Pain Alliance Europe

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Registration as it was on 30 Jan 2024
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The following entries are flagged as duplicates of this organisation: 75559858669-77

Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

3.75 Fte (8)

Lobbyists with EP accreditation

0

High-level Commission meetings

2

Lobbying Costs over the years

  • Info

    Pain Alliance Europe   (PAE)

    EU Transparency Register

    397330615236-07 First registered on 11 Dec 2014

    Goals / Remit

    For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live their life according to their possibilities and wishes.

    PAE aims to promote awareness of chronic pain, to contribute to creating a European policy on chronic pain and to reduce the impact of chronic pain on the European society on all areas.

    In order to reach our goals, PAE initiates and develops the following actions:

    Working in close relation with the other stakeholders
    Gather and distribute relative information on chronic pain from the patients' point of view.
    Establish a good relationship with potential sponsors
    Promote and or initiate research on chronic pain
    Growing the association
    Obtaining visibility through events, website, media coverage

    Main EU files targeted

    Through our partnership with the European Pain Federation (EFIC) in the Societal Impact of Pain Platform (SIP) ( See details below)
    We responded to the Comprehensive Approach to Mental Health, and continue to work within the areas of the EU Health Data Space Plan, Healthy Workplaces, and the Beating Cancer Plan and developed position papers from the pain perspective.

    Public Consultations on Health issues

    Address

    Head Office
    Rue de Londres/Londonstraat 18
    Bruxelles 1050
    BELGIUM
    EU Office
    Rue de Londres/Londonstraat 18
    Bruxelles 1050
    BELGIUM

    Website

  • People

    Total lobbyists declared

    8

    Employment timeLobbyists
    50%7
    25%1

    Lobbyists (Full time equivalent)

    3.75

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    0 accreditations were / are live (in bold) for the selected state of 25 May 2024

    Name Start date End Date
    Mr Johannes Wilhelmus Cornelis van Griensven 17 Jan 2020 01 Feb 2021
    Ms Mariana DE BARROS E CARVALHOSA DE CASTELO BRANCO 17 Jan 2020 01 Feb 2021
    Ms Viorica Cursaru 28 Feb 2019 01 Mar 2020
    Ms Liisa Maria JUTILA 28 Feb 2019 01 Mar 2020
    María Soledad García Penalta 28 Feb 2019 01 Mar 2020
    Mr Johannes Wilhelmus Cornelis van Griensven 17 Jan 2019 17 Jan 2020
    MARIAN JILL NICHOLSON 07 Nov 2018 07 Nov 2019
    Hilda Wieberneit-Tolman 07 Nov 2018 07 Nov 2019
    Ms Anca POP 07 Nov 2018 07 Nov 2019
    Ms Viorica Cursaru 06 Jan 2018 05 Jan 2019
    Ms Liisa Maria JUTILA 06 Jan 2018 05 Jan 2019
    Mr Johannes Wilhelmus Cornelis van Griensven 06 Jan 2018 17 Jan 2019
    María Soledad García Penalta 06 Jan 2018 05 Jan 2019
    Ms Anca POP 17 Oct 2017 17 Oct 2018
    Hilda Wieberneit-Tolman 12 May 2017 09 May 2018
    MARIAN JILL NICHOLSON 05 May 2017 04 May 2018
    Ms Liisa Maria JUTILA 02 Feb 2017 06 Jan 2018
    Ms Viorica Cursaru 04 Jan 2017 03 Jan 2018
    Mr Johannes Wilhelmus Cornelis van Griensven 04 Jan 2017 24 Dec 2017
    María Soledad García Penalta 04 Jan 2017 24 Dec 2017
    Ms Anca POP 05 Sep 2016 03 Sep 2017
    MARIAN JILL NICHOLSON 20 May 2016 06 May 2017
    Hilda Wieberneit-Tolman 20 May 2016 13 May 2017
    Ms Liisa Maria Mikkonen 27 Jan 2016 21 Jan 2017
    María Soledad García Penalta 21 Jan 2016 04 Jan 2017
    Ms Viorica Cursaru 20 Jan 2016 04 Jan 2017
    Ms Miruna Ursache 20 Jan 2016 23 Aug 2016
    Mr Johannes Wilhelmus Cornelis van Griensven 13 Jan 2016 04 Jan 2017
    Hilda Wieberneit-Tolman 21 Mar 2015 19 Mar 2016
    MARIAN JILL NICHOLSON 11 Mar 2015 09 Mar 2016
    Ms Cristina Fernández Álvarez de Eulate 13 Dec 2014 11 Dec 2015
    Ms Viorica Cursaru 14 Jan 2015 12 Jan 2016
    Ms Liisa Maria Mikkonen 14 Jan 2015 12 Jan 2016
    Mrs Cristina Fernández Álvarez de Eulate 13 Dec 2014 27 Jan 2015
    Mr Johannes Wilhelmus Cornelis van Griensven 13 Dec 2014 11 Dec 2015
    María Soledad García Penalta 13 Dec 2014 11 Dec 2015

    Complementary Information

    The board members and PAE President, 7 persons, are the most concerned with the stated objectives and actions. The President and board members act on a voluntary basis. They have only their expenses reimbursed. (Any travel and subsistence costs). We have one member of staff who supports the board in their activities.

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    PAE is a member of the patient consultation with the European Medicines Agency EMA
    Works closely with the European Pain Federation EFIC
    We are members of many European Organisations including European Federation of Neurological Associations (EFNA), and Active Citizens Network (ACN)

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    27,880€

    Major funding types in closed year

    Donations, Member's contribution, Other

    Funding types "other" information

    Major contributions in closed year

    TypeNameAmount
    Contribution Boston Scientific 15,000€
    Contribution European Pain Federation 10,000€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    N/A

    Communication activities

    In partnership with the European Pain Federation (EFIC) in the Societal Impact of Pain Platform (SIP) we hold events which also launch our position papers in response to EU policy that involves the societal impact of pain including Comprehensive approach to Mental Health, EU Health Data Space Plan, Healthy Workplaces, the Beating Cancer Plan.

    On 10 October 2023, World Mental Health Day, SIP hosted the 'Pain and Mental Health: A Societal Impact of Pain (SIP) Event' at the European Parliament. We launched our Joint Statement on Pain and Mental Health.
    Invited MEPs, and experts shared their insights at a panel discussion on the close relationship between pain and mental health, the quality of and access to safe pain management, the link between pain, mental health and employment, and how these aspects can be integrated into mental health policies.

    In May 2023 Psychedelic Access and Research European Alliance (PAREA) formed a Members of the European Parliament Action Group for the Medical Use of Psychedelics (MEP AG). PAE is a founding member. On November 6th 2023 PAREA held an event in the Parliament titled 'Innovating mental Health in the EU Pharma Legislation: Regulatory Pathways for Psychedelic Therapies' to launch the policy paper: “Unmet Medical Needs: Aligning Medical Innovation with Societal Health Needs”.

    Other activities

    None declared

  • Meetings

    Meetings

    2 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

    • Date 08 Mar 2019 Location Brussels
      Subject Societal and economic impact of chronic pain
      Cabinet Cabinet of Vice-President Jyrki Katainen
      Portfolio Jobs, Growth, Investment and Competitiveness
      Attending
      • Marika Lautso-Mousnier (Cabinet member)
    • Date 19 Feb 2015 Location Brussels, Belgium
      Subject Range of brain related deseases
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Arunas Vinciunas (Cabinet member)
      Other Lobbyists
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