Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2022 - Dec 2022
Lobbyists (Full time equivalent)
2.5 Fte (3)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
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Info
Stroke Alliance for Europe (SAFE)
EU Transparency Register
247798421157-38 First registered on 11 Apr 2016
Goals / Remit
SAFE works towards all patients in Europe with stroke having rights of access to a continuum of care. From prevention and risk identification, through emergency response to organised stroke units in acute phase, to appropriate rehabilitation and secondary prevention.
SAFE’s vision is to work towards greatly decreasing the number of strokes in Europe and that all who are touched by stroke get the help and support they need.
SAFE therefore engages in activities such as campaigning, education and encouraging research, which contribute to the advancement of stroke prevention and the improvement of the quality of life of stroke survivors, their families and carers.
The overall aim of SAFE is to reduce the numbers of, and ameliorate the effects of, strokes across Europe.Main EU files targeted
Medical research funding initiatives.
Prevention of chronic diseases, in particular stroke and dementia
Disability rights and patient rights issues
Raising awareness of response to stroke symptoms
Working for improved support in healthcare and social care for stroke survivors and their families and carersAddress
Head Office
Rue Washington 40
Brussels 1050
BELGIUMEU Office
Rue Washington 40
Brussels 1050
BELGIUMWebsite
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People
Total lobbyists declared
3
Employment time Lobbyists 100% 2 50% 1 Lobbyists (Full time equivalent)
2.5
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
We would like to participate in the EU Health Forum in particular.
We have 34 member organisations within 30 European countriesPerson in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
World Stroke Organisation
European Stroke Organisation
European Federation of Neurological Alliances
European Patients ForumMember organisations
www.safestroke.eu
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2022 - Dec 2022
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
389,882€
Major funding types in closed year
Other, Member's contribution
Funding types "other" information
Major contributions in closed year
Type Name Amount Contribution Boehringer Ingelheim 176,760€ Contribution E R Squibb & Sons LLC 55,000€ Contribution Merz Thereapeutics 30,000€ Contribution Novartis Pharma AG 20,000€ Contribution Ipsen Innovation 35,000€ Contribution Research grants 22,505€ Contribution Membership fees 50,617€ Other financial info
None declared
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EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Medical research funding initiatives.
Prevention of chronic diseases, in particular stroke and dementia
Disability rights and patient rights issues
Raising awareness of response to stroke symptoms
Working for improved support in healthcare and social care for stroke survivors and their families and carers
Distributing information material via conferences, websites, newsletters, lectures, workshops, dissemination of research projects
Supporting stroke survivors and their families through virtual and social networks and groupsOther activities
Our main engagement with the EU so far has been as a dissemination channel to the stroke community, funded by our participation in EU research projects.
We have presented a number of research findings and the Stroke Action Plan for Europe through delivering meetings at the EU to interested stakeholders and Politicians.
We would like to participate further but as yet have not been aware of the mechanisms by which we can engage and get involved.
Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
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Date 30 Nov 2016 Location Brussels Subject Stroke: access to innovative therapies, organisation of care, efficient care pathways Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
Other Lobbyists