European Parkinson's Disease Association

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2011
2012
2013
2014
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Registration as it was on 05 Oct 2012
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The following entries are flagged as duplicates of this organisation: 073833319732-61

Overview

Lobbying Costs

125,000€

Financial year: Jan 2011 - Dec 2011

Lobbyists (Full time equivalent)

None declared

Lobbyists with EP accreditation

2

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    European Parkinson's Disease Association   (EPDA)

    EU Transparency Register

    04778646924-03 First registered on 12 Oct 2011

    Goals / Remit

    The EPDA is the only European umbrella organisation for
    Parkinson’s disease and represents 45 member organisations
    advocating for the rights and needs of more than 1.2
    million people with Parkinson’s and their families.
    What does the epda do?
    By working with its member organisations, who represent the
    needs of individual people with Parkinson’s and their families at a national level, the EPDA aims to:
    - ensure equal and timely access to prompt diagnosis and
    good-quality Parkinson’s disease care across Europe by
    raising standards and reducing existing inequalities
    - increase public awareness of Parkinson’s disease as a
    priority health challenge
    - help reduce stigma and remove discrimination against
    people with Parkinson’s disease
    - support the development of national Parkinson’s disease
    organisations throughout Europe.

    Main EU files targeted

    Address

    Head Office
    Northumberland Avenue
    London WC2N 5BW
    UNITED KINGDOM
  • People

    Total lobbyists declared

    None declared

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    2 accreditations were / are live (in bold) for the selected state of 05 Oct 2012

    Name Start date End Date
    Ms HEATHER CLARKE 07 Nov 2014 12 Dec 2014
    Ms HEATHER CLARKE 23 Oct 2013 22 Oct 2014
    Mrs Amanda Worpole 19 Mar 2013 16 Mar 2014
    Mr David Tanoh 11 Jan 2013 09 Aug 2013
    Ms HEATHER CLARKE 11 Oct 2012 06 Oct 2013
    Mrs Silvia BOTTARO 20 Feb 2012 01 Nov 2012
    Mrs Heather CLARKE 20 Feb 2012 01 Nov 2012

    Complementary Information

    None declared

    Person in charge of EU relations

    None declared

    Person with legal responsibility

    Mrs Amanda Worpole (Interim Secretary General)

  • Categories

    Category

    III - Non-governmental organisations

    Subcategory

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    None declared

    Member organisations

    None declared

  • Financial Data

    Closed financial year

    Jan 2011 - Dec 2011

    Lobbying costs for closed financial year

    125,000€

    Other financial info

    Please refer to the EPDA's 2011/2012 Annual Report:
    http://www.epda.eu.com/en/about-the-epda/our-organisation/annual-reports/

  • EU Structures

    Groups (European Commission)

    None declared

    Groups (European Parliament)

    None declared

    Communication activities

    None declared

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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