European Cancer Organisation

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Registration as it was on 16 Mar 2023
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Overview

Lobbying Costs

900,000€ - 999,999€

Financial year: Jan 2022 - Dec 2022

Lobbyists (Full time equivalent)

10.75 Fte (14)

Lobbyists with EP accreditation

14

High-level Commission meetings

8

Lobbying Costs over the years

  • Info

    European Cancer Organisation   (E.C.O.)

    EU Transparency Register

    51022176260-12 First registered on 20 Jul 2011

    Goals / Remit

    Our Mission: To reduce the burden of cancer, improve outcomes and the quality of care for cancer patients, through multidisciplinarity and multiprofessionalism. As the not-for-profit federation of member organisations working in cancer at a European level, we convene oncology professionals and patients to agree policy, advocate for positive change and be the united voice of the European cancer community.

    Main EU files targeted

    The European Cancer Organisation’s activities on cancer policy cause it to take interest in a wide range of EU initiatives, policies and legislative files relevant to cancer including:
    - Europe’s Beating Cancer Plan and all connected initiative
    - The EU Cancer Mission
    - European Health Data Space
    - The EU Pharmaceutical Strategy
    - The EU4Health Programme
    - EU policy on health and safety at work
    - The Horizon Europe research programme
    - Professional Qualification Recognition legislation
    - Digital health, including artificial intelligence
    - Social rights, including tackling discrimination against cancer patients and survivors within and outside the workplace
    - Personalised medicine and precision oncology
    - Real world data use and outcome measurement
    - The European Commission Initiative on Breast Cancer and other Joint Research Centre led activities relevant to cancer
    - Achieving earlier cancer diagnosis, including EU Cancer Screening policy
    - Quality Assurance in Cancer care
    - Cancer Prevention and the European Code Against Cancer
    - Legislation, regulation and other actions related to prevention of cancer including modifiable risk factors such as tobacco, alcohol, diet, exercise, sunbed use, workplace carcinogens
    - Clinical trial regulation
    - Workforce planning, education, mobility and safety
    - Addressing healthcare inequalities
    - Air pollution
    - EU-WHO interactions
    - EU initiatives to support vaccination
    - Healthcare determinants and health literacy
    - Use of EU structural funds to improve infrastructures for cancer care and treatment
    - EU funding mechanisms such as HaDEA, Horizon, COST, Erasmus, Social Fund
    - Healthcare across borders, including the role of the European Reference Networks (ERNs) and improving access to clinical trials across borders
    - Patient Safety
    - Antimicrobial resistance
    - State of Health in the EU
    - Data Protection
    - Multiannual Funding Framework
    - Court of Justice decisions relevant to healthcare delivery
    - Health Workforce Planning
    - Joint Actions such as JANE, CRANE and PERCH
    - Better integration of primary care into cancer care
    - Survivorship
    - Quality of Life and Wellbeing
    - Disease control and prevention including the activities of the ECDC

    Address

    Head Office
    Rue de la Science 41
    Brussels 1040
    BELGIUM
    EU Office
    Rue de la Science 41
    Brussels 1040
    BELGIUM

    Website

  • People

    Total lobbyists declared

    14

    Employment timeLobbyists
    100%4
    75%7
    50%3

    Lobbyists (Full time equivalent)

    10.75

    Lobbyists with EP accreditation

    All Lobbyists with EP accreditation over time

    14 accreditations were / are live (in bold) for the selected state of 21 Feb 2024

