Overview
Lobbying Costs
9,999€
Financial year: Jan 2019 - Dec 2019
Lobbyists (Full time equivalent)
4 Fte (5)
Lobbyists with EP accreditation
0
High-level Commission meetings
1
Lobbying Costs over the years
-
Info
Stroke Alliance for Europe (SAFE)
EU Transparency Register
247798421157-38 First registered on 11 Apr 2016
Goals / Remit
SAFE works towards all patients in Europe with stroke having rights of access to a continuum of care. From prevention and risk identification, through emergency response to organised stroke units in acute phase, to appropriate rehabilitation and secondary prevention.
SAFE’s vision is to work towards greatly decreasing the number of strokes in Europe and that all who are touched by stroke get the help and support they need.
SAFE therefore engages in activities such as campaigning, education and encouraging research, which contribute to the advancement of stroke prevention and the improvement of the quality of life of stroke survivors, their families and carers.
The overall aim of SAFE is to reduce the numbers of, and ameliorate the effects of, strokes across Europe.Main EU files targeted
Medical research funding initiatives.
Prevention of chronic diseases, in particular stroke and dementia
Disability rights and patient rights issues
Raising awareness of response to stroke symptoms
Working for improved support in healthcare and social care for stroke survivors and their families and carersAddress
Head Office
Rue Washington 40
Brussels 1050
BELGIUM -
People
Total lobbyists declared
5
Employment time Lobbyists 100% 3 50% 2 Lobbyists (Full time equivalent)
4
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
We would like to participate in the EU Health Forum in particular.
We have 32 member organisations within 30 European countriesPerson in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
-
Categories
Category
III - Non-governmental organisations
Subcategory
Non-governmental organisations, platforms and networks and similar
-
Networking
Affiliation
World Stroke Organisation
European Stroke Organisation
European Federation of Neurological Alliances
European Patients ForumMember organisations
None declared
-
Financial Data
Closed financial year
Jan 2019 - Dec 2019
Lobbying costs for closed financial year
9,999€
EU grant income for closed financial year
43,609 € (Source: EC FP7 research project grants)
Other financial info
Pharmaceutical companies sponsor our regional conferences and annual conference per year. These are networking and awareness raising events between stroke support organisations from multiple countries. They also sponsor other projects we are involved in with our members.
-
EU Structures
Groups (European Commission)
none
Groups (European Parliament)
N/A
Communication activities
Medical research funding initiatives.
Prevention of chronic diseases, in particular stroke and dementia
Disability rights and patient rights issues
Raising awareness of response to stroke symptoms
Working for improved support in healthcare and social care for stroke survivors and their families and carers
Distributing information material via conferences, websites, newsletters, lectures, workshops, dissemination of research projects
Supporting stroke survivors and their families through virtual and social networks and groupsOther activities
Our main engagement with the EU so far has been as a dissemination channel to the stroke community, funded by our participation in EU research projects.
We have presented a number of research findings and the Stroke Action Plan for Europe through delivering meetings at the EU to interested stakeholders and Politicians.
We would like to participate further but as yet have not been aware of the mechanisms by which we can engage and get involved.- Meetings
Meetings
1 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
-
Date 30 Nov 2016 Location Brussels Subject Stroke: access to innovative therapies, organisation of care, efficient care pathways Cabinet Cabinet of Commissioner Vytenis Andriukaitis Portfolio Health & Food Safety Attending - Paula Duarte Gaspar (Cabinet member)
Other Lobbyists
- Meetings