Overview
Lobbying Costs
75,000€
Financial year: Jan 2016 - Dec 2016
Lobbyists (Full time equivalent)
1.5 Fte (2)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
-
Info
Pulmonary Hypertension Association Europe (PHA Europe)
EU Transparency Register
652831216994-42 First registered on 12 May 2015
Goals / Remit
PHA Europe is the umbrella organization for national associations of patients living with pulmonary hypertension (PH) in Europe. It was founded in Vienna, Austria, in 2003 and is registered as an international non profit organization. PHA Europe works together with its members to enhance awareness of PH across Europe, promote optimal standards of care for people living with the disease, ensure the availability of all approved treatments and encourage research for new medicines and therapies. PHA Europe's membership currently includes 40 patient associations from 33 countries.
Main EU files targeted
EU Action on Rare Disease
European Reference Networks/European Reference Centres
European Directive on patients’ rights in cross-border healthcare
The Joint Action on Chronic Diseases and promoting healthy ageing across the life-cycle
The EU Health Programme
Horizon2020
EU directive on organ donation and transplantationAddress
Head Office
Mooslackengasse 17
Vienna 1190
AUSTRIA -
People
Total lobbyists declared
2
Employment time Lobbyists 100% 1 50% 1 Lobbyists (Full time equivalent)
1.5
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Mr Juan Fuertes (Managing Director)
Person with legal responsibility
Mr Hans-Dieter Kulla (President)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
PHA Europe is a Member of:
- European Organization for Rare Diseases (EURORDIS)
- European Public Health Alliance (EPHA
- European Patients Forum (EPHF)Member organisations
http://www.phaeurope.org/about-pha-europe/pha-europe-affiliates/
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Financial Data
Closed financial year
Jan 2016 - Dec 2016
Lobbying costs for closed financial year
75,000€
Other financial info
None declared
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
None
Communication activities
World Pulmonary Hypertension Day celebrations
Call to Action to improve organ donation and transplant across the EUOther activities
None declared
Meetings
Meetings
None declared