Pulmonary Hypertension Association Europe - Europäische Arbeitsgruppe für Lungenhochdruck (PHA Europe)

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2021
2022
2023
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Registration as it was on 09 Feb 2024
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Overview

Lobbying Costs

50,000€ - 99,999€

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

0.25 Fte (1)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    Pulmonary Hypertension Association Europe - Europäische Arbeitsgruppe für Lungenhochdruck (PHA Europe)   (PHAE)

    EU Transparency Register

    432824341542-09 First registered on 15 Mar 2021

    Goals / Remit

    The aims of PHA Europe are summarized in its position paper, “Call to Action” which identifies the main unmet needs of persons living with pulmonary hypertension and recommends effective ways to address those needs.

    The main areas for action are the followings:

    improve access to expert care
    improve awareness and screening
    encourage clinical research and innovation
    empower patient groups
    ensure the availability of psychosocial support

    Main EU files targeted

    EU Health Programme
    EU's Data Strategy and AI
    Directive 2011/24/EU of the European Parliament and of the Council of 9 March 2011 on the application of patients’ rights in cross-border healthcare

    Address

    Head Office
    PHA Europe Wilhelmstraße 21
    Wien 1120
    AUSTRIA
    EU Office
    PHA Europe Wilhelmstraße 21
    Wien 1120
    AUSTRIA

    Website

  • People

    Total lobbyists declared

    1

    Employment timeLobbyists
    25%1

    Lobbyists (Full time equivalent)

    0.25

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    https://www.phaeurope.org/get-involved/advocacy-policy-work/partnerships/

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    50,000€ - 99,999€

    Major contributions in closed year

    None declared

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    50,000€ - 99,999€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    MEP Lung Health Group - https://www.ersnet.org/news-and-features/news/lung-health-group-in-the-european-parliament-formally-launched-in-ers-advocacy-event/

    MEP Interest Group on Equitable Access to Healthcare - https://eupatientaccess.eu/?page_id=92

    Communication activities

    We are planning to organize&participate in various events where MEPs, representatives from DG Sante/Research will be present.

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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