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Overview
Lobbying Costs
650,000€
Financial year: Jan 2020 - Dec 2020
Lobbyists (Full time equivalent)
10.75 Fte (21)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
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Info
The European Institute for Innovation through Health Data (i~HD)
EU Transparency Register
676053343264-27 First registered on 22 Jun 2021
Goals / Remit
The European Institute for Innovation through Health Data (i~HD) is a not for profit institute registered in Belgium. It is a membership-based organisation with members from pharma, healthcare providers, academic organisations, and works closely with patient organisations, healthcare payers, the health ICT sector and standards development organisations. i~HD develops methods, solutions and services that can maximise the value obtained from health data, to support innovations in health, health care and knowledge discovery, while ensuring compliance with legal prerequisites, especially regarding patient’s privacy protection. It tackles areas of challenge in the successful scaling up of innovations that rely on high quality and interoperable health data. It collates, develops and supports adoption of best practices in information governance and data protection, with special focus on the reuse of health data for learning health systems.
Main EU files targeted
Opportunities, stakeholder value and acceptance factors in support of the European Health Data Space
The adoption of the EU GDPR relating to the use of health data for research.
The health sector implications of the Data Governance Act
Promotion of the Digital Health and Care Innovation initiative of the Digital Single Market Strategy
The health sector implications of the forthcoming AI RegulationAddress
Head Office
165 Oude Mechelsestraat
Strombeek-Bever 1853
BELGIUMEU Office
c/o Unit Medical Informatics & Statistics
Universitair ziekenhuis Gent, 5K3
Gent 9000
BELGIUM -
People
Total lobbyists declared
21
Employment time Lobbyists 100% 3 75% 5 50% 3 25% 10 Lobbyists (Full time equivalent)
10.75
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
Network of European experts
i~HD has built a strong network of European domain experts from different backgrounds. They bring over a decade of expertise in electronic health records, health data quality, information governance, assessment methodologies and certification programmes.
Their insights contribute to the development of our programmes, so that we can indirectly connect their expertise to all stakeholders in the health data ecosystem.
Educational team
Educational team consists of high-level professionals with either educational backgrounds, such as university professors, or seasoned industry experts, or a combination of both. They share their insights, from the basic concepts to the latest health data evolutions, and offer hands-on advice and coaching that will be of immediate practical use in your particular business situation. Find out more on the various teaching concepts we offer through the i~HD Academy.
Audit team
i~HD can rely on a strong team of experienced European auditors with clinical, technical, academic and legal expertise.Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
www.i-hd.eu
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Financial Data
Closed financial year
Jan 2020 - Dec 2020
Lobbying costs for closed financial year
650,000€
EU grant income for closed financial year
650,000 € (Source: Horizon 2020 and IMI)
Other financial info
None declared
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Relevant policy implementation, public relations and communication activities such as projects, events and publications.
The organisation and reporting of multi stakeholder roundtables, focus groups and workshops discussing topics relating to the governance, protection, interoperability, sharing and quality of health data, for public health and research purposes. These have contributed directly into EC intelligence gathering as it develops the concept, governance models, operational models and later the implementation of the EHDS.
Promoting the importance of interoperability standards to different stakeholder groups, and promoting the importance of good data quality, so that health data is usable and useful for the big data opportunities that will be enabled by the EHDS.
Working with multiple European projects and with multi stakeholder communities on the challenges and emergent good practices in complying with the GDPR when it comes to reusing health data for research, especially for big data networks.
Contributing to webinars and online conferences, hopefully soon in person conferences, about topics that contribute to the
European momentum and capacity for cross-border data sharing and analysis including trustworthy AI.Other activities
None declared
- Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 10 Oct 2022 Location Bruxelles Subject Working group on European Health Data Space Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Ralf Kuhne (Cabinet member)
Other Lobbyists
- Meetings