Drugs for Neglected Diseases initiative

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Registration as it was on 25 Sep 2023
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Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

0.6 Fte (6)

Lobbyists with EP accreditation

0

High-level Commission meetings

3

Lobbying Costs over the years

  • Info

    Drugs for Neglected Diseases initiative   (DNDi)

    EU Transparency Register

    66666589895-96 First registered on 18 Oct 2012

    Goals / Remit

    Founded in 2003 to address the needs of patients with the most neglected diseases, DNDi is a collaborative, patients’ needs-driven, not-for-profit drug R&D organization.

    The vision of the organization is to improve the quality of life and the health of people suffering from neglected diseases by using an alternative model to develop drugs for these diseases and by ensuring equitable access to new and field-relevant health tools.

    In this not-for-profit model, driven by the public sector, a variety of players collaborate to raise awareness of the need to research and develop drugs for those neglected diseases that fall outside the scope of market-driven R&D. They also build public responsibility and leadership in addressing the needs of these patients.

    Main EU files targeted

    Advocacy of global policy related to neglected diseases; political leadership, sustainable financing, and sound public policies for R&D in neglected diseases; treatment development for neglected diseases; strengthening of research capacities in low- and middle-income countries.

    Following and contributing to policies involved in shaping EDCTP2 and EDCTP3, Horizon H2020, Innovative Medicines Initiative (IMI2) and Product Development Partnership (PDP) forum and EU research funding policies.

    Focus on EU commission and other key institutions to gather political support to develop a sustainable global framework for innovations of public health importance

    Address

    Head Office
    Chemin Camille-Vidart, 15
    Geneva 1202
    SWITZERLAND
    EU Office
    Chemin Camille-Vidart, 15
    Geneva 1202
    SWITZERLAND

    Website

    http://www.dndi.org

  • People

    Total lobbyists declared

    6

    Employment timeLobbyists
    10%6

    Lobbyists (Full time equivalent)

    0.6

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    3 DNDi staff members working in relation to EU policy. They are in the External Relations team (2) and in the Policy and Advocacy team (1). In total it amounts to 3 people dedicating 20% of their time to matters related to the EU.

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    Swiss Alliance against Neglected Tropical Diseases (SANTD)
    https://santd.ch/
    German NTD network
    https://dntds.de/members-observers.html
    Global health Hub but again
    https://www.globalhealthhub.de/de/ueber-den-hub/mitglieder
    WIPO
    https://www.wipo.int/members/en/organizations.jsp?type=NGO_INT

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    75,919,995€

    Major funding types in closed year

    Grants

    Major contributions in closed year

    TypeNameAmount
    Contribution German Federal Ministry of Education and Research (BMBF) through KfW 9,803,161€
    Contribution Wellcome 8,266,215€
    Contribution Bill & Melinda Gates Foundation 9,654,198€
    Grant H2020 and EDCTP 4,718,625€

    Major contributions in current year

    TypeNameAmount
    Grant H2020 and EDCTP 7,105,916€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    N/A

    Communication activities

    Participation at EU conferences, Research and Innovation forums, EDCTP forums. Communications activities in close collaboration with EDCTP projects running at DNDi and their partners.

    Other activities

    Participation in EU conferences
    Participation in EU consultations on EU funding programmes and EU policies

  • Meetings

    Meetings

    3 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

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