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Overview
Lobbying Costs
37,500€
Financial year: Jan 2015 - Mar 2015
Lobbyists (Full time equivalent)
1 Fte (4)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
European Platform for Patients’ Organisations, Science and Industry (EPPOSI)
EU Transparency Register
987034016649-33 First registered on 18 Mar 2015
Goals / Remit
Mission (Statutes EPPOSI Art. 3)
Partnering for Healthcare solutions – Improving Health outcomes.
Allocating limited resources in the society, to reduce the personal and public burden of disease.
Creating value from the source; the citizen patients’ health data continuum.
Vision
EPPOSI’s nucleus is innovation in R&D Bio-banking, geno-type research and we see that finding a bio-marker is NOT yet far enough on the way to personalized medicine. For this reason EPPOSI goes further downstream towards the source; the population outside of the healthcare system.
Defining the right time for an intervention by assessing the health literacy and awareness for prevention and self-care together with the frailty progressing citizen patient.
Defining the triage point where we allocate the limited financial (public health) resources into an intervention in this cohort of citizens to enable them to stay part of society. With also adaptions of the home environment, the working place and public area to archive this. Reducing their Burden of disease and guaranteeing their equal right of quality of life.
Founded in 1994, the European Platform for Patients’ Organisations, Science and Industry (EPPOSI) is an independent, not-for-profit, partnership-based and multi-stakeholder organisation based in Brussels, Belgium. EPPOSI’s mission is to provide a multi-stakeholder consensus-driven perspective from European-facing umbrella patients’ organizations, science and industry to improve European public health outcomes.
Through knowledge exchange and dissemination of information and research, EPPOSI provides for consensus-driven, equally-weighted outcomes between the different stakeholder groups of its membership: patients' organisations, science and industry. These outcomes are shared with a broader EU public through events and meetings, publications, etc.
EPPOSI is open to members from EU-facing umbrella patients' organisations, commercial enterprises and their related trade bodies, research institutes, professional and business federations. Associate membership is open on nomination to NGOs representing a broad range of civil society interests, foundations and international organisations which support the EPPOSI ethos and are active in human healthcare.Main EU files targeted
Citizen Patient Health Data Continuum
Digital Agenda
Big Data
Privacy IP Data
Self-care Monitoring
Health Technology Assessment (HTA)
eHealth mHealth tele medicine
New-born screening
Active and Healthy Ageing (AHA) and AAL
BiobanksAddress
Head Office
38/40 Square De Meeûs
Brussels 1000
BELGIUMEU Office
38/40 Square De Meeûs
Brussels 1000
BELGIUM -
People
Total lobbyists declared
4
Employment time Lobbyists 25% 4 Lobbyists (Full time equivalent)
1
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 12 May 2024
Name Start date End Date Mr Jos Diaz van den Bogaard 30 Sep 2016 15 Nov 2016 John Peter Mary Wubbe 02 Apr 2016 15 Nov 2016 Complementary Information
None declared
Person in charge of EU relations
Mr John Peter Mary Wubbe (Secretary General)
Person with legal responsibility
Mr John Peter Mary Wubbe (Secretary General)
-
Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
N/A
Member organisations
None declared
-
Financial Data
Closed financial year
Jan 2015 - Mar 2015
Lobbying costs for closed financial year
37,500€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
Access to Health
Brain and Pain
mHealthACC
None
Groups (European Parliament)
None
Communication activities
- self-care: Barometer 2013, Roundtable 2015
- HTA: White Paper 2013
- New born screening: Report 2014
EPPOSI programs 2017-2018:
1. Digital Health & Care Innovation; added value on connecting ecosystems.
2. Citizen Patient (Health) Data Continuum; Ownership, consolidation & Valuation
3. Prevention and Self-care; Digital Triage and Barometer for Health literacy
4. Real world evidence for Rare -, Chronic Disease Research
5. (r)HTA / REA. Rapid Assessments on Effectiveness &impact on burden of diseaseOther activities
No
- Meetings
Meetings
None declared
- Meetings