Overview
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Lobbying Costs
None declared
Financial year: Jan 2023 - Dec 2023
Lobbyists (Full time equivalent)
3.5 Fte (6)
Lobbyists with EP accreditation
0
High-level Commission meetings
4
Lobbying Costs over the years
-
Info
EUROPA DONNA-The European Breast Cancer Coalition (ED)
EU Transparency Register
13080161140-33 First registered on 13 Feb 2009
Goals / Remit
MISSION:
EUROPA DONNA – The European Breast Cancer Coalition (ED) is an independent, non-profit organisation whose members are affiliated groups from countries throughout Europe. ED works to raise public awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and care and increased funding for research. ED works to ensure that advocates are provided with up-to-date, accurate, evidence-based information and training through our education and information programmes listed below. We have more than 30 years of experience in successfully advocating for European policies, legislation and guidelines to guarantee best practice in breast cancer services for women throughout Europe. We also advocate for high level research to improve breast cancer treatment and outcomes for patients.
TEN GOALS:
See https://www.europadonna.org/about/10-goals/Main EU files targeted
In 2015, the Written Declaration on the Fight Against Breast Cancer in the EU (0017/2015) was passed. The Declaration calls for Member States to implement nationwide breast screening and provide multidisciplinary Specialist Breast Units (SBUs), in accordance with the EU Guidelines. Regarding MBC, the declaration states that those with Metastatic Breast Cancer should have access to, and be treated in, an SBU, and their on-going needs for care and psychosocial services should be coordinated and supported by the SBU as per the EU Guidelines. We continue to maintain and develop our website where all material concerning breast cancer resolutions including the 2015 Written Declaration on the Fight Against Breast Cancer in the EU can be viewed.
Europa Donna also takes part in the Transforming Breast Cancer Together Initiative, chaired by MEP Frances Fitzgerald (Vice Chair-woman of the EPP Group), which was established when influential policy makers and organizations strongly committed to breast cancer began to collaborate in 2017. In 2024, ED continues to play an active role in TCBT and Marzia Zambon has taken part in several online TBCT meetings and events. We will continue to work with various MEP committees and groups in the coming year to raise awareness of breast cancer issues. We will also push ahead with projects concerning inequalities in access to breast cancer care among and across European countries and returning to work after a diagnosis of EBC and MBC. Furthermore, ED engages directly with MEPs and parliament groups such as Beating Cancer (BECA) and European People’s Party (EPP): ED representatives are regularly invited to speak at awareness sessions and informative hearings at the EU Parliament. This type of activity enables us to engage EU policy makers and provide them with information on various topics concerning breast cancer. ED provides feedback and requested amendments to the BECA final report in cooperation with TBCT and WECAN initiatives.Address
Head Office
Piazza Gian Lorenzo Bernini, 4
Milan 20133
ITALYEU Office
Piazza Gian Lorenzo Bernini, 4
Milan 20133
ITALYWebsite
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People
Total lobbyists declared
6
Employment time Lobbyists 100% 1 50% 5 Lobbyists (Full time equivalent)
3.5
Lobbyists with EP accreditation
No lobbyists with EP accreditations
Complementary Information
EUROPA DONNA has a part-time staff of five in addition to its full-time Executive Director, Marzia Zambon.
Person in charge of EU relations
Data not provided by Register Secretariat due to GDPR
Person with legal responsibility
Data not provided by Register Secretariat due to GDPR
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Categories
Category
Non-governmental organisations, platforms and networks and similar
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Networking
Affiliation
European Patients' Forum
Affiliate member, Cancer Prevention Europe
ABC Global Alliance
UICCMember organisations
None declared
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Financial Data
Interests represented
Does not represent commercial interests
Closed financial year
Jan 2023 - Dec 2023
Lobbying costs for closed financial year
Since 20 September 2021 self-declared 'non-commercial organisations' are no longer required to provide a lobby budget. See above timeline for this registrant's historical lobby budget.