    Name Start date End Date
    Ms Nela OSMANOVIC 16 Feb 2024 14 Feb 2025
    Ms Marina Ximeri 16 Feb 2024 14 Feb 2025
    Ms Silvia ROMEO 19 Jan 2024 17 Jan 2025
    Mr Kristiyan Dimitrov 22 Sep 2023 19 Dec 2023
    Ms Marion L'HOTE 31 Aug 2023 31 Aug 2024
    Mr Eric BIENEFELD 02 Jun 2023 01 Jun 2024
    Ms Marjola MEMAJ 31 May 2023 24 Oct 2023
    Ms Miriam ROMERO PICÓ 31 May 2023 24 Oct 2023
    Mr Giuseppe FILITI 27 May 2023 24 May 2024
    Ms Ana MULA APARICIO 27 May 2023 25 Oct 2023
    Mr Yasen NAYDENOV 27 May 2023 24 May 2024
    Mr Jack LATTEUR 27 May 2023 24 May 2024
    Mr Gloria VENEGONI 29 Apr 2023 26 Apr 2024
    Mr Norbert COUESPEL 03 May 2023 02 May 2024
    Mr Enea VENEGONI 29 Apr 2023 04 May 2023
    Mr Giacomo LAZZARO 29 Apr 2023 26 Apr 2024
    Mr Riccardo MOSCHETTI 29 Apr 2023 26 Apr 2024
    Mr Mike MORRISSEY 29 Apr 2023 26 Apr 2024
    Mr Richard Price 29 Apr 2023 26 Apr 2024
    Ms Judith KINZEL 18 Mar 2023 31 Aug 2023
    Ms Silvia ROMEO 28 Oct 2022 28 Oct 2023
    Ms Ivana LORENZATTI 27 Oct 2022 13 Mar 2023
    Mr Norbert COUESPEL 04 May 2022 03 May 2023
    Mr Mike MORRISSEY 04 May 2022 29 Apr 2023
    Mr Richard Price 04 May 2022 29 Apr 2023
    Mr Giacomo LAZZARO 29 Apr 2022 29 Apr 2023
    Mr Riccardo MOSCHETTI 29 Apr 2022 29 Apr 2023
    Mr Norbert COUESPEL 08 Feb 2020 01 Aug 2020
    Mr Matti AAPRO 28 Nov 2019 28 Nov 2020
    Mr Eric BIENEFELD 15 Nov 2019 01 Dec 2020
    Mr Mike MORRISSEY 10 Oct 2019 01 Nov 2020
    Mr Richard Price 04 Oct 2019 03 Oct 2020
    Ms Agnese KONUSEVSKA 03 Oct 2019 03 Oct 2020
    Ms Nela OSMANOVIC 03 Oct 2019 03 Oct 2020
    Ms Pascale Blaes 19 Jun 2019 02 Oct 2019
    Birgit BEGER 12 Jul 2018 30 Jan 2019
    Ms Pascale Blaes 19 Jun 2018 19 Jun 2019
    Mr Richard Price 08 Jun 2018 01 Jun 2019
    Ms Sapna SHETH 15 Feb 2018 30 Jan 2019
    Birgit BEGER 27 Jun 2017 23 Jun 2018
    Ms Françoise Van Hemelryck 25 Apr 2017 14 Feb 2018
    Mr Richard Price 25 Apr 2017 25 Apr 2018
    Birgit BEGER 20 Jun 2016 17 Jun 2017
    Mr Pierre Roca 31 May 2016 26 Apr 2017

    Complementary Information

    Apart from staff, our volunteers of medical professionals regularly advise and engage with us on EU-related matters.

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    • All.Can
    • Biomedical Alliance in Europe
    • European Chronic Disease Alliance
    • EPHA – European Public Health Alliance
    • FAIB - Federation of European and International Associations Established in Belgium
    • UICC - Union for International Cancer Control
    • FEAM - Federation of European Academies of Medicine

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Promotes their own interests or the collective interests of their members

    Closed financial year

    Jan 2022 - Dec 2022

    Lobbying costs for closed financial year

    900,000€ - 999,999€

    Major contributions in closed year

    TypeNameAmount
    Grant EURAMED rocc-n-roll - Horizon 2020 Project 14,205€
    Grant INTERACT-EUROPE - EU4Health 240,503€
    Grant EU NAVIGATE - Horizon Europe 24,932€
    Grant STRONG-AYA - Horizon Europe 17,102€
    Grant 4D PICTURE - Horizon Europe 7,317€

    Major contributions in current year

    TypeNameAmount
    Grant EURAMED rocc-n-roll - Horizon 2020 Project 3,120€
    Grant INTERACT-EUROPE - EU4Health 453,362€
    Grant EU NAVIGATE - Horizon Europe 55,046€
    Grant STRONG-AYA - Horizon Europe 67,458€
    Grant 4D PICTURE - Horizon Europe 21,500€
    Grant PROTECT-EUROPE - EU4Health 214,821€
    Grant smartCARE - EU4Health 273,765€
    Grant EUonQOL - Horizon Europe 103,162€
    Grant SANGUINE - Horizon Europe 136,875€
    Grant PRAISE-U - EU4Health - upcoming 12,703€
    Grant SOLACE - EU4Health - upcoming 10,135€
    Grant CCI4EU - Horizon Europe - Upcoming 25,975€
    Grant ESIC-Fund - Horizon Europe - upcoming 21,750€
    Grant TOGAS - EU4Health 17,182€
    Grant DigiCanTrain - EU4Health 13,082€
    Grant TRANSiTION - EU4Health 57,461€

    Intermediaries for closed year

    None declared

    Intermediaries for current year

    None declared

    Closed year Costs

    900,000€ - 999,999€

    Other financial info

    The data on the financial year 2022 will be officially closed following the Board approval of our audited accounts in April 2023.

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    European Cancer Organisation has been pleased to establish in 2022 a new grouping, National and European Parliamentarian for Cancer Action.

    Bringing together National and European parliamentarians who are committed to beating cancer and tackling inequalities in cancer on a national and European basis, this new Network for political action will:

    - Heighten political understanding of the inequalities in cancer care requiring priority attention across Europe
    - Identify key legislative and other opportunities for targeted action to reduce inequalities in cancer care, including at both national and European level
    - Convey political consensus and recommendations from politicians across Europe united in shared resolve to improve the fight against cancer in all European countries

    For more information, please see our website: https://www.europeancancer.org/national-and-european-parliamentarians-for-cancer-action

    Communication activities

    Principal policy activities of the European Cancer Organisation include:

    10 Focused Topic Networks

    As part of its 2020-23 Strategy, we convene 10 Focused Topic Networks on:

