European Critical Care Foundation

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Registration as it was on 09 Mar 2016
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Overview

WARNING: As this organisation lists one or more EP accredited lobbyists, it may not be probable that its lobbying costs are lower than €10,000.

Lobbying Costs

9,999€

Financial year: Jan 2014 - Dec 2014

Lobbyists (Full time equivalent)

1 Fte (1)

Lobbyists with EP accreditation

0

High-level Commission meetings

1

Lobbying Costs over the years

  • Info

    European Critical Care Foundation   (ECCF)

    EU Transparency Register

    629399213322-51 First registered on 24 Mar 2014

    Goals / Remit

    The European Critical Care Foundation is an independent foundation established to improve the care of critically ill people across Europe. ECCF works to increase understanding of the organisation and delivery of critical care, raise awareness of factors that lead to unequal and inequitable outcomes, and trigger action across Europe to overcome those barriers.

    ECCF looks at particular critical conditions and services and works by:
    • Identifying, through evidence-based, multidisciplinary research, the non-medical factors that influence the delivery of care to critically ill patients. These may include physical and administrative infrastructures, institutions and economics, public attitudes and awareness.
    • Developing recommendations in partnership with key stakeholders, which if implemented, would lead to improved outcomes for patients.

    • Initiating targeted advocacy activities in the EU institutions, in collaboration with partners at both EU and national level to improve the delivery of care.

    Topics addressed by ECCF include:

    ‘Improving Access to Primary Angioplasty’: This work looked into the structural factors that limit the delivery of primary angioplasty to treat acute heart attack patients in Europe and which therefore increase mortality and morbidity in those patients. These factors result in variations in outcomes across Europe, despite studies which indicate that this is a clinically-proven best treatment.

    ECCF’s work on extremely pre-term births, entitled ‘Outcomes in the Eye of the Beholder’ looked at the factors limiting decision-making for extremely premature infants. Decision-making guidelines vary widely across Europe and may have very different consequences for the patient, their families and society. ECCF aims to highlight these disparities, and develop recommendations relating to neonatal policies and practices that better support decision-makers in these critical situations.

    in 2015, ECCF looked at the decline in the use of autopsy procedures across Europe and asked whether this trend is depriving medical science of information that is needed to feed back into more accurate diagnoses of critically ill patients. The aim of the project is to improve understanding of the reasons for, and implications of the decline in this procedure.

    In 2016, has started a new workstream looking to improve outcomes for critically ill children. The project looks at different points in the care pathway where implementation of evidence-based medicine could make a significant difference to outcomes - optimal orientation and management of critically ill children in pre-hospital settings; implementation of paediatric guidelines in the management of sepsis; and the need for a registry of paediatric intensive care as a basis for improving standards of care across Europe.

    Other topics to be addressed this year include: a comparative study of stroke services across Europe and continuity of care in perioperative medicine.

    ECCF has joined the Integrated Care Working Group of the European Innovation Partnership on Active and Healthy Ageing and will promote the role of optimal care at the 'critical' end of the care continuum in reducing the risk of developing chronic conditions and future needs for medical treatment and care.

    Looking ahead, ECCF plans to develop the portfolio of critical care issues that it addresses. We address topics which reveal hidden problems, areas of medical and scientific practice that are misunderstood or neglected, for a variety of largely non-medical reasons ranging from organisational and administrative issues, to cultural and ethical factors. They merit out attention because they have the potential to bring significant improvements to patients, healthcare providers and other stakeholders through the application of our particular multi-disciplinary approach.

    Main EU files targeted

    Quality and Safety of Care
    Cross-Border Healthcare Directive
    Integrated Care
    Revision of the Paediatric Regulation

    Address

    Head Office
    rue du Rhône, 100
    Geneva 1211
    SWITZERLAND
  • People

    Total lobbyists declared

    1

    Employment timeLobbyists
    100%1

    Lobbyists (Full time equivalent)

    1

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 09 Mar 2016

    Name Start date End Date
    Ms Helen Brewer 22 May 2014 05 Jun 2015

    Complementary Information

    The Foundation Manager regularly attends meetings and events in the EU institutions to learn and share information. ECCF Board members participate in events in the parliament organised on an occasional basis by ECCF.

