Overview
Lobbying Costs
37,500€
Financial year: Jan 2019 - Dec 2019
Lobbyists (Full time equivalent)
0.5 Fte (2)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
Pancreatic Cancer Europe (PCE)
EU Transparency Register
791220833072-74 First registered on 08 Nov 2018
Goals / Remit
Pancreatic Cancer Europe is a European multi-stakeholder platform which aims at bringing together experts from all over Europe including academics, physicians, politicians, patient groups, journalists and industry with a common interest and willingness to improve care for patients with pancreatic cancer.
Pancreatic Cancer Europe aims at bringing together relevant stakeholders to advocate for an improvement in the standard of care for patients with pancreatic cancer, by addressing the existing gaps related to the lack of awareness, diagnosis and data collection. Spun off by a strong political will to address the devastating impact of pancreatic cancer, Pancreatic Cancer Europe aims at reversing the trend of pancreatic cancer impact by: Increasing PC research and political support; Raising lay and medical awareness by developing awareness tools and campaigns; Enabling a forum of exchange between national stakeholders.Main EU files targeted
Joint Actions on the field of cancer, including European Partnership Action Against Cancer (EPAAC), Joint Action on Cancer Control, Innovative Partnership for Action Against Cancer (iPAAC).
Address
Head Office
Rue Guimard, 10
RPP Group SPRL
Bruxelles 1040
BELGIUM -
People
Total lobbyists declared
2
Employment time Lobbyists 25% 2 Lobbyists (Full time equivalent)
0.5
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
None declared
Member organisations
Arbeitskreis der Pankreatektomierten
Asociación Cáncer de Páncreas
Associazione Nastro Viola
Codice Viola
Dutch Pancreatic Cancer Group
Digestive Cancers Europe
European Cancer Patient Coalition
ELL.O.K
EuropaColon Poland
EuropaColon Portugal
FAVO
Fondation ARCAD
Fondazione Nadia Valsecchi
Grupo Español de Pacientes de Cáncer
Hungarian Pancreatic Study Group
Hungarian Society of Clinical Oncology
Slovak Cancer Society
PALEMA
Pancreaskreft Nettverk Norge
Pancreasnetvaerket Denmark
Pancreatic Cancer Action
Pancreatic Cancer Scotland
Selbsthilfegruppe Pankreaskarzinom
United European Gastroenterology -
Financial Data
Closed financial year
Jan 2019 - Dec 2019
Lobbying costs for closed financial year
37,500€
Other financial info
Funding for the period January 2019 - December 2019: 102 500€
Funding for the period January 2020 - June 2020: 37 500€ (75 000€ / 2) -
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Pancreatic Cancer 2019 Elections Manifesto;
Inequality Report in the European Union;
Heatmap on pancreatic cancer policies;
Awareness events on 2016 and 2018 in the European Parliament.Other activities
None declared
Meetings
Meetings
None declared