EUROPA DONNA-The European Breast Cancer Coalition

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Registration as it was on 12 Oct 2022
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Overview

Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

Lobbying Costs

None declared

Financial year: Jan 2021 - Dec 2021

Lobbyists (Full time equivalent)

3 Fte (5)

Lobbyists with EP accreditation

0

High-level Commission meetings

1

Lobbying Costs over the years

  • Info

    EUROPA DONNA-The European Breast Cancer Coalition   (ED)

    EU Transparency Register

    13080161140-33 First registered on 13 Feb 2009

    Goals / Remit

    MISSION:
    EUROPA DONNA – The European Breast Cancer Coalition (ED) is an independent, non-profit organisation whose members are affiliated groups from countries throughout Europe. ED works to raise public awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and care and increased funding for research. ED works to ensure that advocates are provided with up-to-date, accurate, evidence-based information and training through our education and information programmes listed below. We have more than 25 years of experience in successfully advocating for European policies, legislation and guidelines to guarantee best practice in breast cancer services for women throughout Europe. We also advocate for high level research to improve breast cancer treatment and outcomes for patients.

    TEN GOALS:
    See https://www.europadonna.org/about/10-goals/

    Main EU files targeted

    In 2015, the Written Declaration on the Fight Against Breast Cancer in the EU (0017/2015) was passed. The Declaration calls for Member States to implement nationwide breast screening and provide multidisciplinary Specialist Breast Units (SBUs), in accordance with the EU Guidelines. Regarding MBC, the declaration states that those with Metastatic Breast Cancer should have access to, and be treated in, an SBU, and their on-going needs for care and psychosocial services should be coordinated and supported by the SBU as per the EU Guidelines. We continue to maintain and develop our website where all material concerning breast cancer resolutions including the 2015 Written Declaration on the Fight Against Breast Cancer in the EU can be viewed.
    Europa Donna also takes part in the Transforming Breast Cancer Together Initiative, chaired by MEP Frances Fitzgerald (Vice Chair-woman of the EPP Group), which was established when influential policy makers and organizations strongly committed to breast cancer began to collaborate in 2017. In 2021 and 2022, ED continues to play an active role in TCBT and Marzia Zambon has taken part in several online TBCT meetings and events. We will continue to work with various MEP committees and groups in the coming year to raise awareness of breast cancer issues. We will also push ahead with projects concerning inequalities in access to breast cancer care among and across European countries and returning to work after a diagnosis of EBC and MBC. Furthermore, ED engages directly with MEPs and parliament groups such as Beating Cancer (BECA) and European People’s Party (EPP): in 2021 ED representatives were regularly invited to speak at awareness sessions and informative hearings at the EU Parliament. This type of activity enables us to engage EU policy makers and provide them with information on various topics concerning breast cancer. ED provided feedback and requested amendments to the BECA final report in cooperation with TBCT and WECAN initiatives.

    Address

    Head Office
    Piazza Amendola, 3
    Milan 20149
    ITALY
    EU Office
    Piazza Amendola, 3
    Milan 20149
    ITALY

    Website

  • People

    Total lobbyists declared

    5

    Employment timeLobbyists
    100%1
    50%4

    Lobbyists (Full time equivalent)

    3

    Lobbyists with EP accreditation

    No lobbyists with EP accreditations

    Complementary Information

    EUROPA DONNA has a part-time staff of four in addition to its full-time Executive Director, Marzia Zambon.

    Person in charge of EU relations

    Data not provided by Register Secretariat due to GDPR

    Person with legal responsibility

    Data not provided by Register Secretariat due to GDPR

  • Categories

    Category

    Non-governmental organisations, platforms and networks and similar

  • Networking

    Affiliation

    European Patients' Forum

    Affiliate member, Cancer Prevention Europe

    ABC Global Alliance

    Member organisations

    None declared

  • Financial Data

    Interests represented

    Does not represent commercial interests

    Closed financial year

    Jan 2021 - Dec 2021

    Lobbying costs for closed financial year

    Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.

    Total organisational budget in closed year

    667,084€

    Major funding types in closed year

    Grants

    Major contributions in closed year

    TypeNameAmount
    Contribution Grants from various sources 646,766€
    Contribution Membership dues 15,980€

    Other financial info

    Europa Donna's audited financial statements are available on the institutional website at: https://www.europadonna.org/about-us/financial-statements/

  • EU Structures

    Groups (European Commission)

    none

    Groups (European Parliament)

    N/A

    Other activities

    AT the EU level, EUROPA DONNA is involved in: breast cancer, cancer control plans, advocacy for the implementation of European Commission-supported guidelines and a quality assurance scheme for breast health as a means to achieve high-quality breast cancer services across all European countries. In particular, ED works toward establishing an EU process for accreditation of Specialist Breast Units that will be applied Europe-wide.

  • Meetings

    Meetings

    1 meetings found. Download meetings

    The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't publish information about such meetings. All information below comes from European Commission web pages.

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