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Overview
Lobbying Costs
None declared
Financial year: Jan 2014 - Dec 2014
Lobbyists (Full time equivalent)
5 Fte (7)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
European Alliance for Personalised Medicine (EAPM)
EU Transparency Register
594468910180-73 First registered on 24 Nov 2012
Goals / Remit
The purpose of the association is to brings together Europe’s leading healthcare experts, academic, clinical and industry-based, together with patient advocates to improve patient care by accelerating the development, delivery and uptake of personalised medicine and diagnostics.
Main EU files targeted
Personalised Medicine, Clinical Trials, Transparency Directive, Data Protection, In-Vitro Diagnostics, Horizon 2020, Big Data, Access, Translational Research
Address
Head Office
Rue De L'aqueduc 88A,, 88a
Ixelles,
Brussels 1050
BELGIUM -
People
Total lobbyists declared
7
Employment time Lobbyists 100% 3 75% 1 50% 2 25% 1 Lobbyists (Full time equivalent)
5
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 30 Apr 2024
Name Start date End Date Mr Sebastian Schee genannt Halfmann 18 Nov 2015 27 Feb 2016 Mr Denis Horgan 10 Nov 2015 27 Feb 2016 Ms Chiara Bernini 10 Nov 2015 27 Feb 2016 Mr Helmut BRAND 27 Jun 2015 27 Feb 2016 Mr Denis Horgan 30 Oct 2014 28 Oct 2015 Ms Elisabetta RINALDI 26 Jun 2014 30 Jul 2014 Ms Dominique Tudor 18 Jun 2014 16 Jun 2015 Mr Helmut BRAND 17 Jun 2014 13 Jun 2015 Mr Denis Horgan 15 Nov 2013 30 Oct 2014 Mr Denis Horgan 27 Nov 2012 15 Nov 2013 Complementary Information
None declared
Person in charge of EU relations
Mr Denis Horgan (EAPM Director)
Person with legal responsibility
Mr Gordon McVie (EAPM Secretary)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
European Cancer Patient Coalition(300),
International Diabetes Federation(20),
European Society of Medical Oncology(27),
EUROCAN Platform(40),
European Organisation for the Research Treatment of Cancer(40),
European Association of Urology(27),
European Association of Haemtalogy(27),
European Society of Radiology(27),
Pfizer(1),
Eli-Lilly(1),
Astra Zeneca (1),
EBE (1),
EDMA(20),
EuropaBio(20),
European Parkinson`s Disease Association (EPDA)(1),
Organisation of European Cancer Institutes (OECI)(1),
European Association for Cancer Research (EACR)(1),
Pharmacy Group of European Union (PGEU)(1),
Institute for Public Health Genomics (IPHG)(1),
Ecancer(1)
Bayer (1)
European Association of Nuclear Medicine (1) -
Financial Data
Closed financial year
Jan 2014 - Dec 2014
Lobbying costs for closed financial year
None declared
Other financial info
None declared
-
EU Structures
Groups (European Commission)
None
ACC
None
Groups (European Parliament)
None
Communication activities
Annual Conference, STEPs Interest Group of MEPs, Reports, Newsletters, Fact-Sheets, EP workshops, Regional Workshops, Conference booklets/reports
Other activities
The association will achieve its purpose by, among other activities creating an environment which promotes patient awareness of personalised medicines, facilitating patient access to personalized medicines, assisting stakeholder members in raising political awareness of their needs in the field of personalised medicine, fostering exchange of experience, policies and practices between organisations at the EU and member state level and taking the lead by advocating for an optimum regulatory environment
Meetings
Meetings
None declared