European Cancer Organisation

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Registration as it was on 16 Mar 2023
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Overview

Lobbying Costs

900,000€ - 999,999€

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

10.75 Fte (14)

Lobbyists with EP accreditation

7

High-level Commission meetings

7

Lobbying Costs over the years

  • Info

    European Cancer Organisation   (E.C.O.)

    EU Transparency Register

    51022176260-12 First registered on 20 Jul 2011

    Goals / Remit

    Our Mission: To reduce the burden of cancer, improve outcomes and the quality of care for cancer patients, through multidisciplinarity and multiprofessionalism. As the not-for-profit federation of member organisations working in cancer at a European level, we convene oncology professionals and patients to agree policy, advocate for positive change and be the united voice of the European cancer community.

    Main EU files targeted

    The European Cancer Organisation’s activities on cancer policy cause it to take interest in a wide range of EU initiatives, policies and legislative files relevant to cancer including:
    - Europe’s Beating Cancer Plan and all connected initiative
    - The EU Cancer Mission
    - European Health Data Space
    - The EU Pharmaceutical Strategy
    - The EU4Health Programme
    - EU policy on health and safety at work
    - The Horizon Europe research programme
    - Professional Qualification Recognition legislation
    - Digital health, including artificial intelligence
    - Social rights, including tackling discrimination against cancer patients and survivors within and outside the workplace
    - Personalised medicine and precision oncology
    - Real world data use and outcome measurement
    - The European Commission Initiative on Breast Cancer and other Joint Research Centre led activities relevant to cancer
    - Achieving earlier cancer diagnosis, including EU Cancer Screening policy
    - Quality Assurance in Cancer care
    - Cancer Prevention and the European Code Against Cancer
    - Legislation, regulation and other actions related to prevention of cancer including modifiable risk factors such as tobacco, alcohol, diet, exercise, sunbed use, workplace carcinogens
    - Clinical trial regulation
    - Workforce planning, education, mobility and safety
    - Addressing healthcare inequalities
    - Air pollution
    - EU-WHO interactions
    - EU initiatives to support vaccination
    - Healthcare determinants and health literacy
    - Use of EU structural funds to improve infrastructures for cancer care and treatment
    - EU funding mechanisms such as HaDEA, Horizon, COST, Erasmus, Social Fund
    - Healthcare across borders, including the role of the European Reference Networks (ERNs) and improving access to clinical trials across borders
    - Patient Safety
    - Antimicrobial resistance
    - State of Health in the EU
    - Data Protection
    - Multiannual Funding Framework
    - Court of Justice decisions relevant to healthcare delivery
    - Health Workforce Planning
    - Joint Actions such as JANE, CRANE and PERCH
    - Better integration of primary care into cancer care
    - Survivorship
    - Quality of Life and Wellbeing
    - Disease control and prevention including the activities of the ECDC

    Address

    Head Office
    Rue de la Science 41
    Brussels 1040
    BELGIUM
    EU Office
    Rue de la Science 41
    Brussels 1040
    BELGIUM

    Website

  • People

    Total lobbyists declared

    14

    Employment timeLobbyists
    100%4
    75%7
    50%3

    Lobbyists (Full time equivalent)

    10.75

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    7 accreditations were / are live (in bold) for the selected state of 01 Apr 2023

    Name Start date End Date
    Ms Silvia ROMEO 28 Oct 2022 27 Oct 2023
    Ms Ivana LORENZATTI 27 Oct 2022 26 Oct 2023
    Mr Norbert COUESPEL 04 May 2022 03 May 2023
    Mr Mike MORRISSEY 04 May 2022 03 May 2023
    Mr Richard Price 04 May 2022 03 May 2023
    Mr Giacomo LAZZARO 29 Apr 2022 28 Apr 2023
    Mr Riccardo MOSCHETTI 29 Apr 2022 28 Apr 2023
    Mr Norbert COUESPEL 08 Feb 2020 01 Aug 2020
    Mr Matti AAPRO 28 Nov 2019 28 Nov 2020
    Mr Eric BIENEFELD 15 Nov 2019 01 Dec 2020
    Mr Mike MORRISSEY 10 Oct 2019 01 Nov 2020
    Mr Richard Price 04 Oct 2019 03 Oct 2020
    Ms Agnese KONUSEVSKA 03 Oct 2019 03 Oct 2020
    Ms Nela OSMANOVIC 03 Oct 2019 03 Oct 2020
    Ms Pascale Blaes 19 Jun 2019 02 Oct 2019
    Birgit BEGER 12 Jul 2018 30 Jan 2019
    Ms Pascale Blaes 19 Jun 2018 19 Jun 2019
    Mr Richard Price 08 Jun 2018 01 Jun 2019
    Ms Sapna SHETH 15 Feb 2018 30 Jan 2019
    Birgit BEGER 27 Jun 2017 23 Jun 2018
    Ms Françoise Van Hemelryck 25 Apr 2017 14 Feb 2018
    Mr Richard Price 25 Apr 2017 25 Apr 2018
    Birgit BEGER 20 Jun 2016 17 Jun 2017
    Mr Pierre Roca 31 May 2016 26 Apr 2017

    Complementary Information

    Apart from staff, our volunteers of medical professionals regularly advise and engage with us on EU-related matters.

