Overview
Lobbying Costs
50,000€ - 99,999€
Financial year: Jan 2021 - Dec 2021
Lobbyists (Full time equivalent)
2.25 Fte (8)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
-
Info
Lung Cancer Europe (LuCE)
EU Transparency Register
112188222754-11 First registered on 21 Jul 2016
Goals / Remit
LuCE is committed at increasing the survival rates and the improvement of health related quality of life of lung cancer patients in Europe.
Our 4 Key Goals:
Increase awareness of lung cancer
To ensure equitable access to the best possible treatment
Reduce lung cancer mortality by driving earlier detection and biomarker testing
Equality of holistic care for lung cancer throughout EuropeMain EU files targeted
We work with our partner groups in Europe to support patients, survivors and caregivers, to raise awareness on the lack of funds and resources for lung cancer. A key focus is to advocate for equal access to Lung Cancer diagnostics and treatments across all EU countries. Over the past 6 years, LuCE has produced 6 reports and presented these at organized events hosted by MEP's to highlight the level of inequity in Europe affecting those living with a lung cancer diagnosis and their communities. We consider these findings crucial, to drive the lung cancer agenda by increasing advocacy capability to elevate the patient voice, hosting all stakeholder roundtables including EU Parliament health interest group members.
Address
Head Office
c/o ETOP C/O IBCSG - Effingerstrasse 40
Bern 3008
SWITZERLANDEU Office
c/o ETOP C/O IBCSG - Effingerstrasse 40
Bern 3008
SWITZERLANDWebsite
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People
Total lobbyists declared
8
Employment time Lobbyists 100% 1 50% 1 25% 1 10% 5 Lobbyists (Full time equivalent)
2.25
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
3 contracted staff (part-time)
Board of 5 voluntary personsPerson in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
ECCO
ECPC
EPF
IASLC
ECL
EPHA
ELF/ERS
WeCanMember organisations
None declared
-
Financial Data
Interests represented
Promotes their own interests or the collective interests of their members
Closed financial year
Jan 2021 - Dec 2021
Lobbying costs for closed financial year
50,000€ - 99,999€
Major contributions in closed year
None declared
Intermediaries for closed year
Name Amount fiduria 10,000€ - 24,999€ Intermediaries for current year
None declaredClosed year Costs
50,000€ - 99,999€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
Cancer
Communication activities
2021 Lung Cancer Europe Public Awareness Campaign "Get Checked" which was translated in 12 European languages www.getchecked.eu
November 2021 - Lung Cancer Europe 6th report on lung cancer "Experiences and quality of life of people impacted by lung cancer in Europe" published and presented at a virtual MEP Mr. Tomislav Sokol, MEP and Special Committee on Beating Cancer
2021 - Hosted a series of educational programmes to support and develop advocacy within the lung cancer community. These are translated in a minimum of 5 European languages and on demand thereafter
CALLS TO ACTION:
Ensure access that supports the impact of lung cancer and treatment
Develop care plans and educational programmes with the aim to improve quality of life for people impacted by lung cancer
Advocate for new guidelines on Lung cancer screening programs - Putting guidelines in place that will allow Member States to set-up quality assured early detection programmes for lung cancer, as has already been the case with breast and colorectal cancers as a means to reduce lung cancer mortality.
Continued Funding for innovative lung cancer research - Ensure EU funds for research and innovation are provided to support the development of innovative and life-changing treatments for lung cancer patients.
Early diagnosis - Promote screening and diagnosis guidelines for lung cancer with evidence-based recommendations.
Raise awareness and education on the symptoms of lung cancer among the general public and knowledge among general practitioners.
Access to molecular testing and innovative treatments
. Ensure the access to molecular testing and novel therapies for patients.
· Collect and publish information about testing and treatment access across Europe.
· Stimulate the development and accreditation of lung cancer specialized centers in Europe
· Create a single European System dedicated to the evaluation the benefits of new drugs.
Utilize previously published Position Papers on lung cancer challenges via future projects
- Report on inequities in EU countries
- Workshops in the EU Parliament
- Collaboration with other NGO and clinical stakeholders in Europe on health issues
Research and development of new medicines
. Ensure funds continue to be available for research and innovation in the field of lung cancer.
· Reduce inequalities in access to clinical trials across Europe, and facilitate the movement of European citizens to participate in clinical trials.
· Strengthen patient involvement in the R&D, providing training and education about this process.
Psychological Support
. Provide a document stating what the basic help from the national system should consist of.
· Ensure funds for training for medical healthcare professionals on how to share information with cancer patients.
. Reduce the stigma associated with lung cancerOther activities
None declared
Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 07 Aug 2023 Location online Subject Online meeting with Lung Cancer Europe on Europe’s Beating Cancer Plan Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Tove Ernst (Cabinet member)
- Stella Kyriakides (Commissioner)