Total organisational budget in closed year
819,770€
Major funding types in closed year
Grants
Major contributions in closed year
Type Name Amount Contribution Grants from various sources 764,429€ Contribution Membership Dues 15,000€ Grant Horizon Europe smartCARE 1,797€ Other financial info
Europa Donna's audited financial statements are available on the institutional website at: https://www.europadonna.org/about-us/financial-statements/
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EU Structures
Groups (European Commission)
None declared
Groups (European Parliament)
N/A
Communication activities
The ED Head Office carries out programmes in three main areas: education, information and advocacy. Our 47 European member countries are targeted with the following:
EDUCATION Programme: To most effectively fight breast cancer, ED seeks to encourage open communication and knowledge-sharing. To this end, we develop educational projects and organise conferences. ADVOCACY TRAINING COURSE—this annual, intensive 2.5 day course on scientific aspects, EU Guidelines, Specialist Breast Units, mammography screening, communication skills training, capacity building, brings New Advocates together to learn best practice; EUROPEAN BREAST CANCER CONFERENCE (EBCC)—at this biennial conference (co-organized by ED & EORTC), 2,000 participants learn about the latest scientific advances on all breast cancer topics; ED PAN-EUROPEAN CONFERENCE this 2-day biennial conference responds exclusively to the needs of breast cancer advocates; ADVOCACY LEADER CONFERENCE—Leaders of ED’s National Fora meet for updates on advocacy topics and managing a national non-profit (held when needed); the MBC ADVOCACY CONFERENCES/WEBINARS--For advocates with MBC and advocates who run MBC programmes, held for the first time in 2017.
INFORMATION Programme: ED ensures that women have access to accurate, up-to-date information on breast cancer issues via its WEBSITE (www.europadonna.org), SOCIAL MEDIA and PUBLICATIONS e.g. e-Newsletter and conference proceedings documents. We publish INFORMATION BOOKLETS on areas such as Understanding Breast Cancer Research and POLICY STATEMENTS on subjects such as genomics; we also issue conference proceedings. New ED member organisations are sent our MEMBERSHIP TOOLKIT. We SURVEY our members on breast cancer topics on an ad-hoc basis; results are reported in ED publications/at events.
A major recent ED advocacy initiative was the publication of the EUROPA DONNA ADVOCATES GUIDE TO THE ECIBC, the European Commission Initiative on Breast Cancer; it was designed as an interactive training tool for advocates in order to prepare them to advocate for quality breast care now and in the future.
ADVOCACY Programme: ED represents the interests of European women to EU institutions, bringing breast cancer issues and women’s/patients’ concerns to the attention of MEPs and European Commission both directly and via expert meetings, conferences, Infodays etc. ED provides on-going input into new health strategy initiatives to ensure that breast cancer issues will be addressed and also positions itself to respond to drafts of legislation. ED’s Board and Executive Director attend many events each year as expert patient advocates.Other activities
None declared
Meetings
Meetings
4 meetings found. Download meetings
The list below only covers meetings held since November 2014 with commissioners, their cabinet members or directors-general at the European Commission; other lobby meetings with lower-level staff may have taken place, but the European Commission doesn't proactively publish information about these meetings. For more information about which commissioner is responsible for which portfolio, check out this link: https://commissioners.ec.europa.eu/index_en All information below comes from European Commission web pages.
1 July 2024: We have noted that some meetings are appearing in duplicate, ie. some meetings seem to be listed twice. This seems to be because the Commission changes some element of a meeting data after the meeting has first been listed, which causes LobbyFacts to register it as a new meeting. We are investigating further.
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Date 09 Apr 2024 Location Videoconference Subject Europe’s Beating Cancer Plan; quality of life Cabinet Cabinet of Commissioner Stella Kyriakides Attending - Stella Kyriakides (Commissioner)
- Tove Ernst (Cabinet member)
Other Lobbyists -
Date 26 May 2023 Location Cyprus Subject Visit to the Europa Donna House Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Stella Kyriakides (Commissioner)
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Date 02 May 2023 Location online Subject Europe’s Beating Cancer Plan and EU Policy on cancer, including breast cancer Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Tove Ernst (Cabinet member)
- Stella Kyriakides (Commissioner)
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Date 05 Feb 2020 Location Brussels Subject Discussion on Cancer and Europe's Beating Cancer Plan Cabinet Cabinet of Commissioner Stella Kyriakides Portfolio Health Attending - Tove Ernst (Cabinet member)
- Stella Kyriakides (Commissioner)
Other Lobbyists