Overview
Lobbying Costs
None declared
None declared
Lobbyists (Full time equivalent)
2 Fte (6)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
GBS|CIDP España- Polineuropatías Inmunomediadas (GBS|CIDP España)
EU Transparency Register
154198937271-72 First registered on 08 Feb 2020
Goals / Remit
We foster a supportive community for dysimmune polyneuropathy patients and their families and aim at improving quality of life, advancing research and patient and disability advocacy.
Main EU files targeted
Public Health, Rare Diseases, Rare Disease Patient Registry, patient empowerment. Disability rights and empowerment.
Address
Head Office
C/ Pinos de Osuna, 2. Bajo A
Madrid 28042
SPAIN -
People
Total lobbyists declared
6
Employment time Lobbyists 50% 2 25% 4 Lobbyists (Full time equivalent)
2
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
http://gbs-cidp.org.es
Member organisations
None declared
-
Financial Data
Closed financial year
None declared
Lobbying costs for closed financial year
None declared
Other financial info
None declared
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Not yet.
Other activities
None declared
Meetings
Meetings
None declared