European Platform for Patients’ Organisations, Science and Industry

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2015
2016
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No longer registered as of 26 Oct 2016 - Registration as it was on 12 Sep 2016
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The following entries are flagged as duplicates of this organisation: 237806117704-74

Overview

Lobbying Costs

37,500€

Financial year: Jan 2015 - Mar 2015

Lobbyists (Full time equivalent)

1 Fte (4)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    European Platform for Patients’ Organisations, Science and Industry   (EPPOSI)

    EU Transparency Register

    987034016649-33 First registered on 18 Mar 2015

    Goals / Remit

    Mission (Statutes EPPOSI Art. 3)
    Partnering for Healthcare solutions – Improving Health outcomes.
    Allocating limited resources in the society, to reduce the personal and public burden of disease.
    Creating value from the source; the citizen patients’ health data continuum.

    Vision
    EPPOSI’s nucleus is innovation in R&D Bio-banking, geno-type research and we see that finding a bio-marker is NOT yet far enough on the way to personalized medicine. For this reason EPPOSI goes further downstream towards the source; the population outside of the healthcare system.

    Defining the right time for an intervention by assessing the health literacy and awareness for prevention and self-care together with the frailty progressing citizen patient.

    Defining the triage point where we allocate the limited financial (public health) resources into an intervention in this cohort of citizens to enable them to stay part of society. With also adaptions of the home environment, the working place and public area to archive this. Reducing their Burden of disease and guaranteeing their equal right of quality of life.




    Founded in 1994, the European Platform for Patients’ Organisations, Science and Industry (EPPOSI) is an independent, not-for-profit, partnership-based and multi-stakeholder organisation based in Brussels, Belgium. EPPOSI’s mission is to provide a multi-stakeholder consensus-driven perspective from European-facing umbrella patients’ organizations, science and industry to improve European public health outcomes.
    Through knowledge exchange and dissemination of information and research, EPPOSI provides for consensus-driven, equally-weighted outcomes between the different stakeholder groups of its membership: patients' organisations, science and industry. These outcomes are shared with a broader EU public through events and meetings, publications, etc.
    EPPOSI is open to members from EU-facing umbrella patients' organisations, commercial enterprises and their related trade bodies, research institutes, professional and business federations. Associate membership is open on nomination to NGOs representing a broad range of civil society interests, foundations and international organisations which support the EPPOSI ethos and are active in human healthcare.

    Main EU files targeted

    Citizen Patient Health Data Continuum
    Digital Agenda
    Big Data
    Privacy IP Data
    Self-care Monitoring
    Health Technology Assessment (HTA)
    eHealth mHealth tele medicine
    New-born screening
    Active and Healthy Ageing (AHA) and AAL
    Biobanks

    Address

    Head Office
    38/40 Square De Meeûs
    Brussels 1000
    BELGIUM
    EU Office
    38/40 Square De Meeûs
    Brussels 1000
    BELGIUM
  • People

    Total lobbyists declared

    4

    Employment timeLobbyists
    25%4

    Lobbyists (Full time equivalent)

    1

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 12 May 2024

    Name Start date End Date
    Mr Jos Diaz van den Bogaard 30 Sep 2016 15 Nov 2016
    John Peter Mary Wubbe 02 Apr 2016 15 Nov 2016

    Complementary Information

    None declared

    Person in charge of EU relations

    Mr John Peter Mary Wubbe (Secretary General)

    Person with legal responsibility

    Mr John Peter Mary Wubbe (Secretary General)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    N/A

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2015 - Mar 2015

    Lobbying costs for closed financial year

    37,500€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    Access to Health
    Brain and Pain
    mHealth

    ACC

    None

    Groups (European Parliament)

    None

    Communication activities

    - self-care: Barometer 2013, Roundtable 2015
    - HTA: White Paper 2013
    - New born screening: Report 2014
    EPPOSI programs 2017-2018:

    1. Digital Health & Care Innovation; added value on connecting ecosystems.
    2. Citizen Patient (Health) Data Continuum; Ownership, consolidation & Valuation
    3. Prevention and Self-care; Digital Triage and Barometer for Health literacy
    4. Real world evidence for Rare -, Chronic Disease Research
    5. (r)HTA / REA. Rapid Assessments on Effectiveness &impact on burden of disease

    Other activities

    No

  • Meetings

    Meetings

    None declared

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