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Overview
Lobbying Costs
9,999€
Financial year: Jan 2015 - Mar 2015
Lobbyists (Full time equivalent)
1 Fte (4)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
European Platform for Patients’ Organisations, Science and Industry (EPPOSI)
EU Transparency Register
237806117704-74 First registered on 05 Jun 2015
Goals / Remit
Founded in 1994, the European Platform for Patients’ Organisations, Science and Industry (EPPOSI) is an independent, not-for-profit, partnership-based and multi-stakeholder organisation based in Brussels, Belgium. EPPOSI’s mission is to provide a multi-stakeholder consensus-driven perspective from European-facing umbrella patients’ organizations, science and industry to improve European public health outcomes.
Through knowledge exchange and dissemination of information and research, EPPOSI provides for consensus-driven, equally-weighted outcomes between the different stakeholder groups of its membership: patients' organisations, science and industry. These outcomes are shared with a broader EU public through events and meetings, publications, etc.
EPPOSI is open to members from EU-facing umbrella patients' organisations, commercial enterprises and their related trade bodies, research institutes, professional and business federations. Associate membership is open on nomination to NGOs representing a broad range of civil society interests, foundations and international organisations which support the EPPOSI ethos and are active in human healthcare.Main EU files targeted
Self-care
Health Technology Assessment (HTA)
eHealth
New-born screening
Active and Healthy Ageing (AHA)
BiobanksAddress
Head Office
Square de Meeûs 38/40
Bruxelles 1000
BELGIUMEU Office
Rue Antoine Danseart 18
Bruxelles 1000
BELGIUM -
People
Total lobbyists declared
4
Employment time Lobbyists 25% 4 Lobbyists (Full time equivalent)
1
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Mr John Wubbe (Secretary general)
Person with legal responsibility
Ms Lynne Van Poelgeest-Pomfret (Chair)
-
Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
N/A
Member organisations
Patients’ Organisations
-Association Non-au-Mercure-Dentaire
-CMTC-OVM
-European AIDS Treatment Group (EATG)
-European Digital Peer Patient Alliance (EuDiPPA)
-European Federation of Crohn's and ulcerative Colitis Associations (EFCCA)
-European Federation of Neurological Associations (EFNA)
-The European Prostate Cancer Coalition (Europa UOMO)
-European Society for Phenylketonuria and Allied Disorders (ESPKU)
-Global Alliance of Mental Illness Advocacy Networks (GAMIAN)
-International Patient Organisation for Primary Immunodeficiencies (IPOPI)
-Patients Network for Medical Research and Health (EGAN)
-Rare Diseases Europe (EURORDIS)
-Retina Suise/Retina International
-World Federation of Incontinent Patients (WFIP)
Science:
-Amsterdam Lysosome Center (SPHINX)
-Athena Institute
-Delft University of Technology (TU Delft)
-European Forum for Good Clinical Practice (EFGCP)
-European Organisation for Research and Treatment of Cancer (EORTC)
-European Society of Human Genetics (ESHG)
-Safarik University of Kosice
Industry:
-Baxter AG
-Bayer
-EuropaBio
-Janssen Pharmaceutica
-Medtech
-Medtronic International Trading Sarl
-MedWeb Ltd
-Pfizer -
Financial Data
Closed financial year
Jan 2015 - Mar 2015
Lobbying costs for closed financial year
9,999€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
None
ACC
None
Groups (European Parliament)
None
Communication activities
- self-care: Barometer 2013, Roundtable 2015
- HTA: White Paper 2013
- New born screening: Report 2014Other activities
None declared
- Meetings
Meetings
None declared
- Meetings