    Person in charge of EU relations

    Ms Helen Brewer (Foundation Manager)

    Person with legal responsibility

    Mr John Martin (President)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    ECCF’s work is grounded in rigorous scientific and academic research. Each project is anchored by individuals or institutions with in-depth knowledge of the interface between the medical issue at hand and the non-medical factors influencing outcomes. These include University College London, Aarhus University Hospital Denmark, and Imperial College London, as well as think-tanks such as the Nuffield Council on Bioethics and the European Observatory on Health Systems and Policies.

    ECCF works in close collaboration with patient and professional organisations to raise awareness on delivery of critical care and ensuring optimal outcomes. These include the Stent for Life Initiative and the European Foundation for the Care of Newborn Infants, whose networks and activities in EU Member States complement ECCF’s main focus on EU institutions and the Brussels health policy community.

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2014 - Dec 2014

    Lobbying costs for closed financial year

    9,999€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    None

    ACC

    None

    Groups (European Parliament)

    None

    Communication activities

    The main focus of 2014 activities was on improving access to best therapy for acute heart attack patients:

    ECCF published a survey of ten European countries, examining the current extent of mobility of acute heart attack patients and identify the main barriers in selected cross-border settings. The survey revealed a surprising absence of collaborative agreements and lack of implementation of existing bilateral agreements for this critical condition.
    Disseminating the findings to more than 500 policymakers, healthcare professionals, industry and patient groups, ECCF called on all stakeholders to support the development of bi-lateral agreements and protocols designed to share best practices and raise standards to the level of the best performing Member States, in order to make timely access to best treatment for acute heart attack patients a reality, wherever they are located across Europe.
    ECCF’s chairman, Professor John Martin, made the case for cross border access to primary angioplasty in a brief video (Heartlands) in collaboration with the European Commission.
    Building on earlier initiatives to establish STEMI networks across borders between Italy, Slovenia and Croatia, ECCF held a high level, multi-stakeholder workshop in Trieste in October, hosted by the Friuli Venezia Giulia region in Italy, with the objective of achieving full collaboration across these borders.
    ECCF was invited to participate as a keynote speaker to an event sponsored by the Italian Presidency on cross-border health cooperation which took place in Q4 2014.
    ECCF presented the findings of the survey at a number of events, including alliance partner Stent for Life Initiative’s annual meeting in Prague, at EuroPCR, and the annual interventional cardiology congress in Paris.
    At the invitation of DG SANCO Deputy Director Martin Seychell, ECCF provided a briefing document outlining the case for optimal treatment of acute myocardial infarction as a prerequisite for reducing the human and economic burden of heart failure in Europe.

    In a related initiative, ECCF supported the Written Declaration on improving early diagnosis of cardiovascular diseases among women, initiated by MEP Mrs Danuta Jazlowiecka. Lack of awareness among women and healthcare professionals about CVD symptoms and risk factors is believed to be a major reason for inequities and inequalities in cardiovascular disease outcomes in women.

    ECCF also continued its work looking at factors influencing decision-making on behalf of extremely premature infants:
    ECCF published an article in the peer-reviewed Archives of Disease in Childhood. The paper was the result of an earlier, multi-stakeholder meeting that identified differences in neonatal decision-making guidelines, as a significant factor contributing to unequal and inequitable outcomes for pre-term infants across Europe.
    ECCF identified a real need to improve the communication and support that parents receive during their time in the NICU as well as recognising that management practices need to better support the healthcare professionals themselves. See our video, Outcomes in the Eye of the Beholder about this work.

    The main channel for feeding these recommendations into EU policy discussions was through the public consultation process initiated by the European Commission, on the Preliminary Opinion on a possible EU agenda on the Quality of Healthcare in September 2014. ECCF also contributed to the Chronic Disease Reflection Process earlier in the year.

    In 2015 ECCF held it's first Critical Care Day, bringing a variety of topics at the 'critical' end of the care continuum to the attention of policymakers and other stakeholders.

    A key area for activity in 2016 is the Integrated Care Working Group of the European Innovation Partnership on Active and Healthy Ageing, where ECCF will promote the role of optimal treatment and care at a pont in time when it can make a real difference to patient outcomes.

    Other activities

    None declared

  • Meetings

    Meetings

    1 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

    • Date 25 Apr 2016 Location Brussels
      Subject Cooperation in the area of acute care
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Annika Nowak (Cabinet member)
      Other Lobbyists
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