Overview
Lobbying Costs
8,000€
Financial year: Jan 2017 - Dec 2017
Lobbyists (Full time equivalent)
6 Fte (14)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
Inspire2Live
EU Transparency Register
272486517947-03 First registered on 23 Jun 2015
Goals / Remit
The international Inspire2Live Patient Advocates organization inspires people (patients, clinicians and researchers), without limitations, to work together to get cancer under control by 2021 and to lead happy and healthy lives in harmony with cancer. Our Patient Advocates are leading in this process.
We strongly believe that every patient, researcher and clinician can initiate the change they want to see.
Our motto is “Never, ever quit!”
In memory of those who died too young of cancer and to inspire those who are fighting it.
We have a mission:
Getting cancer under control and inspiring people to lead Happy and Healthy lives in Harmony with cancer!
How Do We Operate
Inspire2Live is a patient advocacy organization. The purpose of Inspire2Live is get cancer under control by 2021. We believe that this is feasible when patients, physicians and scientists work together to share knowledge, data and inspiration together. Currently, there is a very unhealthy competition between faculties, research groups and universities. Inspire2Live brings these various parties together with very well-informed patients. In this context we work to optimize the processes so that new ideas, therapies and treatments are more quickly available to patients in the Netherlands but eventually worldwide.Main EU files targeted
Privacy, Gezondheid (Innovatie in de zorg),Voedselveiligheid, Geneesmiddelen (ontwikkeling en veiligheid), Internationale samenwerking in de zorg
Address
Head Office
Noorderakerweg 271B
Amsterdam 1069 LT
NETHERLANDS -
People
Total lobbyists declared
14
Employment time Lobbyists 100% 2 50% 4 25% 8 Lobbyists (Full time equivalent)
6
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Mr Herman Otten (Public- & European Affairs)
Person with legal responsibility
Mr Tielo Jongmans (bestuurder)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
None declared
Member organisations
None declared
-
Financial Data
Closed financial year
Jan 2017 - Dec 2017
Lobbying costs for closed financial year
8,000€
Other financial info
Kosten zijn voornamelijk reis en verblijfkosten.
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
None
Communication activities
De oprichters van Alpe d'HuZes en Ven2 4Cancer MySmallStep.com en Ice4Life. Projectontwikkeling en fundraising ter realisering van de missie: Getting cancer under control and inspiring people to lead Happy and Healthy lives in Harmony with cancer!
Focus op toegang tot de beste zorg voor iedereen in Europa, inclusief vergoeding en toegang tot trials in alle lidstaten. Daarnaast betaalbare medicijnen via initiatieven rond magistrale bereiding en MyTomorrows.Other activities
Inspire2Live is een unieke patiënt advocacy netwerkorganisatie die bestaat uit (ex-)patiënten, medisch onderzoekers, artsen, wetenschappers en farmaceuten op een wereldwijd niveau. Hierdoor kan kennis snel gedeeld worden en benut worden. Op basis van de zo opgebouwde expertise en de expertise binnen ons wereldwijde netwerk, streven wij er naar om daar waar mogelijk ook de Europese Instituties van dienst te zijn bij vraagstukken die aan onze missie raken.
Meetings
Meetings
None declared