Download this datacard
Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2022 - Dec 2022
Lobbyists (Full time equivalent)
7 Fte (12)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
European Society for Immunodeficiencies (ESID)
EU Transparency Register
482178845531-68 First registered on 15 Feb 2022
Goals / Remit
The European Society for immunodeficiencies (ESID) is a non for profit association that was created in 1994. ESID has been striving to improve the knowledge in the field of Primary Immunodeficiency (PID) by encouraging research, developing educational programs and fostering cooperation among all those involved in the diagnosis, treatment and management of these diseases.
Main EU files targeted
Any health initiatives relating to immunodeficiencies, neonatal screening, COVID19, GDPR.
Address
Head Office
Mijnbouwstraat 23 2628 RV Delft
Delft 2628
NETHERLANDSEU Office
Mijnbouwstraat 23 2628 RV Delft
Delft 2628
NETHERLANDSWebsite
-
People
Total lobbyists declared
12
Employment time Lobbyists 100% 1 75% 2 50% 9 Lobbyists (Full time equivalent)
7
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
The board is all on voluntary non paid basis, and comprises of 11 doctors supported by an executive director.
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
IAPIDS alliance - The International Alliance for Primary Immunodeficiency Societies
ERN-RITA - leading European centres with expertise in diagnosis and treatment of rare immunological disorders.
EBMT -The European Society for Blood and Marrow Transplantation (EBMT)Member organisations
None declared
-
Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2022 - Dec 2022
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
406,317€
Major funding types in closed year
Grants, Other, Member's contribution
Funding types "other" information
Major contributions in closed year
Type Name Amount Contribution Pharming 75,000€ Other financial info
ESID supports itself from membership payments and grants for research.
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Neonatal screening day - promotion of preamptive discovery of immunodeficiencies within newborns
Research done into the affect of COVID 19 on patients with immunodeficiencies
Educational initiatives throughout developing countries to raise awareness and methods to deal with immunodeficiencies
Global educational initiatives to promote Junior doctors and researchers, in developing and non developing countries.
Publication of guidelines to support doctorsOther activities
None declared
Meetings
Meetings
None declared