines Agency EMA
    Works closely with European Federation or IASP Chapters, EPF / EFIC
    Is the cooperative partner of the Societal Impact of Pain, SIP project.
    Works closely with EULAR / PARE
    Has a partnership with EFNA
    Works with ACN on specific projects

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2017 - Dec 2017

    Lobbying costs for closed financial year

    102,250€

    Other financial info

    ADMIN & PROJECT DISBURSEMENTS ENTAILED
    RENTAL 30,675.18
    ADMINISTRATION 4,204.83
    WEBSITE - 1,413
    MEETINGS' COSTS - 29,846.25
    PROJECT RELATED COSTS 36,110.50

    Currently, our activity relays on pharma companies sponsorship, project-based or for core activities. We are constantly striving to diversify our revenue sources.
    All Board members are acting on a voluntary basis for the organisation.

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    None

    Communication activities

    Founding member of the European Parliament Interest group on Brain, Mind, and Pain
    Partner of SIP Symposium & Platform
    Coordination of the Stakeholder Group on the Social Impact of Pain’, part of the European Commission’s Health Policy Platform, together with EFIC European Pain Federation
    Administrators of The Thematic network on the Societal Impact of Pain’, part of the European Commission’s Health Policy Platform, together with EFIC European Pain Federation

    Other activities

    Coordination of the Stakeholder Group on the Social Impact of Pain’, part of the European Commission’s Health Policy Platform, together with EFIC European Pain Federation
    Administrators of The Thematic network on the Societal Impact of Pain’, part of the European Commission’s Health Policy Platform, together with EFIC European Pain Federation

  • Meetings

    Meetings

    2 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

    • Date 08 Mar 2019 Location Brussels
      Subject Societal and economic impact of chronic pain
      Cabinet Cabinet of Vice-President Jyrki Katainen
      Portfolio Jobs, Growth, Investment and Competitiveness
      Attending
      • Marika Lautso-Mousnier (Cabinet member)
    • Date 19 Feb 2015 Location Brussels, Belgium
      Subject Range of brain related deseases
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Arunas Vinciunas (Cabinet member)
      Other Lobbyists
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