European Pulmonary Fibrosis Federation

The Association serves the following social and scientific non-profit aims, of international utility:

a) Supporting an immediate and sustainable improvement of the quality of life and survival time of IPF patients, and of patients suffering from other interstitial lung diseases, through directly influencing pharmacological and medical research and development, as well as the access to non-pharmacological assistance for patients.

b) Defending the interests of IPF patients at European level with emphasis on:

- access to treatment and services, including non-pharmacological treatment and medication
- access to information on new and current trials
- promotion of research into new treatment/medication
- information exchange and collaboration between European and international IPF patient associations
- supporting the establishment of patient associations in countries where no such associations exist

To achieve these goals, the association will undertake the following (...)

Defending the interests of IPF patients at European level with emphasis on:
- access to treatment and services, including non-pharmacological treatment and medication
- access to information on new and current trials
- promotion of research into new treatment/medication
- information exchange and collaboration between European and international IPF patient associations
- supporting the establishment of patient associations in countries where no such associations exist

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No lobbyists with EP accreditations

Liam Galvin is the EU-IPFF Secretary and his voluntary contribution to the work of the federation is unpaid.

Data not provided by Register Secretariat due to GDPR

Data not provided by Register Secretariat due to GDPR

III - Non-governmental organisations

Non-governmental organisations, platforms and networks and similar