Cancer Patients Europe

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2023
2024
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Registration as it was on 19 Dec 2024
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Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2023 - Dec 2023

Lobbyists (Full time equivalent)

3.75 Fte (5)

Lobbyists with EP accreditation

5

High-level Commission meetings

1

Lobbying Costs over the years

  • Info

    Cancer Patients Europe   (CPE)

    EU Transparency Register

    476628448625-07 First registered on 13 Jan 2023

    Goals / Remit

    Represent and empower the voices of cancer patients and cancer survivors towards policymakers and other stakeholders, with the ultimate objective of co-creating policies that drive prevention, high-quality cancer care, treatment and survivorship in Europe.
    Reduce the burden of cancer on patients and survivors, their carers, the health care systems and the society as a whole

    Main EU files targeted

    European policies and legislations
    Europe’s Beating Cancer Plan
    EU HTA Regulation
    European Health Data Space
    Biotech Act
    EU Pharmaceutical Legislation
    Patients’ empowerment
    Organisational collaboration between the European and national levels
    Members’ capacity-building
    Fundraising

    Address

    Head Office
    Rue de l'Industrie 24
    Brussels 1000
    BELGIUM
    EU Office
    Rue de l'Industrie 24
    Brussels 1000
    BELGIUM

    Website

  • People

    Total lobbyists declared

    5

    Employment timeLobbyists
    75%5

    Lobbyists (Full time equivalent)

    3.75

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    5 accreditations were / are live (in bold) for the selected state of 17 Feb 2025

    Name Start date End Date
    Rachel Dencik-Pickering 24 Oct 2024 23 Oct 2025
    Antonella CARDONE 18 Nov 2024 17 Nov 2025
    Joana KOKALARI 01 Sep 2024 14 Dec 2024
    Tristan Julien Hanssen 01 Oct 2024 30 Sep 2025
    Kaustubh Kiran Dhurandhar 12 Aug 2024 11 Aug 2025
    Joséphine Mosset 01 Aug 2024 31 Jul 2025
    Joana KOKALARI 16 Jan 2024 04 Oct 2024
    Tristan HANSSEN 16 Jan 2024 04 Oct 2024
    Antonella CARDONE 16 Jan 2024 04 Oct 2024

    Complementary Information

    None declared

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    BBMRI-ERIC - Biobanking and Biomolecular Resources Research Infrastructure – European Research Infrastructure Consortium
    EAA - European Access Academy
    EONS – European Oncology Nursing SocietyEAU - European Association of Urologists
    EFPIA - European Federation of Pharmaceutical Industries Association
    FEAM – Federation of European Academies of Medicine
    All.Can
    OnHOME Alliance
    PCE - Pancreatic Cancer Europe
    World Ovarian Cancer Coalition

    Member organisations

    https://cancerpatientseurope.org/members/

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2023 - Dec 2023

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    335,073€

    Major funding types in closed year

    Other

    Funding types "other" information

    Pharma company sponsorships

    Major contributions in closed year

    TypeNameAmount
    Contribution Astellas Pharma Europe 41,020€
    Contribution Bayer Healthcare 12,475€
    Contribution Exact Sciences International GmbH 60,000€
    Contribution MSD International Business GmbH 40,125€
    Contribution Stemline Therapeutics Switzerland GmbH 47,360€
    Contribution Takeda Pharmaceuticals International 20,000€
    Grant HORIZON-MISS-2021-CANCER-02 ThermoBreast 63,576€
    Grant HORIZON-MISS-2022-CANCER-01 PREVENT 44,688€

    Other financial info

    The 2023 Balance Sheet was approved by the CPE General Assembly on July 18th 2024, and is available on the CPE website:
    https://cancerpatientseurope.org/wp-content/uploads/2024/10/CPE-2023-balance-sheet.pdf

  • EU Structures

    Groups (European Commission)

    None declared

    Groups (European Parliament)

    Cancer

    Communication activities

    1. European Week Against Cancer : Priorities in Cancer Inequalities Webinars
    During the European Cancer Week 2024, Cancer Patients Europe hosted a series of webinars to raise awareness about the stark inequalities in cancer care across Europe. These webinars explored five key areas where action is needed to reduce disparities and improve outcomes for all cancer patients, regardless of their location.

    2. Genomics and Cancer : ESR1 and Liquid Biopsy
    CPE is actively involved in raising awareness of ESR1 mutations and liquid biopsy testing in metastatic breast cancer. We conducted a comprehensive survey of patients and healthcare professionals, the findings of which are being developed into a white paper outlining the current understanding of ESR1 mutations, and liquid biopsy with recommendations for improving patient care and outcomes.

    3. Rare Cancers : BPDCN
    To increase understanding of blastic plasmacytoid dendritic cell neoplasm (BPDCN), CPE has conducted a communication campaign including social media dissemination an educational webinar, and developed a comprehensive fact sheet. These resources provide valuable information about BPDCN for patients and healthcare providers, with the goal of promoting early diagnosis and access to effective treatments to improve outcomes for those affected by this rare disease.

    4. HTA Cancer Patient’s Awareness
    Co-organised by Cancer Patients Europe and Fundacio HiTT, the HTA initiative aims to empower and improve the knowledge, literacy, and awareness of cancer patients for a timely and effective EU HTA implementation.

    5. European Semester Manifesto
    To promote the inclusion of health in the European Semester process, with cancer as a pilot, CPE has jointly drafted an EU Semester Manifesto and is actively conducting a communication campaign around this initiative. This includes organising events at the EU Parliament to raise awareness and advocate for the inclusion of cancer-specific indicators in the European Semester process.

    Other activities

    None declared

  • Meetings

    Meetings

    1 meetings found. Download meetings

    The list below covers meetings with Commissioners/Cabinet members/Directors-general (high-level) Commission meetings published December 2014 to December 2024, and the meetings of Commissioners/Cabinet members/Directors-general and officials holding "management functions" in the Commission published since 1 January 2025. Other lobby meetings with lower-level staff may well have taken place, but the Commission doesn't proactively publish information about these meetings. All information below comes from the Commission and not from the registrant.

    1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.

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