European Platform for Patients’ Organisations, Science and Industry

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2015
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No longer registered as of 17 Mar 2016 - Registration as it was on 06 Jun 2015
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The following entries are flagged as duplicates of this organisation: 987034016649-33

Overview

Lobbying Costs

9,999€

Financial year: Jan 2015 - Mar 2015

Lobbyists (Full time equivalent)

1 Fte (4)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    European Platform for Patients’ Organisations, Science and Industry   (EPPOSI)

    EU Transparency Register

    237806117704-74 First registered on 05 Jun 2015

    Goals / Remit

    Founded in 1994, the European Platform for Patients’ Organisations, Science and Industry (EPPOSI) is an independent, not-for-profit, partnership-based and multi-stakeholder organisation based in Brussels, Belgium. EPPOSI’s mission is to provide a multi-stakeholder consensus-driven perspective from European-facing umbrella patients’ organizations, science and industry to improve European public health outcomes.
    Through knowledge exchange and dissemination of information and research, EPPOSI provides for consensus-driven, equally-weighted outcomes between the different stakeholder groups of its membership: patients' organisations, science and industry. These outcomes are shared with a broader EU public through events and meetings, publications, etc.
    EPPOSI is open to members from EU-facing umbrella patients' organisations, commercial enterprises and their related trade bodies, research institutes, professional and business federations. Associate membership is open on nomination to NGOs representing a broad range of civil society interests, foundations and international organisations which support the EPPOSI ethos and are active in human healthcare.

    Main EU files targeted

    Self-care
    Health Technology Assessment (HTA)
    eHealth
    New-born screening
    Active and Healthy Ageing (AHA)
    Biobanks

    Address

    Head Office
    Square de Meeûs 38/40
    Bruxelles 1000
    BELGIUM
    EU Office
    Rue Antoine Danseart 18
    Bruxelles 1000
    BELGIUM
  • People

    Total lobbyists declared

    4

    Employment timeLobbyists
    25%4

    Lobbyists (Full time equivalent)

    1

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Mr John Wubbe (Secretary general)

    Person with legal responsibility

    Ms Lynne Van Poelgeest-Pomfret‏ (Chair)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    N/A

    Member organisations

    Patients’ Organisations
     -Association Non-au-Mercure-Dentaire
     -CMTC-OVM
     -European AIDS Treatment Group (EATG)
     -European Digital Peer Patient Alliance (EuDiPPA)
     -European Federation of Crohn's and ulcerative Colitis Associations (EFCCA)
     -European Federation of Neurological Associations (EFNA)
     -The European Prostate Cancer Coalition (Europa UOMO)
     -European Society for Phenylketonuria and Allied Disorders (ESPKU)
     -Global Alliance of Mental Illness Advocacy Networks (GAMIAN)
     -International Patient Organisation for Primary Immunodeficiencies (IPOPI)
     -Patients Network for Medical Research and Health (EGAN)
     -Rare Diseases Europe (EURORDIS)
     -Retina Suise/Retina International
     -World Federation of Incontinent Patients (WFIP)

    Science:
     -Amsterdam Lysosome Center (SPHINX)
     -Athena Institute
     -Delft University of Technology (TU Delft)
     -European Forum for Good Clinical Practice (EFGCP)
     -European Organisation for Research and Treatment of Cancer (EORTC)
     -European Society of Human Genetics (ESHG)
     -Safarik University of Kosice


    Industry:
     -Baxter AG
     -Bayer
     -EuropaBio
     -Janssen Pharmaceutica
     -Medtech
     -Medtronic International Trading Sarl
     -MedWeb Ltd
     -Pfizer

  • Financial Data

    Closed financial year

    Jan 2015 - Mar 2015

    Lobbying costs for closed financial year

    9,999€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    None

    ACC

    None

    Groups (European Parliament)

    None

    Communication activities

    - self-care: Barometer 2013, Roundtable 2015
    - HTA: White Paper 2013
    - New born screening: Report 2014

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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