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    • All.Can
    • Biomedical Alliance in Europe
    • European Chronic Disease Alliance
    • EPHA – European Public Health Alliance
    • FAIB - Federation of European and International Associations Established in Belgium
    • UICC - Union for International Cancer Control
    • FEAM - Federation of European Academies of Medicine

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    900,000€ - 999,999€

    Major contributions in closed year

    TypeNameAmount
    Grant EURAMED rocc-n-roll - Horizon 2020 Project 14,205€
    Grant INTERACT-EUROPE - EU4Health 240,503€
    Grant EU NAVIGATE - Horizon Europe 24,932€
    Grant STRONG-AYA - Horizon Europe 17,102€
    Grant 4D PICTURE - Horizon Europe 7,317€

    Major contributions in current year

    TypeNameAmount
    Grant EURAMED rocc-n-roll - Horizon 2020 Project 3,120€
    Grant INTERACT-EUROPE - EU4Health 453,362€
    Grant EU NAVIGATE - Horizon Europe 55,046€
    Grant STRONG-AYA - Horizon Europe 67,458€
    Grant 4D PICTURE - Horizon Europe 21,500€
    Grant PROTECT-EUROPE - EU4Health 214,821€
    Grant smartCARE - EU4Health 273,765€
    Grant EUonQOL - Horizon Europe 103,162€
    Grant SANGUINE - Horizon Europe 136,875€
    Grant PRAISE-U - EU4Health - upcoming 12,703€
    Grant SOLACE - EU4Health - upcoming 10,135€
    Grant CCI4EU - Horizon Europe - Upcoming 25,975€
    Grant ESIC-Fund - Horizon Europe - upcoming 21,750€
    Grant TOGAS - EU4Health 17,182€
    Grant DigiCanTrain - EU4Health 13,082€
    Grant TRANSiTION - EU4Health 57,461€

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    900,000€ - 999,999€

    Other financial info

    The data on the financial year 2022 will be officially closed following the Board approval of our audited accounts in April 2023.

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    European Cancer Organisation has been pleased to establish in 2022 a new grouping, National and European Parliamentarian for Cancer Action.

    Bringing together National and European parliamentarians who are committed to beating cancer and tackling inequalities in cancer on a national and European basis, this new Network for political action will:

    - Heighten political understanding of the inequalities in cancer care requiring priority attention across Europe
    - Identify key legislative and other opportunities for targeted action to reduce inequalities in cancer care, including at both national and European level
    - Convey political consensus and recommendations from politicians across Europe united in shared resolve to improve the fight against cancer in all European countries

    For more information, please see our website: https://www.europeancancer.org/national-and-european-parliamentarians-for-cancer-action

    Other activities

    None declared

  • Meetings

    Meetings

    7 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't publish information about such meetings. All information below comes from European Commission web pages.

    • Date 10 Oct 2022 Location Bruxelles
      Subject Working group on European Health Data Space
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Commission
      • Ralf Kuhne (Cabinet member)
      Other Lobbyists
    • Date 09 Nov 2021 Location Brussels
      Subject Europe’s Beating Cancer Plan
      Commission
      • Sandra Gallina (Director-General)
    • Date 07 Apr 2021 Location Brussels - virtual meeting
      Subject Exchange of views on Europe’s Beating Cancer Plan and its implementation with the European Cancer Organisation and its Member Societies and Patient Advisory Committee
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Commission
      • Stella Kyriakides (Commissioner)
    • Date 23 Sep 2020 Location Brussels
      Subject The Commissioner delivers a speech at the launch of the European Code of Cancer Practice virtual event
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Commission
      • Stella Kyriakides (Commissioner)
    • Date 27 May 2020 Location Brussels
      Subject VC meeting with 28 ECCO member societies and 17 patient advocacy groups to discuss Europe’s Beating Cancer Plan and the impact of COVID on cancer care and oncology patients
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Commission
      • Stella Kyriakides (Commissioner)
    • Date 08 Jan 2020 Location Brussels
      Subject Discussion on cancer
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Commission
      • Stella Kyriakides (Commissioner)
    • Date 23 Mar 2018 Location Brussels
      Subject Next European Cancer Summit
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Commission
      • Annika Nowak (Cabinet member)
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