Associazione Luca Coscioni

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Registration as it was on 01 Sep 2023
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Overview

Lobbying Costs

25,000€ - 49,999€

Financial year: Aug 2021 - Jul 2022

Lobbyists (Full time equivalent)

0.3 Fte (3)

Lobbyists with EP accreditation

0

High-level Commission meetings

4

Lobbying Costs over the years

  • Info

    Associazione Luca Coscioni   (ALC)

    EU Transparency Register

    27570996265-42 First registered on 21 Jul 2011

    Goals / Remit

    Associazione Luca Coscioni per la libertà di ricerca scientifica (Luca Coscioni Association for Freedom of Scientific Research, ALC) is named after its former president and founder, Luca Coscioni, who died in 2006 after having suffered for ten years from amyotrophic lateral sclerosis (ALS).

    ALC is a non-profit organization counting thousands of members, a wide network of supporters including MPs, academics, researchers, along with representatives of patients and advocacy associations, all active in our campaigns, from Rome to Boston.

    Our main objectives are:
    - the promotion of freedom of scientific research and cure;
    - the promotion of projects and technologies for an "Independent Living";
    - the ascertainment of civil and political rights of patients and people with disabilities.
    - the promotion of the right to science and evidence-based decision-making processes
    - the organisation of the World Congress for freedom of scientific research since 2004.

    Main EU files targeted

    - Horizon Europe framework programme for research and innovation 2021–2027, Specific programme implementing Horizon Europe framework programme for research and innovation 2021–2027, Resolution on use of cannabis for medicinal purposes (and its follow-up), Multiannual financial framework for the years 2021 to 2027, Strengthening the rule of law within the Union - A blueprint for action, Resolution on climate change – a European strategic long-term vision for a prosperous, modern, competitive and climate neutral economy in accordance with the Paris Agreement (and its follow-up).

    - Members of the organisation participated in the EU Commission request for feedback on the Democracy Action Plan through our partner organisation EUMANS

    - Associazione Luca Coscioni had been among the key promoters of the Petition to the European Parliament 329/2020 (Also known as EU CAN DO IT Petition) on the needs for coordinated management of the Covid19 crisis, social, economic and climatic crisis

    - Associazione Luca Coscioni was among the promoters of the European Citizens Initiative Stopglobalwarming.eu - A price on carbon to fight climate change. Among the activities co-organised to carry on this initiative the Treasurer of Associazione Luca Coscioni organised and attended meetings with the Cabinet of Mr Timmermans during the preparation of the Fit for 55 Package.

    - Associazione Luca Coscioni worked in collaboration with its partner organisation EUMANS on the Conference on the Future of Europe process


    In general, the Associazione Luca Coscioni is interested in activities related to research, innovation in agriculture, patients’ and disability rights. The next Horizon Europe framework programme and the next MFF are of particular interest in terms of the financing of research. In addition, ALC follows developments related to the state of the rule of law in the EU and general initiatives in the field of climate change.

    Address

    Head Office
    Via di San Basilio 64
    Rome 00187
    ITALY
    EU Office
    Via di San Basilio 64
    Roma 00187 - 00187
    ITALY

    Website

  • People

    Total lobbyists declared

    3

    Employment timeLobbyists
    10%3

    Lobbyists (Full time equivalent)

    0.3

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 15 Jun 2024

    Name Start date End Date
    Mr Guido Long 12 Feb 2019 12 Feb 2020
    Mr Marco PERDUCA 12 Feb 2019 12 Feb 2020

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    International Drug Policy Consortium
    European Humanist Federation
    Right to Die Europe
    World Right To Die Societies Federation

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Aug 2021 - Jul 2022

    Lobbying costs for closed financial year

    25,000€ - 49,999€

    Major contributions in closed year

    None declared

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    25,000€ - 49,999€

    Other financial info

    The activities related to EU affairs of Associazione Luca Coscioni are mainly managed through the network of partner organizations (Science for Democracy and EUMANS). The staff of Associazione Luca Coscioni paid in Italy contributes to these activities mainly through shared legal and policy research and knowledge sharing.

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    N/A

    Communication activities

    Members of our Association supported and promoted the organisation of a sortition based Citizens' Assembly in the framework of the EU Project: 101081332 — TEA — CERV-2022-CITIZENS-CIV

    Members of our Association attended the "European Citizens' Initiative - draft technical specifications for individual online collection systems - stakeholders' meeting" on 9 September 2019 in Brussels.

    Members of our Association took part in the Public Hearing of the Petition 329/2020 to the European Parliament

    Members of our Association and partner organisation (Science for Democracy) are involved in Erasmus+ Funded project P-Cube

    Members of our Association are among the promoters of proposals on the platform for the Conference on the Future of Europe

    Marco Cappato, treasurer of Associazione Luca Coscioni, collaborated with MEP Sophie In't'veld to the letter to the President of the European Commission titled: Raising crucial issues regarding end of life treatments, in particular with a focus on: Collecting qualitative data to inform policy-makers, EU Funding to cover all voices and choices of Europeans, Starting a dialogue with civil society, The portability of the living will, The freedom of circulation of patients within the EU for end of life treatments

    Other activities

    None declared

  • Meetings

    Meetings

    4 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

    • Date 22 Mar 2018 Location Brussels
      Subject Collaboration within Horizon 2020
      Cabinet Cabinet of Commissioner Carlos Moedas
      Portfolio Research, Science and Innovation
      Attending
      • Giulia Del Brenna (Cabinet member)
    • Date 22 Mar 2018 Location Brussels
      Subject 5th Meeting of the World Congress for Freedom of Scientific Research of 11-13 April 2018, at the European Parliament in Brussels
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Annika Nowak (Cabinet member)
    • Date 23 Jan 2018 Location Brussels
      Subject World Congress for Freedom of Science Research
      Cabinet Cabinet of Commissioner Carlos Moedas
      Portfolio Research, Science and Innovation
      Attending
      • Giulia Del Brenna (Cabinet member)
    • Date 22 Jan 2018 Location Brussels
      Subject World Congress for Freedom of Scientific Research in Rome
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Annika Nowak (Cabinet member)
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