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Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2021 - Dec 2021
Lobbyists (Full time equivalent)
3.75 Fte (8)
Lobbyists with EP accreditation
0
High-level Commission meetings
2
Lobbying Costs over the years
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Info
PAIN ALLIANCE EUROPE (PAE)
EU Transparency Register
397330615236-07 First registered on 11 Dec 2014
Goals / Remit
For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live their life according to their possibilities and wishes.
PAE aims to promote awareness of chronic pain, to contribute to creating a European policy on chronic pain and to reduce the impact of chronic pain on the European society on all areas.
In order to reach our goals, PAE initiates and develops the following actions:
Working in close relation with the other stakeholders
Gather and distribute relative information on chronic pain from the patients' point of view.
Establish a good relationship with potential sponsors
Promote and or initiate research on chronic pain
Growing the association
Obtaining visibility through events, website, media coverageMain EU files targeted
Through our partnership with the European Pain Federation (EFIC) in the Societal Impact of Pain Platform (SIP) ( See details below)
We responded to the EU Health Data Space Plan, Healthy Workplaces, and the Beating Cancer Plan and developed position papers from the pain perspective.
Public Consultations on Health issuesAddress
Head Office
Rue de Londres/Londenstraat 18
Brussels 1050
BELGIUMEU Office
Rue de Londres/Londenstraat 18
Brussels 1050
BELGIUMWebsite
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People
Total lobbyists declared
8
Employment time Lobbyists 50% 7 25% 1 Lobbyists (Full time equivalent)
3.75
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
0 accreditations were / are live (in bold) for the selected state of 28 Mar 2023
Name Start date End Date Mr Johannes Wilhelmus Cornelis van Griensven 17 Jan 2020 01 Feb 2021 Ms Mariana DE BARROS E CARVALHOSA DE CASTELO BRANCO 17 Jan 2020 01 Feb 2021 Ms Viorica Cursaru 28 Feb 2019 01 Mar 2020 Ms Liisa Maria JUTILA 28 Feb 2019 01 Mar 2020 Ms María Soledad GARCÍA PENALTA 28 Feb 2019 01 Mar 2020 Mr Johannes Wilhelmus Cornelis van Griensven 17 Jan 2019 17 Jan 2020 MARIAN JILL NICHOLSON 07 Nov 2018 07 Nov 2019 Hilda Wieberneit-Tolman 07 Nov 2018 07 Nov 2019 Ms Anca POP 07 Nov 2018 07 Nov 2019 Ms Viorica Cursaru 06 Jan 2018 05 Jan 2019 Ms Liisa Maria JUTILA 06 Jan 2018 05 Jan 2019 Mr Johannes Wilhelmus Cornelis van Griensven 06 Jan 2018 17 Jan 2019 María Soledad García Penalta 06 Jan 2018 05 Jan 2019 Ms Anca POP 17 Oct 2017 17 Oct 2018 Hilda Wieberneit-Tolman 12 May 2017 09 May 2018 MARIAN JILL NICHOLSON 05 May 2017 04 May 2018 Ms Liisa Maria JUTILA 02 Feb 2017 06 Jan 2018 Ms Viorica Cursaru 04 Jan 2017 03 Jan 2018 Mr Johannes Wilhelmus Cornelis van Griensven 04 Jan 2017 24 Dec 2017 María Soledad García Penalta 04 Jan 2017 24 Dec 2017 Ms Anca POP 05 Sep 2016 03 Sep 2017 MARIAN JILL NICHOLSON 20 May 2016 06 May 2017 Hilda Wieberneit-Tolman 20 May 2016 13 May 2017 Ms Liisa Maria Mikkonen 27 Jan 2016 21 Jan 2017 María Soledad García Penalta 21 Jan 2016 04 Jan 2017 Ms Viorica Cursaru 20 Jan 2016 04 Jan 2017 Ms Miruna Ursache 20 Jan 2016 23 Aug 2016 Mr Johannes Wilhelmus Cornelis van Griensven 13 Jan 2016 04 Jan 2017 Hilda Wieberneit-Tolman 21 Mar 2015 19 Mar 2016 MARIAN JILL NICHOLSON 11 Mar 2015 09 Mar 2016 Ms Cristina Fernández Álvarez de Eulate 13 Dec 2014 11 Dec 2015 Ms Viorica Cursaru 14 Jan 2015 12 Jan 2016 Ms Liisa Maria Mikkonen 14 Jan 2015 12 Jan 2016 Mrs Cristina Fernández Álvarez de Eulate 13 Dec 2014 27 Jan 2015 Mr Johannes Wilhelmus Cornelis van Griensven 13 Dec 2014 11 Dec 2015 María Soledad García Penalta 13 Dec 2014 11 Dec 2015 Complementary Information
The board members and PAE President, 7 persons, are the most concerned with the stated objectives and actions. The President and board members act on a voluntary basis. They have only their expenses reimbursed. (Any travel and subsistence costs). We have one member of staff who supports the board in their activities.
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
PAE is a member of the patient consultation with the European Medicines Agency EMA
Works closely with the European Pain Federation EFIC
We are members of many European Organisations including European Federation of Neurological Associations (EFNA), and Active Citizens Network (ACN)Member organisations
None declared
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2021 - Dec 2021
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
191,110€
Major funding types in closed year
Other, Donations, Member's contribution
Major contributions in closed year
Type Name Amount Contribution Grünenthal 95,240€ Contribution Pfizer 34,520€ Contribution Janssen 20,000€ Contribution Boston Scientific 15,000€ Contribution Viatris 14,000€ Contribution EFIC 10,000€ Other financial info
Please note that the total amount of funding provided by Grünenthal (and in the total budget) includes 45 000 € paid by Grünenthal to PAE. This amount was not directly for PAE, but for the grants that PAE paid out to the winners of the BMP Grant.
Other budget sources that did not exceed 10% of the total budget were:
UMCG - 1 000,00 €
GSK - 550,00 €
Membership fees - 800,00 €
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Other activities
Coordination of the Stakeholder Group on the Social Impact of Pain, part of the European Commission’s Health Policy Platform, together with EFIC European Pain Federation
Administrators of the Thematic network on the Societal Impact of Pain, part of the European Commission’s Health Policy Platform, together with EFIC European Pain Federation
Meetings
Meetings
2 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't publish information about such meetings. All information below comes from European Commission web pages.
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Date 08 Mar 2019 Location Brussels Subject Societal and economic impact of chronic pain Cabinet Cabinet of Vice-President Jyrki Katainen Portfolio Jobs, Growth, Investment and Competitiveness Commission - Marika Lautso-Mousnier (Cabinet member)
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Date 19 Feb 2015 Location Brussels, Belgium Subject Range of brain related deseases Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Commission - Arunas Vinciunas (Cabinet member)
Other Lobbyists