Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
3.75 Fte (5)
Lobbyists with EP accreditation
5
High-level Commission meetings
1
Lobbying Costs over the years
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Info
Cancer Patients Europe (CPE)
EU Transparency Register
476628448625-07 First registered on 13 Jan 2023
Goals / Remit
Represent and empower the voices of cancer patients and cancer survivors towards policymakers and other stakeholders, with the ultimate objective of co-creating policies that drive prevention, high-quality cancer care, treatment and survivorship in Europe.
Reduce the burden of cancer on patients and survivors, their carers, the health care systems and the society as a wholeMain EU files targeted
European policies and legislations
Europe’s Beating Cancer Plan
EU HTA Regulation
European Health Data Space
Biotech Act
EU Pharmaceutical Legislation
Patients’ empowerment
Organisational collaboration between the European and national levels
Members’ capacity-building
FundraisingAddress
Head Office
Rue de l'Industrie 24
Brussels 1000
BELGIUMEU Office
Rue de l'Industrie 24
Brussels 1000
BELGIUMWebsite
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People
Total lobbyists declared
5
Employment time Lobbyists 75% 5 Lobbyists (Full time equivalent)
3.75
Lobbyists with EP accreditation
All Lobbyists with EP accreditation over time
5 accreditations were / are live (in bold) for the selected state of 17 Feb 2025
Name Start date End Date Rachel Dencik-Pickering 24 Oct 2024 23 Oct 2025 Antonella CARDONE 18 Nov 2024 17 Nov 2025 Joana KOKALARI 01 Sep 2024 14 Dec 2024 Tristan Julien Hanssen 01 Oct 2024 30 Sep 2025 Kaustubh Kiran Dhurandhar 12 Aug 2024 11 Aug 2025 Joséphine Mosset 01 Aug 2024 31 Jul 2025 Joana KOKALARI 16 Jan 2024 04 Oct 2024 Tristan HANSSEN 16 Jan 2024 04 Oct 2024 Antonella CARDONE 16 Jan 2024 04 Oct 2024 Complementary Information
None declared
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
BBMRI-ERIC - Biobanking and Biomolecular Resources Research Infrastructure – European Research Infrastructure Consortium
EAA - European Access Academy
EONS – European Oncology Nursing SocietyEAU - European Association of Urologists
EFPIA - European Federation of Pharmaceutical Industries Association
FEAM – Federation of European Academies of Medicine
All.Can
OnHOME Alliance
PCE - Pancreatic Cancer Europe
World Ovarian Cancer CoalitionMember organisations
https://cancerpatientseurope.org/members/
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
335,073€
Major funding types in closed year
Other
Funding types "other" information
Pharma company sponsorships
Major contributions in closed year
Type Name Amount Contribution Astellas Pharma Europe 41,020€ Contribution Bayer Healthcare 12,475€ Contribution Exact Sciences International GmbH 60,000€ Contribution MSD International Business GmbH 40,125€ Contribution Stemline Therapeutics Switzerland GmbH 47,360€ Contribution Takeda Pharmaceuticals International 20,000€ Grant HORIZON-MISS-2021-CANCER-02 ThermoBreast 63,576€ Grant HORIZON-MISS-2022-CANCER-01 PREVENT 44,688€ Other financial info
The 2023 Balance Sheet was approved by the CPE General Assembly on July 18th 2024, and is available on the CPE website:
https://cancerpatientseurope.org/wp-content/uploads/2024/10/CPE-2023-balance-sheet.pdf -
EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
Cancer
Communication activities
1. European Week Against Cancer : Priorities in Cancer Inequalities Webinars
During the European Cancer Week 2024, Cancer Patients Europe hosted a series of webinars to raise awareness about the stark inequalities in cancer care across Europe. These webinars explored five key areas where action is needed to reduce disparities and improve outcomes for all cancer patients, regardless of their location.
2. Genomics and Cancer : ESR1 and Liquid Biopsy
CPE is actively involved in raising awareness of ESR1 mutations and liquid biopsy testing in metastatic breast cancer. We conducted a comprehensive survey of patients and healthcare professionals, the findings of which are being developed into a white paper outlining the current understanding of ESR1 mutations, and liquid biopsy with recommendations for improving patient care and outcomes.
3. Rare Cancers : BPDCN
To increase understanding of blastic plasmacytoid dendritic cell neoplasm (BPDCN), CPE has conducted a communication campaign including social media dissemination an educational webinar, and developed a comprehensive fact sheet. These resources provide valuable information about BPDCN for patients and healthcare providers, with the goal of promoting early diagnosis and access to effective treatments to improve outcomes for those affected by this rare disease.
4. HTA Cancer Patient’s Awareness
Co-organised by Cancer Patients Europe and Fundacio HiTT, the HTA initiative aims to empower and improve the knowledge, literacy, and awareness of cancer patients for a timely and effective EU HTA implementation.
5. European Semester Manifesto
To promote the inclusion of health in the European Semester process, with cancer as a pilot, CPE has jointly drafted an EU Semester Manifesto and is actively conducting a communication campaign around this initiative. This includes organising events at the EU Parliament to raise awareness and advocate for the inclusion of cancer-specific indicators in the European Semester process.Other activities
None declared
Meetings
Meetings
1 meetings found. Download meetings
The list below covers meetings with Commissioners/Cabinet members/Directors-general (high-level) Commission meetings published December 2014 to December 2024, and the meetings of Commissioners/Cabinet members/Directors-general and officials holding "management functions" in the Commission published since 1 January 2025. Other lobby meetings with lower-level staff may well have taken place, but the Commission doesn't proactively publish information about these meetings. All information below comes from the Commission and not from the registrant.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 09 Apr 2024 Location Videoconference Subject Europe’s Beating Cancer Plan; quality of life Cabinet Cabinet of Commissioner Stella Kyriakides Attending - Stella Kyriakides (Commissioner)
- Tove Ernst (Cabinet member)
Other Lobbyists