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Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2022 - Dec 2022
Lobbyists (Full time equivalent)
5.25 Fte (6)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
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Info
European Multiple Sclerosis Platform (EMSP)
EU Transparency Register
431655212354-82 First registered on 29 Nov 2013
Goals / Remit
EMSP is the umbrella organisation representing 43 national member societies from 37 European countries.
EMSP’s vision is “a world without MS, achieved in partnership with people living with MS, their communities across Europe, and their allies”. Our mission is to bring together the unique expertise of our members and partners to drive critical, state-of-the-art research and advance MS-relevant policies and treatments and possible cure.
EMSP will strive for improved sustainable health and social care systems through its strategic goals: 1. To provide a robust platform for capacity building, 2. To strive for better access to treatments, therapies, and integrated care for people with MS across Europe, 3. To promote evidence-based good practice and effective health and social care, using digitalization and health data, 4. To strive for equity and social inclusion and social protection; and, 5. To support more and better investment of people and resources for MS research.Main EU files targeted
EMSP’s policy work is shaped by its over-arching goal of involvement of people with MS in all areas of EU policy, programmes and projects with an impact on health and disability. The European social and health policy landscape is becoming increasingly focused on broad themes and alliances, rather than on single conditions.
EMSP will work closely to provide expert policy support and use MS as an exemplar of long-term, disabling, neurological conditions.
EMSP activities align closely with the priorities set out in the EU Health Programme, as it seeks to increase awareness of early diagnosis, sharing evidence-based good practice, establishing an increase in medical expertise and pooling patient data for better healthcare outcomes. It focuses on the specific objectives of promoting health, contributing to more innovative and efficient health systems and facilitating better and safer healthcare for patients.
The MS Barometer 2020 highlights the five priority areas in the Health and Social care systems of concerns for people with MS across Europe:
1. Health care service delivery ;
2. Health information ;
3. Access to treatments and therapies;
4. Governance, leadership and health financing ;
5. Participation in society.
Other EU health initiatives:
- Horizon Europe which has a significant impact on the health research and the Innovative Health Initiative
- The European Commission's pharmaceutical strategy
- The European Health Data Space
- The EU Disability Strategy and subsequent policy development
- Action Plan on the European Pillar of Social Rights, Semester Process
- EP work on homelessness
- EU Gender Equality Strategy
- EU recovery and resilience facility
All our actions come as a consequence of our close consultations with our members and our activities are designed to improve the quality of life of people with MS in Europe. Recognising the value of our actions will make EMSP one of the key players in the field.Address
Head Office
Rue Auguste Lambiotte 144/8
Brussels 1030
BELGIUMEU Office
Rue Auguste Lambiotte 144/8
Brussels 1030
BELGIUMWebsite
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People
Total lobbyists declared
6
Employment time Lobbyists 100% 4 75% 1 50% 1 Lobbyists (Full time equivalent)
5.25
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 19 Mar 2024
Name Start date End Date Ms Elisabeth KASILINGAM 23 Jul 2020 23 Jul 2021 Mr Mate Laszlo TAGAJ 23 Nov 2018 23 Nov 2019 Ms Elisabeth KASILINGAM 21 Nov 2018 21 Nov 2019 Ms Andreea Antonovici 21 Feb 2017 14 Feb 2018 Ms Maggie Alexander 12 Mar 2016 22 Feb 2017 Mr Yves Brand 17 Nov 2015 12 Nov 2016 Ms Andreea Antonovici 09 Sep 2015 07 Sep 2016 Ms Maggie Alexander 04 Nov 2014 30 Oct 2015 Mrs Maggie Alexander 04 Nov 2014 27 Jan 2015 Ms Andreea Antonovici 26 Aug 2014 20 Aug 2015 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
EMSP is a member of:
* The European Federation for Neurological Associations (EFNA)
* The European Medicines Agency’s eligible organizations
*HTA stakeholders network
* The European Patients’ Forum (EPF)
* The European Disability Forum (EDF)
the EU Health coalitionMember organisations
- http://www.emsp.org/contact/our-members/
- http://www.emsp.org/members/full-members/
- http://www.emsp.org/members/associate-members/ -
Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2022 - Dec 2022
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
1,049,133€
Major contributions in closed year
None declared
Other financial info
The remainder of EMSP income for 2020 is from other sponsors (pharmaceutical companies, Membership fees received and subcontracting activities).
In 2020, EMSP was a project partner in a EU project, under Horizon 2020 research and innovation programme, grant agreement No. 721098 (2017-2021).
Our financial information is published yearly in our annual report, and on EMSP website in this section: http://annualreport.emsp.org/.
EMSP works within the framework of code of conduct to ensure its independence from its various sponsors and donors. -
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
Disability
Communication activities
EMSP will ensure that health systems across Europe provide the most innovative, efficient and sustainable care to all patients by identifying best practices across Europe and providing a platform to exchange experiences and ideas through EMSP’s convening events such as the annual conference.
One Million Mind Campaign and #justimagine campaign- The purpose of EMSP campaigns is to ensure supporters of the organization are motivated to continue to engage with EMSP, to garner further supporters to the voice of people affected by MS and to prompt engagement from potential allies across all sectors of society.
In order to achieve, its mission of improving the quality of life of people affected by MS, EMSP will adopt a multi-stakeholder approach to engage the MS community and broaden the reach to the general public. For this purpose, EMSP will develop a European engagement Campaign - vital in a very crowded EU Community. It is a way for EMSP to translate our activities into messaging; that will help reaching new supporters and challenge EMSP to refine its efforts to those that make maximum impact.
EMSP will work its campaign around the key international awareness days such that Brain Awareness week, the World MS Day, the International Disability day, Patients' rights day, etc. to enhance its messages and engage with the EU decision makers.
EMSP will also contribute as relevant to the different consultations that will be held by the European Commission or the European Medicines Agency to support improving decisions that affect the health and social care of people affected by MS. EMSP as a member of the European Patients' Forum contribute to consultations through their work.
EMSP also organised webinar directed to policy decision makers in collaboration with MEPs on specific thematic areas identified through the MS Barometer.Other activities
None declared
- Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 11 Oct 2019 Location Brussels Subject Health programme Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Arunas Vinciunas (Cabinet member)
- Meetings