Overview
Lobbying Costs
None declared
Financial year: Jan 2013 - Dec 2013
Lobbyists (Full time equivalent)
2 Fte (4)
Lobbyists with EP accreditation
0
High-level Commission meetings
0
Lobbying Costs over the years
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Info
Pulmonary Hypertension Association Europe (PHA Europe)
EU Transparency Register
652831216994-42 First registered on 12 May 2015
Goals / Remit
PHA Europe is the umbrella organization for national associations of patients living with pulmonary hypertension (PH) in Europe. It was founded in Vienna, Austria, in 2003 and is registered as an international non profit organization. PHA Europe works together with its members to enhance awareness of PH across Europe, promote optimal standards of care for people living with the disease, ensure the availability of all approved treatments and encourage research for new medicines and therapies. PHA Europe's membership currently includes 33 patient associations from 29 countries.
Main EU files targeted
EU Action on Rare Disease
European Reference Networks/European Reference Centres
European Directive on patients’ rights in cross-border healthcare
The Joint Action on Chronic Diseases and promoting healthy ageing across the life-cycle
The EU Health Programme
Horizon2020
EU directive on organ donation and transplantationAddress
Head Office
Wilhelmstrasse 19
Vienna 1120
AUSTRIA -
People
Total lobbyists declared
4
Employment time Lobbyists 100% 1 50% 1 25% 2 Lobbyists (Full time equivalent)
2
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
None declared
Person in charge of EU relations
Mr Juan Fuertes (Advocacy coordinator)
Person with legal responsibility
Mr Gerald Fischer (President)
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Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
PHA Europe is a Member of:
- European Organization for Rare Diseases (EURORDIS)
- European Public Health Alliance (EPHA
- European Patients Forum (EPHF)Member organisations
http://www.phaeurope.org/about-pha-europe/pha-europe-affiliates/
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Financial Data
Closed financial year
Jan 2013 - Dec 2013
Lobbying costs for closed financial year
None declared
Other financial info
In 2013 we did not receive membership fees, we have now reintroduced these.
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EU Structures
Groups (European Commission)
None
ACC
None
Groups (European Parliament)
None
Communication activities
None
Other activities
None declared
Meetings
Meetings
None declared