Pancreatic Cancer Europe

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2023
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Registration as it was on 30 Nov 2023
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Overview

Lobbying Costs

100,000€ - 199,999€

Financial year: Jul 2022 - Jun 2023

Lobbyists (Full time equivalent)

3 Fte (4)

Lobbyists with EP accreditation

0

High-level Commission meetings

0

Lobbying Costs over the years

  • Info

    Pancreatic Cancer Europe   (PCE)

    EU Transparency Register

    791220833072-74 First registered on 08 Nov 2018

    Goals / Remit

    Pancreatic Cancer Europe is a European multi-stakeholder platform which aims at bringing together experts from all over Europe including academics, physicians, politicians, patient groups, journalists and industry with a common interest and willingness to improve care for patients with pancreatic cancer.
    Pancreatic Cancer Europe aims at bringing together relevant stakeholders to advocate for an improvement in the standard of care for patients with pancreatic cancer, by addressing the existing gaps related to the lack of awareness, diagnosis and data collection. Spun off by a strong political will to address the devastating impact of pancreatic cancer, Pancreatic Cancer Europe aims at reversing the trend of pancreatic cancer impact by: Increasing PC research and political support; Raising lay and medical awareness by developing awareness tools and campaigns; Enabling a forum of exchange between national stakeholders.

    Main EU files targeted

    Joint Actions on the field of cancer, including European Partnership Action Against Cancer (EPAAC), Joint Action on Cancer Control, Innovative Partnership for Action Against Cancer (iPAAC).

    Address

    Head Office
    Square Ambiorix 10
    Bruxelles 1000
    BELGIUM
    EU Office
    Square Ambiorix 10
    Bruxelles 1000
    BELGIUM

    Website

    https://www.pancreaticcancereurope.eu/

  • People

    Total lobbyists declared

    4

    Employment timeLobbyists
    75%4

    Lobbyists (Full time equivalent)

    3

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    World Pancreatic Cancer Coalition
    All.Can
    Inspire2live
    European Cancer Organisation
    Workgroup of European Cancer Patient Advocacy Networks - WECAN

    Member organisations

    Pancreatic Cancer Action
    GEPAC
    Association for Pancreas study "Pancreatic Club Romania"
    Arbeitskreis der Pankreatektomierten e. V.
    Pancreaskreft Nettverk Norge
    Asociacion Cancer de pancreas
    Spanish Association of Pancreatology
    Pancreatic Cancer Scotland
    FONDAZIONE NADIA VALSECCHI
    Selbsthilfegruppe Pankreaskarzinom
    Hungarian Pancreatic Study Group
    Inspire2live
    EuropaColon Poland
    Codice Viola APS
    ECPC
    Associazione Nastro Viola
    Pancreasnetvaerket Denmark
    Association of Cancer Patients in Finland
    ELL.O.K - Hellenic Cancer Federation
    Fondation ARCAD
    European Pancreatic Club
    The Cyprus Association of cancer patients and friends PASYKAF
    NACRe Network
    FAVO
    United European Gastroenterology (UEG)
    Cancerföreningen PALEMA
    Cancer Patients Europe
    Dutch Pancreatic Cancer Group
    EUROPACOLON Portugal
    Digestive Cancers Europe
    Rete Oncologica Pazienti Italia-ROPI
    The Institute for Gastroenterological Tumors
    European Pancreatic Club

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jul 2022 - Jun 2023

    Lobbying costs for closed financial year

    100,000€ - 199,999€

    Major contributions in closed year

    None declared

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    100,000€ - 199,999€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    Cancer

    Communication activities

    Pancreatic Cancer 2019 Elections Manifesto;
    Inequality Report in the European Union;
    Heatmap on pancreatic cancer policies;
    Awareness events on 2016 and 2018 in the European Parliament;
    On line Awareness events on 2020 and 2021 on World Pancreatic Cancer Day with the support of the EU Parliamentary Intergroup Challenge Cancer
    European Parliament event on 15 November 2022 The Neglected Heavy Burden: Pancreatic & Gastric Cancers hosted by MEP Cristian-Silviu Busoi
    On line awareness event on 17 November 2022 The importance of pancreatic cancer’s early detection in the frame of World Pancreatic Cancer Day with the support of MEP Tomislav Sokol
    Webinar on Tuesday, 28 February 2023 The European Health Technology Assessment Regulation: the political will
    2nd Multistakeholder Brainstorming Meeting in Madrid, Spain at Spanish National Cancer Research Centre (CNIO) on 26 May 2023 - PANCREATIC CANCER RESEARCH IN EUROPE: WHERE DO WE STAND AND WHICH SHOULD BE THE PRIORITIES?
    Multi-Stakeholder Meeting on Tuesday, 14 November 2023 in Bruxelles, Belgium - Drug Repurposing, an Attractive Strategy in Pancreatic Cancer Treatment?
    Webinar on Tuesday, 21 November 2023 - Physical Activities for Pancreatic Cancer Patients

    Other activities

    None declared

  • Meetings

    Meetings

    None declared

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