The European Institute for Innovation through Health Data

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2021
2022
2023
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Registration as it was on 22 Jun 2021
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The following entries are flagged as duplicates of this organisation: 957449219758-32

Overview

Lobbying Costs

650,000€

Financial year: Jan 2020 - Dec 2020

Lobbyists (Full time equivalent)

10.75 Fte (21)

Lobbyists with EP accreditation

0

High-level Commission meetings

1

Lobbying Costs over the years

  • Info

    The European Institute for Innovation through Health Data   (i~HD)

    EU Transparency Register

    676053343264-27 First registered on 22 Jun 2021

    Goals / Remit

    The European Institute for Innovation through Health Data (i~HD) is a not for profit institute registered in Belgium. It is a membership-based organisation with members from pharma, healthcare providers, academic organisations, and works closely with patient organisations, healthcare payers, the health ICT sector and standards development organisations. i~HD develops methods, solutions and services that can maximise the value obtained from health data, to support innovations in health, health care and knowledge discovery, while ensuring compliance with legal prerequisites, especially regarding patient’s privacy protection. It tackles areas of challenge in the successful scaling up of innovations that rely on high quality and interoperable health data. It collates, develops and supports adoption of best practices in information governance and data protection, with special focus on the reuse of health data for learning health systems.

    Main EU files targeted

    Opportunities, stakeholder value and acceptance factors in support of the European Health Data Space
    The adoption of the EU GDPR relating to the use of health data for research.
    The health sector implications of the Data Governance Act
    Promotion of the Digital Health and Care Innovation initiative of the Digital Single Market Strategy
    The health sector implications of the forthcoming AI Regulation

    Address

    Head Office
    165 Oude Mechelsestraat
    Strombeek-Bever 1853
    BELGIUM
    EU Office
    c/o Unit Medical Informatics & Statistics
    Universitair ziekenhuis Gent, 5K3
    Gent 9000
    BELGIUM
  • People

    Total lobbyists declared

    21

    Employment timeLobbyists
    100%3
    75%5
    50%3
    25%10

    Lobbyists (Full time equivalent)

    10.75

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    Network of European experts
    i~HD has built a strong network of European domain experts from different backgrounds. They bring over a decade of expertise in electronic health records, health data quality, information governance, assessment methodologies and certification programmes.
    Their insights contribute to the development of our programmes, so that we can indirectly connect their expertise to all stakeholders in the health data ecosystem.

    Educational team
    Educational team consists of high-level professionals with either educational backgrounds, such as university professors, or seasoned industry experts, or a combination of both. They share their insights, from the basic concepts to the latest health data evolutions, and offer hands-on advice and coaching that will be of immediate practical use in your particular business situation. Find out more on the various teaching concepts we offer through the i~HD Academy.

    Audit team
    i~HD can rely on a strong team of experienced European auditors with clinical, technical, academic and legal expertise.

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    None declared

    Member organisations

    www.i-hd.eu

  • Financial Data

    Closed financial year

    Jan 2020 - Dec 2020

    Lobbying costs for closed financial year

    650,000€

    EU grant income for closed financial year

    650,000 € (Source: Horizon 2020 and IMI)

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    N/A

    Communication activities

    Relevant policy implementation, public relations and communication activities such as projects, events and publications.

    The organisation and reporting of multi stakeholder roundtables, focus groups and workshops discussing topics relating to the governance, protection, interoperability, sharing and quality of health data, for public health and research purposes. These have contributed directly into EC intelligence gathering as it develops the concept, governance models, operational models and later the implementation of the EHDS.

    Promoting the importance of interoperability standards to different stakeholder groups, and promoting the importance of good data quality, so that health data is usable and useful for the big data opportunities that will be enabled by the EHDS.

    Working with multiple European projects and with multi stakeholder communities on the challenges and emergent good practices in complying with the GDPR when it comes to reusing health data for research, especially for big data networks.

    Contributing to webinars and online conferences, hopefully soon in person conferences, about topics that contribute to the

    European momentum and capacity for cross-border data sharing and analysis including trustworthy AI.

    Other activities

    None declared

  • Meetings

    Meetings

    1 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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