Childhood Cancer International - Europe

The Vision of CCI Europe is for all children, adolescents and young adults with paediatric cancer to be cured and have no long-term health or psychosocial problems. To reach its vision, CCI Europe works in close collaboration with the medical and psychosocial professionals, academia, scientists, the civil society and private organisations all over Europe.

The Mission of CCI Europe is to unite and empower paediatric cancer patients, survivors and families, and eliminate persisting inequalities across Europe. We advocate and strive for:
o Excellence of medical care
o Access to excellent psychosocial care
o Accelerating innovation to cure more and cure better
o Improve the quality of survivorship

The strategic vision on CCI Europe is outlines through CCI Europe Pillars. Read more about them here: www.ccieurope.eu/cci-europe-pillars/

CCI Europe (CCI-E) has a prominent focus on EU policies and programmes in the field of Health, also Science, Research and Innovation. Furthermore, CCI-E engages in an oncopolicy affairs extensively, having a planned and sustained interaction with EU policy-makers and other stakeholders to anticipate and proactively shape EU health and research policies on childhood cancer and survivorship issues.

CCI-E has regular proactive engagement with the Special Committee on Beating Cancer of the EU Parliament (BECA) and with the MEPs Against Cancer Interest Group (MAC). In addition, CCI-E together with childhood cancer community (SIOPE) is every September organizing a joint campaign on Childhood Cancer Awareness Month (CCAM). An important milestone was reaching when the European Parliament was illuminated in gold in September 2020, 2021, and 2022, in order to raise awareness on childhood cancer during the CCAM. CCI-E co-organizes an yearly event together with SIOP Europe, hosted by the MAC group as a virtual webinar on childhood cancer needs.

CCI-E, together with SIOPE, has a long-term close cooperation and fruitful dialogues with numerous MEPs and European Commission (DG Research) on childhood cancer challenges and unmet medical needs in Europe through many events, conferences and meetings (eg. International Childhood Cancer Day - ICCD event that is yearly organized by SIOPE in the European Parliament).

Areas of EU Health and Research of particular interest to CCI-E are: Cancer; Rare Cancers; Rare Diseases; Cancer Information Systems; Access to Healthcare; Access to Medicines; Innovative Treatments; Essential Medicines, Quality of (Health)Care; European Reference Networks (such as ERN PaedCan).

Specific legislative and related implementation acts that CCI-E actively influences include: Horizon Europe, Europe’s Beating Cancer Plan, Pharmaceutical Strategy for Europe, Paediatric and Orphan Regulations, EU4Health, follow-up to Joint Actions on Rare Cancers (JARC) as well as Cross-Border Healthcare Directive etc.

CCI-E as well follows and, when relevant to childhood cancers, engages in EU initiatives in the additional broad areas such as: Social Affairs, Internal Market and Industry, Skills and Education, Digital agenda, Mobility, Human Rights and Children’s Rights, Justice, Disability, Youth issues, Employment, Consumers, EU budget and the European Semester process.

http://ccieurope.eu

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No lobbyists with EP accreditations

None declared

Data not provided by Register Secretariat due to GDPR

Data not provided by Register Secretariat due to GDPR

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