    - ECO-ASCO Special Network: Impact of the War in Ukraine on Cancer
    - Special Network: Impact of Covid-19 on Cancer
    - Prevention, Early Detection and Screening Network
    - HPV Action Network
    - Health Systems and Treatment Optimisation Network
    - Quality Cancer Care Network
    - Survivorship and Quality of Life Network
    - Digital Health Network
    - Inequalities Network
    - Workforce Network

    More information about these networks is available on the European Cancer Organisation website www.europeancancer.org


    The European Cancer Summit

    The annual European Cancer Summit convenes between 400 and 500 leading representatives from across cancer policy communities (healthcare professions, patient organisations, governmental and regulatory audiences, commercial providers to the sectors) to debate and discuss pressing opportunities and threats for improving cancer care and outcomes. The meeting aims to signal consensus where possible via meeting resolutions, and elsewhere, allow controversies and difference of views to be aired and debated. Examples of passed resolutions at the European Cancer Summit include those relating to evaluation of quality cancer care, integration of primary and secondary care, tackling discrimination against cancer survivors and calling for policies to bring about the elimination of HPV caused cancers as a public health problem in Europe. More information here www.europeancancer.org.

    The Essential Requirements for Quality Cancer Care (ERQCCs)

    From 2017, we have been publishing a series of consensus papers articulating healthcare professional and patient visions of what high quality care should be composed of. They include checklists and explanations of organisation and actions that are necessary to give high-quality care to cancer patients. They are written by European experts representing all disciplines involved in cancer care. Typically covering such issues as membership of the core and extended multidisciplinary teams, the agreed roles of each profession, patient information needs and much else, ERQCCs have been developed for: colorectal cancer, sarcoma, melanoma, oesophageal-gastric cancer, prostate cancer and primary care. More information here: https://www.europeancancer.org/2-standard/8-erqcc


    Patient Advisory Committee (PAC)

    Our Patient Advisory Committee, comprised of representatives from 22 European and international level patient organisations, plays a central role in ensuring activities and policies of the organisation are strongly counselled from the patient perspective. With representation within our Board of Directors, many policy and activity proposals emanating from the PAC are taken forward with our 42 Member Societies. Examples in this respect have included the Essential Requirements for Quality Cancer Care: Primary Care, and the European Code of Cancer Practice.

    More information on our Patient Advisory Committee here: https://www.europeancancer.org/patients

    More information about the European Code of Cancer Practice here: https://www.europeancancer.org/code

    We also conduct collaborative policy activities through alliance initiatives such as: the European Public Health Alliance, the Biomedical Alliance, the European Chronic Disease Alliance, the Union for International Cancer Control, and the Federation of European Academies of Medicine (FEAM).

    Presently (March 2023) involved within EU funded collaborations:
    • INTERACT-EUROPE: leading the consortium
    • EURAMED rocc-n-roll
    • 4D PICTURE
    • EU NAVIGATE
    • STRONG AYA
    • smartCARE: leading the consortium
    • PROTECT-EUROPE: leading the consortium
    • EUonQoL
    • SANGUINE
    • PRAISE-U: upcoming
    • SOLACE: upcoming
    • TOGAS
    • DigiCanTrain
    • TRANSiTION
    • CC4EU: upcoming
    • ESIC-Fund - upcoming

    Other activities

    None declared

  • Meetings

    Meetings

    8 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.

    • Date 29 Jun 2023 Location Brussels
      Subject EU beating cancer
      Cabinet Cabinet of Vice-President Margaritis Schinas
      Portfolio Promoting the European Way of Life
      Attending
      • Margaritis Schinas (Vice-President)
      • Maria Luisa Llano Cardenal (Cabinet member)
    • Date 10 Oct 2022 Location Bruxelles
      Subject Working group on European Health Data Space
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Ralf Kuhne (Cabinet member)
      Other Lobbyists
    • Date 09 Nov 2021 Location Brussels
      Subject Europe’s Beating Cancer Plan
      DG Health and Food Safety
      Attending
      • Sandra Gallina (Director-General)
    • Date 07 Apr 2021 Location Brussels - virtual meeting
      Subject Exchange of views on Europe’s Beating Cancer Plan and its implementation with the European Cancer Organisation and its Member Societies and Patient Advisory Committee
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Stella Kyriakides (Commissioner)
    • Date 23 Sep 2020 Location Brussels
      Subject The Commissioner delivers a speech at the launch of the European Code of Cancer Practice virtual event
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Stella Kyriakides (Commissioner)
    • Date 27 May 2020 Location Brussels
      Subject VC meeting with 28 ECCO member societies and 17 patient advocacy groups to discuss Europe’s Beating Cancer Plan and the impact of COVID on cancer care and oncology patients
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Stella Kyriakides (Commissioner)
    • Date 08 Jan 2020 Location Brussels
      Subject Discussion on cancer
      Cabinet Cabinet of Commissioner Stella Kyriakides
      Portfolio Health
      Attending
      • Stella Kyriakides (Commissioner)
    • Date 23 Mar 2018 Location Brussels
      Subject Next European Cancer Summit
      Cabinet Cabinet of Commissioner Vytenis Andriukaitis
      Portfolio Health &amp; Food Safety
      Attending
      • Annika Nowak (Cabinet member)
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