Childhood Cancer International - Europe

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Registration as it was on 05 Oct 2022
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Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2021 - Dec 2021

Lobbyists (Full time equivalent)

2.25 Fte (7)

Lobbyists with EP accreditation


High-level Commission meetings


Lobbying Costs over the years

  • Info

    Childhood Cancer International - Europe   (CCI Europe)

    EU Transparency Register

    682126441400-50 First registered on 02 Mar 2021

    Goals / Remit

    The Vision of CCI Europe is for all children, adolescents and young adults with paediatric cancer to be cured and have no long-term health or psychosocial problems. To reach its vision, CCI Europe works in close collaboration with the medical and psychosocial professionals, academia, scientists, the civil society and private organisations all over Europe.

    The Mission of CCI Europe is to unite and empower paediatric cancer patients, survivors and families, and eliminate persisting inequalities across Europe. We advocate and strive for:
    o Excellence of medical care
    o Access to excellent psychosocial care
    o Accelerating innovation to cure more and cure better
    o Improve the quality of survivorship

    The strategic vision on CCI Europe is outlines through CCI Europe Pillars. Read more about them here:

    Main EU files targeted

    CCI Europe (CCI-E) has a prominent focus on EU policies and programmes in the field of Health, also Science, Research and Innovation. Furthermore, CCI-E engages in an oncopolicy affairs extensively, having a planned and sustained interaction with EU policy-makers and other stakeholders to anticipate and proactively shape EU health and research policies on childhood cancer and survivorship issues.

    CCI-E has regular proactive engagement with the Special Committee on Beating Cancer of the EU Parliament (BECA) and with the MEPs Against Cancer Interest Group (MAC). In addition, CCI-E together with childhood cancer community (SIOPE) is every September organizing a joint campaign on Childhood Cancer Awareness Month (CCAM). An important milestone was reaching when the European Parliament was illuminated in gold in September 2020, 2021, and 2022, in order to raise awareness on childhood cancer during the CCAM. CCI-E co-organizes an yearly event together with SIOP Europe, hosted by the MAC group as a virtual webinar on childhood cancer needs.

    CCI-E, together with SIOPE, has a long-term close cooperation and fruitful dialogues with numerous MEPs and European Commission (DG Research) on childhood cancer challenges and unmet medical needs in Europe through many events, conferences and meetings (eg. International Childhood Cancer Day - ICCD event that is yearly organized by SIOPE in the European Parliament).

    Areas of EU Health and Research of particular interest to CCI-E are: Cancer; Rare Cancers; Rare Diseases; Cancer Information Systems; Access to Healthcare; Access to Medicines; Innovative Treatments; Essential Medicines, Quality of (Health)Care; European Reference Networks (such as ERN PaedCan).

    Specific legislative and related implementation acts that CCI-E actively influences include: Horizon Europe, Europe’s Beating Cancer Plan, Pharmaceutical Strategy for Europe, Paediatric and Orphan Regulations, EU4Health, follow-up to Joint Actions on Rare Cancers (JARC) as well as Cross-Border Healthcare Directive etc.

    CCI-E as well follows and, when relevant to childhood cancers, engages in EU initiatives in the additional broad areas such as: Social Affairs, Internal Market and Industry, Skills and Education, Digital agenda, Mobility, Human Rights and Children’s Rights, Justice, Disability, Youth issues, Employment, Consumers, EU budget and the European Semester process.


    Head Office
    Mooslackengasse 17, 1190 Wien
    Vienna 1090
    EU Office
    Mooslackengasse 17, 1190 Wien
    Vienna 1090


  • People

    Total lobbyists declared


    Employment timeLobbyists

    Lobbyists (Full time equivalent)


    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories


    Non-governmental organisations, platforms and networks and similar

  • Networking



    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2021 - Dec 2021

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year


    Major funding types in closed year

    Grants, Donations, EU funding

    Major contributions in closed year

    Contribution ATAS 25,000€
    Contribution OeKKH 25,020€
    Contribution EU Project PanCareFollowUp 29,582€
    Contribution EU Project PanCareSurPass 30,027€
    Contribution Project grant from Ludwig Boltzmann Gesellschaft (LBG) 20,000€

    Major contributions in current year

    Grant EU Operating Grant 102,506€
    Grant EU project PanCareFollowUp 17,075€
    Grant EU project UNICA4 EU 42,813€
    Grant EU project: EU-CAYAS-NET 370,636€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)


    Groups (European Parliament)


    Other activities

    List of contributions to roadmaps:
    - Europe´s Beating Cancer Plan
    - Pharmaceutical Strategy for Europe
    - Medicines for Children and Rare Diseases
    - EU Cross-Boarder Healthcare Directive

    List of contributions to public consultations:
    - Europe´s Beating Cancer Plan
    - Pharmaceutical Strategy for Europe

  • Meetings


    1 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't publish information about such meetings. All information below comes from European Commission web pages.

    • Date 18 May 2021 Location Brussels, virtual
      Subject Exchange of views on the implementation of Europe’s Beating Cancer Plan in paediatric oncology
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      • Stella Kyriakides (Commissioner)
      Other Lobbyists
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