The European Institute for Innovation through Health Data

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Registration as it was on 12 Nov 2023
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The following entries are flagged as duplicates of this organisation: 957449219758-32


Lobbying Costs

200,000€ - 299,999€

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

8.7 Fte (14)

Lobbyists with EP accreditation


High-level Commission meetings


Lobbying Costs over the years

  • Info

    The European Institute for Innovation through Health Data   (i~HD)

    EU Transparency Register

    676053343264-27 First registered on 22 Jun 2021

    Goals / Remit

    The European Institute for Innovation through Health Data (i~HD) is a not for profit institute registered in Belgium. It is a membership-based organisation with members from pharma, healthcare providers, academic organisations, and works closely with patient organisations, healthcare payers, the health ICT sector and standards development organisations. i~HD develops methods, solutions and services that can maximise the value obtained from health data, to support innovations in health, health care and knowledge discovery, while ensuring compliance with legal prerequisites, especially regarding patient’s privacy protection. It tackles areas of challenge in the successful scaling up of innovations that rely on high quality and interoperable health data. It collates, develops and supports adoption of best practices in information governance and data protection, with special focus on the reuse of health data for learning health systems.

    Main EU files targeted

    Opportunities, stakeholder value and acceptance factors in support of the European Health Data Space
    The adoption of the EU GDPR relating to the use of health data for research
    The health sector implications of the Data Governance Act
    Promotion of the Digital Health and Care Innovation initiative of the Digital Single Market Strategy
    The health sector implications of the forthcoming AI Regulation


    Head Office
    Merebaaistraat 10
    Oosterzele 9860
    EU Office
    Merebaaistraat 10
    Oosterzele 9860


  • People

    Total lobbyists declared


    Employment timeLobbyists

    Lobbyists (Full time equivalent)


    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories


    Non-governmental organisations, platforms and networks and similar

  • Networking


    i~HD is not a member of any organisation.

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    200,000€ - 299,999€

    Major contributions in closed year

    Grant Horizon 2020 and IMI 100,000€

    Major contributions in current year

    Grant Horizon 2020 and IMI 772,000€

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    200,000€ - 299,999€

    Other financial info

    None declared

  • EU Structures

    Groups (European Commission)

    eHealth Stakeholder Group#E02769# #Member #C#Academia/Research

    Groups (European Parliament)


    Communication activities

    The organisation and reporting of multi-stakeholder roundtables, focus groups and workshops discussing topics relating to the governance, protection, interoperability, sharing and quality of health data, for public health and research purposes. From these we collect requirements, use cases, success factors and barriers, approaches that could be adopted and stakeholder concerns, which we collate into policy-influencing reports and presentation materials. These have contributed directly into EC intelligence gathering as it develops the concept, governance models, operational models and later the implementation of the EHDS.

    Promoting the importance of interoperability standards to different stakeholder groups, and promoting the importance of good data quality, so that health data is usable and useful for the big data opportunities that will be enabled by the EHDS. From these activities we understand the present barriers to standards adoption and data quality, the incentives that need to be triggered through future policy instruments, and we contribute this back into the European Commission for consideration, especially now in relation to the EHDS.

    Working with multiple European projects and with multi stakeholder communities on the challenges and emergent good practices in complying with the GDPR when it comes to reusing health data for research, especially for big data networks. We are collating these adoption and compliance challenges, as areas for potential recommended improvement to a future revision of the GDPR. Many of these areas are also potential areas that the Data Governance Act might fill, so we additionally contribute input to the Commission on the implementation of this Act.

    Contributing to webinars and online conferences, in person conferences, about topics that contribute to the European momentum and capacity for cross-border data sharing and analysis including trustworthy AIas input to support the adoption and compliance with the AI Act.

    Other activities

    None declared

  • Meetings


    1 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: All information below comes from European Commission web pages.

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