Youth Cancer Europe

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Registration as it was on 24 Aug 2023
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Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

1.1 Fte (4)

Lobbyists with EP accreditation

0

High-level Commission meetings

2

Lobbying Costs over the years

  • Info

    Youth Cancer Europe   (YCE)

    EU Transparency Register

    988772631423-40 First registered on 02 May 2018

    Goals / Remit

    Youth Cancer Europe is made up of a network of youth cancer organisations from across Europe, focusing on the most urgent unmet needs of young people with cancer:

    -- Working towards age appropriate and equal access to effective cancer treatment across Europe;
    -- Improving long term follow-up and the quality of life of cancer survivors;
    -- Creating a network of patient advocates to increase the political and regulatory influence of young people with cancer.

    Youth Cancer Europe fosters direct contact between different collectives, ensuring that the voices of patients and survivors become a key part of how treatment and after-care is shaped across the continent. The organisation is committed to speak with a single representative voice of young people with cancer and together with other relevant stakeholders, through strategic partnerships in Europe, engage with EU policy-makers to influence European health and research policies.

    Youth Cancer Europe prepares young people (...)

    Main EU files targeted

    Areas of EU Health and Research currently followed by Youth Cancer Europe are: Cancer; Rare diseases, Heath systems and services, Personalised medicine, Environment and Health, Public Health, Global Partnership

    Youth Cancer Europe also follows the following EU initiatives and actions: Horizon 2020, Innovative Medicines Initiative, Patients’ rights in Cross-border healthcare, European Reference Networks, eHealth, Health Technology Assessment, Health systems performance assessment as well as initiatives in the areas of Promoting good health, Nutrition and physical activity and Mental health and the legislative area of Pharmaceuticals and medical devices.

    Address

    Head Office
    Calea Manastur 42B
    Cluj-Napoca
    ROMANIA
    EU Office
    Calea Manastur 42B
    Cluj-Napoca
    ROMANIA

    Website

  • People

    Total lobbyists declared

    4

    Employment timeLobbyists
    50%1
    25%2
    10%1

    Lobbyists (Full time equivalent)

    1.1

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 21 Apr 2024

    Name Start date End Date
    Ms Katalin RIZVINE LEHOCZKY 04 Sep 2018 01 Sep 2019

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    YCE is not a member of any umbrella organisations

    YCE is collaborating in the following networks:
    - https://wecanadvocate.eu
    - https://www.europeancancer.org (several focused topic networks)
    - https://www.euhealthcoalition.eu

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    612,399€

    Major funding types in closed year

    Grants, EU funding, Donations

    Major contributions in closed year

    TypeNameAmount
    Contribution Bristol Myers Squibb 45,000€
    Contribution Novartis 20,000€
    Contribution Peace Boat Disaster Relief 18,500€
    Contribution Bayer 10,384€
    Contribution Union for International Cancer Control 13,666€
    Contribution EU4H Grant (see below for details) 430,037€
    Contribution HORIZON Grant (see below for details) 62,160€
    Grant EU4H Grant Agreement number 101056918 - EUCAYASNET 430,037€
    Grant HORIZON Grant Agreement number 101057482 - Strong-AYA 62,160€

    Major contributions in current year

    TypeNameAmount
    Grant EU4H Grant Agreement No. 101080048 - smartCARE 11,222€
    Grant HORIZON Grant Agreement number 101097036 - ONCOSCREEN 51,108€
    Grant EU4H Grant Agreement Number 101080046 - PROTECT EUROPE 2,516€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Cancer

    Communication activities

    Relevant projects:
    Youth Cancer Europe Open Space Summit 2014, Bucharest
    Youth Cancer Europe Advocacy Masterclass 2015, Cluj-Napoca
    Youth Cancer Europe @ Untold Music Festival manifestation 2015
    Youth Cancer Europe Patient Summit 2017, Vilnius
    YCE Structured Training on the Fundamentals of EU Policymaking, 2018 Brussels
    European Parliament policy event on financial discrimination of long term cancer survivors, October 2018, Brussels
    Youth Cancer Europe Leadership Summit, July 2019, Budapest
    European Parliament policy event on cross border health, November 2019, Brussels
    European Beating Cancer Plan public consultation launch, Key note speech in European Parliament Hemicycle, February 2020
    European Parliament BECA hearing, January 2021 (Fertility / Mental Health)
    European Parliament BECA hearing, April 2021 (Cross Border Health)
    EPP hearing (The Right to Be Forgotten), May 2021
    Cancer & Fertility: a YCE advocacy project, 2021 - 2022
    Cancer in time of war: Ukraine war crisis response operations, 2022

    Relevant PR & Communication Activities as well as publications:
    Open Space Summit Key Outcomes Report 2014 December
    The Role of Youth in Cancer Policy, YouTube videos since 2016
    Young cancer patients advocate for improved care September 5, 2017 article in The BMJ
    Youth Cancer Europe: White Paper, October 2018
    Chemo Brain: Cancer & Mental Health Webinar, January 2021
    Cannabis & Cancer: Let's Clear the Smoke! Webinar, April 2021

    Other activities

    None declared

  • Meetings

    Meetings

    2 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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